Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-08-2013, 12:34 AM #15
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Angelina55 Angelina55 is offline
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Location: Post Falls, ID
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Angelina55 Angelina55 is offline
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Join Date: Feb 2013
Location: Post Falls, ID
Posts: 175
10 yr Member
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Quote:
Originally Posted by AZ-Di View Post
Angelina,
I'm sorry I'm late in responding to your post. I can so much relate to your situation. I just got approved for SCS today and to tell the truth I really did not want to be. I had 4 denials so I thought the insurance would never approve it. I thought that would make my decision for me.
But, after 9 (tommorrow 10) nerve blocks I'm running out out of that option and the pain starts to return. My range of motion is still very limited so I pretty much type one handed.
I'm very afraid as well so I'm sure we share many of the same concerns. When do you or did you have your trial?
How old is your daughter? I wish I was closer b/c I would come to help you.
I know what you mean by the opinions of friends and family. I feel like no matter what I do to explain to them - they just don't get it!!
I got my trial on May 23 and they took it out on May 28 because I was in so much pain from where they put the leads in my back. It felt like I had just had major surgery but with no pain meds to get me through. I could barely move and I pretty much cried the whole time I had it except for the last day. It did start to feel better, which makes me wonder why they took it out. My daughter is 6. And it is hard to get family to understand. You would think they would understand the most because they see you the most. Then I have a sister that thinks she has CRPS now and tells me it isn't that bad and I just need to not show my pain like she does. LOL All I could do was laugh at her. If she really had any clue! But she is not a very nice person.
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