Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-08-2016, 09:11 PM #5
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Blazed-kitty Blazed-kitty is offline
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Quote:
Originally Posted by Littlepaw View Post
Hey there,

Has all this happened since your appendectomy a while back? Ugh, of all the rotten things... I am sorry to see you going through so much. PICC lines and feeding tubes do not belong on a young body.

I don't remember if I put this up for you or maybe you have seen it already. It is an article by Dr. Schwartzman on the "Systemic Complications of CRPS". It is I hope a worst case scenario kind of thing and not everyone will get these complications but it is useful information. You are right there isn't much out there about internal spread and treatment.

Did you ever get ketamine?

Sending hugs and healing love for what they are worth,
A LOT has gone on since then, I had litterly got put into a coma to try to "restart" my brain to help my pain, but still nothing. I'll have to go look at that though. They started ketamine infusions last month, nothing has changed yet though. Doctors have basically given up on me, saying that this is my life for now on. But i really don't want to accept that, for obvious reasons. Im in a wheelchair and have a feeding tube, like I'm 18, why would I even think about accepting that as my life for now on. I am losing hope though sadly..
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