Originally Posted by Vrae

Made me smile that you've ask. Thank you for thinking of me! This was a big day for sure. I've waited 3 months to see him and it was worth it I think.

I'm pooped, but the short version is I like him and my husband likes him, a lot. We both left feeling like we're finally perhaps moving in the right direction. This new doc is going to reach out to a few pain docs and call me with a referral. Yay! I'm looking forward to that. He confirmed my Dx (no surprise to me.. but cool) and he's also going to add a drug called zonisamide in addition to the gaba. I have not heard of this drug but I'm all good with one of it's side effects of weight loss. he had a few more drugs that we can try if this doesn't work. I desperately need more relief from tremors and neuropathic pain (shocks). He wants me to have specialized and supervised PT, like water PT, okay, cool. I told him that I would like to avoid a wheelchair for as long as possible, so whatever that means. He did mention SCS and I told him I'm not sure I'm ready for that. He also talked about blocks, and I'm all good with trying that.

Anywho, it was an answered prayer and if the PM doc is as good, I will be STOKED!!

Thanks again! Hope you all are having a good day!