Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-22-2015, 09:42 PM #11
happygirlpa happygirlpa is offline
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happygirlpa happygirlpa is offline
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Join Date: Oct 2014
Location: poconos, pa
Posts: 58
10 yr Member
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Quote:
Originally Posted by krmitdfrog View Post
Omg!! That sounds exactly like me to the T. I honestly believe mine started in 2009 or 2010 when I tore the ligament in my ankle for the 2nd time and sprained my lower back both while playing basketball. It just got real bad from hitting my foot on vacation last year.

Did the Dr let u know it was spreading internally or just u know it did? For me I know it is. Everybody think I'm a hypochondriac but I know I'm not. Also, did u get written paper stating u had CRPS?
I went thru years of thinking i had independent health problems that all started after spine surgery. When i saw the rheumatologist she assessed my constellation of health issues and with the results of the ncs/emg test of my legs she diagnosed me with crps type 2. Of course i immediately looked on the internet and found my symptoms lining up with her diagnosis. It all made sense. This thing has gone internal. Thats where the dizziness, digestive, thyroid, anxiety problems, vision problems came from. Glad to know. Eases the mind, really. My spine orthopedic may have thought i was crazy, the neurologist said i was still recovering from spine fusion surgery, another neuro surgeon suggested MS. I was like a ball in an arcade game getting bounce from dr to dr. I knew there was something wrong but none of them could see beyond their own specialty. My primary care dr sent me to the rheum who finally figured out the mystery. So yes its on paper now. I just need to find the right 'team' to fix me up. I,m glad im not crazy and dont have ms.
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