i will be blunt i'm afraid.
i think your husband is being selfish and it sounds as if he MAY not be around forever. i think you would be very wise to put almost all of the money away, in your name, for your care, as you need it. this is not a disease where you get better, and you may, in the future, have needs you have not even imagined, and you may need things to take care of yourself and your daughter in the future. you may or may not get through school, it depends on if your rsd behaves.
if you had a lawyer for this case please seek his advise quickly.
all may turn out well with the relationship you are in, but if not, he will move on and work and live his life, and you may not have anything left and may live in poverty as so many people with chronic conditions do.
please please take care of you. joan