I found out about them thru Barby Engel's you tube. She lives in AZ but flew all the way to Florida for the initial inpatient but gets her boosters in AZ, so I wrote them. They originally said they were gonna start the inpatient procedure but decided to hold off and they are now "kicking off" their new 10 day outpatient procedure. I will be there until Oct 18 a full month an a half, but I have family there and driving back & forth from San Diego would be harder on me. I am excited and nervous at the same time. If you want I can keep you a breast of things (preferably the right breast) lol
take care and Smile it helps with the pain

And Shelbie is going to keep me posted on how it goes because I plan on going to their 5 day inpatient program once they have finished their outpatient series of programs! From talking to their staff, it's looking like it's going to be more toward the end of the year or early next year, but I am willing to wait. I've been doing some checking around on other 5 day inpatient ketamine programs and FPH still has the best, in my opinion (with regards to follow-up, boosters, screening and the credentials of all of their doctors are top notch).
Yay Shelbie....so excited for you!!!!

Hi again,


Wanted to let you know I just had my 2nd high does(500mg) Ketamine infusion therapy outpatient done 2 days ago...pain level is a 1 still so far. My infusions have been 4 weeks apart for now, this one could have been 3 weeks but I decided to tough it out 1 more week for some reason. Still on 300mg Lyrica, 75mg Topamax and other meds...hoping to stretch this one out for 4-5 weeks.

Hope your treatments are going well!!

FYI...I am being treated at a military hospital so treatments maybe done differently.(? not sure the difference between private and military.)

Best to all....Terri

Just registered here on this forum yesterday after finding threads about the Ketamine Infusion treatment!

Desperately looking to converse with those who have done this and need advice about it asap - I am about to undergo this soon!

Seems new members have restricted usage here so i can't PM anyone yet. I will keep checking back here to find someone to help me out. Meanwhile my New Member Intro Post should be up soon, awaiting Mod approval. Its called :

"My New Member Intro - Marine First Sergeant"

Hope to hear from experienced members soon as this things scares me, but the pain is OFF THE HOOK! All help is greatly appreciated!

Gunny

Hi!

I'm coming in late to the conversation, but I wanted to let you know that the inpatient hospital stays are actually much better than the outpatient infusion clinics in that while you are receiving the ketamine over a 24h period it's allowing it to "stack" in your system and not allowing your body to take a break from it, like you would if you did the outpatient infusions (your body would take an 18h break in between each infusion). My 12-year-old does the ketamine outpatient infusions 4 days a week (for 4 hours) every 4 weeks and has done the hospital inpatient infusions 5 times now (every 4 months). She also takes ketamine orally twice a day in the form of a lozenge that was specially compounded for her at one of the pharmacies here. Perhaps that's something that the doctor could think of for you as well? Oh - we are in San Antonio, TX. Our doctor is Donald Bacon. He's a pain management specialist/anesthesiologist and works with RSD/CRPS patients all the time. He has a ketamine infusion room in his office - the only one in the city.

I hope this helps you!!! :grouphug

Catherine

Thanks Catherine! That is helpful!

Wow, that seems like alot of ketamine treatments! I'm looking into getting a 7-day in-patient treatment in Winston-Salem, NC hopefully soon because I'm in so much pain, i would rather die than live like this, but I was hoping my pain would be much better, ideally go into remission. I've never heard of anyone having to have the in-patient that frequently with out-patient treatments on top of it! Yikes!

So this leaves me with alot of questions, but for now, I'll focus on two main ones. 1) Does your insurance cover all of these treatments because I know they aren't cheap and I'm not even sure yet if my insurance is going to cover this one yet. 2) If your daughter needs on-going treatments and repeated treatments so frequently, is it really working like it should and will they eventually get to a point where they are no longer needed? I know there's no way to really know that. But I'm wondering if the doctors have given you any prognosis/hope? My heart goes out to you and your daughter.

Hi,
I just read your post regarding the multiple in-patient and out-patient treatments your daughter has had. I have never heard of anyone who has had to have so many that frequently. Is it that her CRPS is that bad and the treatments just don't last long? I'm considering a 7-day in-patient treatment in Winston Salem, NC. I was hoping the one would do the trick. However, my pain is extremely bad. I have a question for you regarding insurance, especially since your daughter has so many treatments. What kind of insurance do you have and does it cover repeated treatments? I hope she's doing well. My prayers are with you, your daughter, and your family.
Thanks,
Denise