Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-21-2012, 09:57 PM #1
tos8 tos8 is offline
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Join Date: Sep 2009
Posts: 286
15 yr Member
tos8 tos8 is offline
Member
 
Join Date: Sep 2009
Posts: 286
15 yr Member
Default PM dr

In Decemeber im going to go see a PM dr i saw 4yrs ago. However 4yrs ago I wasnt dxed with RSD, it was for post rib resection surgery. So I need major help! I need to be ready when I go in, completly ready. So the issue i KNOW for fact im going to have is hes going to toss me in the "tos bucket", us TOS paitents call it the "tos bucket" because every sympthom, every problems gets blamed on the tos, And so there for there only willing the treat you as a tos paitent. I will NOT go in there and be treated as a tos paitent, i will go in there and be treated as an RSD paitent. So heres where I need help. I refuse ALL injections! NO injections at all, exspecially shooting botox in my scalenes, those drs were nuts!!! I will also not get a SCS! The PM drs have tried and tried again, but its not happening. So thats where i need help, I need to know besides those things, what can i bring to the table to him. Im ok with doing infusions, But i dont know what kind are available. And im ok with meds, which im already on. I would like to try IVIG but I know its a long shot for right now. So whats somthing i can present for the time being? I know for a fact this dr is not gonna be very knowlegable on RSD. But hes the only one i can see right now until i find better help. So im gonna have to bring everything to him.
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