Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 10-15-2015, 06:47 PM #11
sandalwoodsprings sandalwoodsprings is offline
New Member
 
Join Date: Oct 2015
Posts: 2
8 yr Member
sandalwoodsprings sandalwoodsprings is offline
New Member
 
Join Date: Oct 2015
Posts: 2
8 yr Member
Default

Thank you so much everyone.

It took me a minute to get back online due to the pain. I have a lot of pain with sound, touch, lights, it all hurts a lot of burning on the lower half of my body.

I don't know if that means i have full body or its only in the lower half of my body? I have a Doctor now who i hope will shed light on this disorder.

I will look up LDN however I don't know what that is. I've done a wee bit of research on Ketamine infusions, but i still need more information to understand what it is, how it works, and the process. I will also view that video if its still on Ytube.

I'm still trying to process what RSD is... More the why than anything else. I would really love to gain more control over my daily functions.

I'm very thankful for all the information everyone. gentle .

Please Please forgive me if i sound down in the dumps because thats not who i am I still have a lot hope just going through a lot.
sandalwoodsprings is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (10-16-2015), PurpleFoot721 (10-16-2015), stillsmiling (10-16-2015)

advertisement
Old 10-15-2015, 10:25 PM #12
Littlepaw's Avatar
Littlepaw Littlepaw is offline
Senior Member
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Littlepaw Littlepaw is offline
Senior Member
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Default

Oh if only I knew why! That is just a hard one. Don't worry about sounding down. We all do sometimes.

LDN is low dose naltrexone. Dr Chopra discusses it in the video. There are a lot of studies on ketamine Pubmed.

I have a thread called "Getting ketamine infusion" where I have been documenting my infusions if you are interested in reading a "single case study" with a slant on patient experience.

I am glad you found a doctor!

__________________
Littlepaw

Shine Your Bright Light
Littlepaw is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PurpleFoot721 (10-16-2015), stillsmiling (10-16-2015)
Old 10-15-2015, 11:24 PM #13
Blazed-kitty's Avatar
Blazed-kitty Blazed-kitty is offline
Junior Member
 
Join Date: Sep 2015
Posts: 52
8 yr Member
Blazed-kitty Blazed-kitty is offline
Junior Member
Blazed-kitty's Avatar
 
Join Date: Sep 2015
Posts: 52
8 yr Member
Default

My CRPS/RSD has recently spread to my entire body and if you ever want to talk I'm here
Blazed-kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Enna70 (10-16-2015), PurpleFoot721 (10-16-2015), stillsmiling (10-16-2015)
Old 10-16-2015, 09:58 AM #14
mama mac mama mac is offline
Member
 
Join Date: Aug 2015
Location: Small Town East Texas
Posts: 159
8 yr Member
mama mac mama mac is offline
Member
 
Join Date: Aug 2015
Location: Small Town East Texas
Posts: 159
8 yr Member
Default

SWS,
Wishing you a late welcome. I was not on the forum much when you came on. Please don't apologize for your mood. We get it! There is no way that I have found to have this illness and not be down, depressed, confused, scared, etc. Luckily there are room for other emotions too, but probably not when you are suffering as much as you are. If you haven't read the sticky threads on lifesavers and success stories I strongly recommend them. They offered me many great suggestions and inspiration when I first joined. Again welcome, mac

Last edited by mama mac; 10-16-2015 at 10:00 AM. Reason: add thread title
mama mac is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PurpleFoot721 (10-16-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Help needed cybersunday Traumatic Brain Injury and Post Concussion Syndrome 4 03-16-2012 11:58 AM
Had a much needed ME day! karousel The Stumble Inn 18 02-18-2009 03:50 PM
Help needed Kimmergrand Neuromuscular 0 10-30-2008 08:15 AM
help needed JustWeave Sanctuary for Spiritual Support 62 10-15-2008 07:06 AM
Once Again Help Needed Rachael Thoracic Outlet Syndrome 11 07-23-2007 07:12 PM


All times are GMT -5. The time now is 03:41 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.