Went to Dr for Second opinion and am more confused.
Saw a really nice lady Dr who is very perplexed with my condition.
Said I only had 1 and 1/2 symtoms of crps.
My foot swells and turns colors when put down but immediately starts getting color back and swelling goes down when put back up. Or when messaged.
But other dr said he has seen this before with crps.
I actually have no pain except when I put pressure on my foot to walk which is coming from my joints. Also foot will swell along with ankle and knee IF I am up to much and will ache.
They are going to start therapy as soon as approved by insurance.
To help me loosen up foot joints as I am walking on my foot pretty good now just stiff joints and then the swelling issues and aching.

They also decided right before I left , I think she really pushed the other Dr to get on board to do a doppler test on my right side and she ordered a 3 phase bone scan.
Last dr ordered the 3 phase bone scan but I cancealed it .
Not sure I will do this one either.
I think I will wait on it along with the lumbar sympathic block.
The block I have no use for becauseI don't have pain just achiness and only IF I am up to much.
She says it looks more like vascular to her cause it looks like the blood pools when foots down goes back when foots up.
She couldn't get over I had no pain to touch and really hadn't at all except from where the orginal injury was at my little toe joint. Thats still pretty tender but much better.
Joints seem to be loosening up better now too .

But I do still have the discoloration of foot that does go up the back of my leg mainly and the swelling and achiness if I do to much or am up on it to long.
Joints are stiff and do hurt when trying to move but then its been 7 months since they have really been moved around properly too.

Also never had most of the crps symtoms.

So now I am at a very confused place.
Drs very confused also.

She didn't act like she knew about the ice and crps and she didn't know about needles and spreading so I plan to copy the info off that one organization that has the really good info about these two things for her cause they do treat crps patients there and even IF its not what I have maybe I can make them award of this info for someone elses sake.

Have a couple of questions now.
What are ya'lls take on bone scans?
I don't like the idea of one esp IF its not a real necessity.

You that know more about it would it be useful in my situtation?
Or would it just be spinning wheels more?

IF I would actually have crps would a bone scan possibly spread it due to the needle etc?

Any additional info, ideas , advice and or suggestions would be Greatly Appreciated.
Thank you all so Very Much
Feel Better All
Hope Everyones having a Good Day!
kijo

I'm not sure what you have.... you could have RSD/CRPS. But you have very few symptoms but nothing is impossible!

I've had the triple phase bone scan and it showed nothing.....but I've been diagnosed with RSD by at least 9 or 10 doctors. I have RSD from the top of my head to the bottom of my feet. I also have it internal....mouth, throat, stomach, and various other organs.

I've been through a lot of physical therapy....aqua therapy was the best!!

I have color changes in my limbs, but they stay when lifted.

I've learned a lot fighting this monster for the last 9+ years.

I'm sure there are others who will come along and share their experiences. Please remember that no two of us with RSD have the same symptoms. And no two of us will respond the same to the same treatments.

I wish you the best.
Abbie

Let's start off with the fact that it's still possible you have RSD. Not everyone has all the symptoms and over time some may go away while others start up.

That said...if there is something else that could be causing your symptoms then that might be great news. When my RSD spread we honestly tried to rule out EVERY possible cause for the new symptoms before attributing it to spread of the RSD. This can be a long process but you really need to go through the elimination process to make sure you're not missing something that could be treated.

It WOULD make me a little hesitant that this new doctor DOESN'T have experience with RSD...but that doesn't mean she's not the right doctor for you. She may be the perfect doctor if you have something else and she is able to diagnose it.

As for the bone scan...that's really your call. I have not had one and don't see the point for me personally. No one test can conclusively prove you have RSD...though there are many tests that could prove you have something else. Regardless of what the bone scan shows it would not do anything to "prove" you have RSD. It is sometimes used to help confirm a diagnosis of RSD...much as some doctors use blocks to do the same...but even if it shows nothing that doesn't mean you DON'T have it.

So I would basically just proceed with caution. Go through the elimination process to make sure you don't have something else...but be very cautious of things that could make the RSD worse or cause spread like ice or aggressive PT until you know if it's something else or not.

Good luck and I will pray for your sake that it is NOT RSD.

I have crps and my foot changes to a beautiful blue and swells when I'm sitting. When I raise it, the nice pink color returns. My PM said that is typical with crps. Educate yourself as much as possible. Read everything you can about crps/rsd. Hope you don't have it and it's great that your doctor is ruling out everything else like peripheral neuropathy, diabetes, nerve entrapment. With crps, alot of the diagnosis is ruling everything else out. Good luck.