Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-28-2015, 03:30 PM #1
maygin maygin is offline
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Join Date: Dec 2014
Location: Wisconsin
Posts: 66
8 yr Member
maygin maygin is offline
Junior Member
 
Join Date: Dec 2014
Location: Wisconsin
Posts: 66
8 yr Member
Frown CRPS Spread to Full Body

Starting in January, just over 5 months after the CRPS started in my right foot, it spread up the leg, into the hip and sacrum, then into the left leg and hip, then into my hands and arms, and finally every where else - face, scalp, abdomen, back, etc. The spread into my left leg and then the rest of my body took less then a month. The doctor has canceled my lumbar sympathetic block and the only option I've been given is naloxone and/ or ketamine. One doctor wants me to switch from gabapentin to lyrica, but another thinks it's unnecessary. Until I can see my orthopedist next week and my pain management doctor the following week, they've increased the nortriptyline (I'm already maxed out on gabapentin at 900 mg 3 times a day). Ketamine won't be an option for quite some time as the wait list to get it is very long. I am at a loss for what to do. Everything I do hurts. I feel so alone, exhausted, angry, sad, and terrified. I worry that this isn't the worst it will get. I guess I don't really have a question, but I wanted to put this out there in a community that can understand what this feels like. It's been challenging to talk about this with friends, family, and coworkers. Thank you for listening.
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"Thanks for this!" says:
Enna70 (04-28-2015)
 


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