Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-09-2016, 03:04 AM #10
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catra121 catra121 is offline
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
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Hugs. I'm so sorry for all that you have gone through...to have had this monster for so long already at such a young age is really terrible. I know you probably have people ask these things all the time...but have you looked into tDCS treatments or the new Quell device. I did tDCS treatments and while it didn't directly help lower the day to day pain it did reduce the number of flare ups and reduced recovery time from flare ups. Also helped me get more sleep on a regular basis without needing meds...which makes it a ton easier to cope with and manage the pain when you can get a solid 6-8 hours of sleep a night instead of 3 non consecutive hours a night like I was getting before. The Quell device is pretty new...I just started using it back in December and it is helping with the pain all over. It's wearable and lightweight...I have it on several hours a day. If I skip a couple of days my pain levels are noticeably higher and since I've been dealing with some issues after falling off a ladder in October it is noticeable that this device is actually helping. I responded well to TENS unit treatment and stim...but the downside to those is they don't help much with more generalized RSD pain once my RSD spread. The Quell unit seems to be very similar to TENS or stim but works all over without needing to move the device. Plus...no wires. Sorry to go on if this is stuff you have already looked into but they are not necessarily common go to treatments so figured worth mentioning if you have tried pretty much everything else.
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