Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-03-2014, 05:50 PM #15
krow46 krow46 is offline
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Join Date: Mar 2014
Location: VA
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krow46 krow46 is offline
Junior Member
 
Join Date: Mar 2014
Location: VA
Posts: 50
10 yr Member
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AZ-DI
I was one of those they used for trial narcotics from day one and I took so many pills a day for the rsd they didn't have crps back then that I got sick of pills. Along with rsd I had a brain injury and ptsd so I sucked up meds like a vacuum sucks up dirt. I never refused any narcotics and I was fortunate to never get sick from them also. Before I had to go to detox I was on the fentynl <--sp? 100 patch and 120mg of oramorph pills a day. My shoulders and upper arms were so raw from the patch I couldn't use it any more. I took several medications used for other symptoms just for the side effects. Almost 19 years later I am off narcotics, methadone being the last for about 8 years am now scheduled for two neurotransmitters.

It is your body and your decision but if you drop all meds you may increase pain as you let rsd loose and you also may find it difficult to get "back" on meds if your doctors know you decided to drop all meds. They just might think your pain was manageable and not help you. I would think it over very carefully because long term rsd/crps patients in here can see themselves all over again through you . We all had that regime to go through AZ-DI but today they have a much better grip on meds for your affliction than they had 19 yrs ago. Sorry this is so long but I really think you need to evaluate where you stand before you jump! Best off luck with your choices and perhaps you should seek out a neurologist in a pain clinic... I hope your evening goes well and our answers give you positive thoughts. Hugs and smiles from another rsd brother.
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