Hi and welcome,
I have been through the drug comments and they seem to hurt the most. My daughters always say that i am a drug addict. One of them works at a methadone clinic and thinks i should go there. They always call me a "pill popper". The worst one is "Why can't you just put up with the pain". Well you have come to the right place. We all understand. Since coming here, I have gotten stronger. These comments don't bother me as much anymore. Everyone here knows what your going through and are here for you. Take care.
Sue K.

thanks I do not think I will try to show these places with her. I have tried with RSD org. she said it looked fake and that people just make up things on line.
I am just a fly on the wall as of late my kids see me and they wonder if mom is right I know it, she wont even try to keep it from the kids she just says what on her mind. I married her because she was so blunt and strong but now when I need her she just rips into me, I know my pay that I brought in is not what it used to be and shee hates it I know since we have got to cut back on everything, we all became spoiled by money.
I hope she is just going threw a phase and soon she will be back. I do thank you all for what you have told me, I will come to this place and talk to you for help since you are going threw this also.
I know i dont use drugs for the sake of it I need them to function in life the sun will come out soon and my life will be back.

I just give UP with all this who cares if we have this! no one does except us, it is a RARE diorder so they do not research it, so we just have to live in pain and just live in hell I live in hell and soon I will be in heaven no I will not kill myself but this will do for me, this evil RSD will destroy my body I know 1 piece at a time till my heart gives out and the fight will be over. I pray someone will find a cure, it probably is in a plant in South America that will be burnt or chopped down and no one will find it. Hey stem cell may be the answer I dont know, I do know no money no funding, not alot of people have it it is rare so doctors dont care and we all suffer to feel the burn and live in hell,being tortured and picked to have this awful pain, A thought Jesus picked us to live in pain we shall suffer like him and he will heal us when the time is right! or is it that we did wrong and are picked to live in hell on earth either way I still pray.

I can see that you are having a very hard time with this. In the beginning for any of us it seems that we all do.

I have always asked why God picked me to go through what I have. Everyone has said God has a plan for me. I always say, I wish he'd let me in on it. LOL

I have had RSD since around 2000 but have been sick since around 87.

It will get better. You didn't say what meds you are on. I was wondering if you are getting adaquate medical care. A lot on here seem to run into that issue where the Dr. won't give them good pain meds or the right treatments.

There is a lot to learn and I am glad you found us here. Feel free to vent all you want. I do know a lot of what you are going thru except dealing with the mate issue.

I hope you start seeing some better days really soon. Don't give up.

Ada

I have enough pain meds a how list of them narcs that are supposed to last 8-12 hours and breakthoughs and nerve pills muscle relaxers pills to help do #2 sleep pills, depression pill,and stuff to thin my blood so I do not swell so much. I see a a shrink, and a PMD life is good all good hey hey, Tommy can you hear me, sorry I will go away you dont need me a down in the dumps person I just wish totalk but I do not think any sunlight will touch my heart again so I will go back to my shadow bx and just watch in the dark and never reach out again. I will fade awy like these post just go awy in time sure you can go back in time and read them but why, live for the now right cosume it all forget the past! throw it all away if you dont fit in just toss him away I understand good luck I care for you all!I will just burn away anyay.

you need to stay with us. We all know what you are going through. We have all seen such hard times on here so we can totally relate with you.

I am so glad you have the meds you need to help some. Did you have any blocks? Those helped me a LOT.

We would love for you to stay with us. I honestly know how you feel that you want to fade away. I have an implant in me for depression so you know mine is bad enough that I fit right in there with you. It isn't helping a lot so my days have been rough also.

Stay with us and read and others will post to you. You are not alone in this.

Ada

Hugs, we want you to stay. The more people that get properly diagnosed and are there to say "hey, I have this disorder" the quicker it will become more widely known. For everyone of us who support each other on here, there are many more out in the world who don't have anyone. Please stick around. We need each other.

Hugs.

1totalk,

Please keep talking with us. Talk every day all day if you need to.

Try this: Close your eyes. Take deep breaths and forget all the pain. Relax your muscles, relax your jaw, relax your hands and feet. Deep breath and relax your shoulders. Keep doing this for as long as you can. Close your eyes and clear your mind. Take a deep breath and exhale while dropping your head to the left. Take a deep breath and exhale while dropping your head to the right. Relax your shoulders. Take a few deep breaths.

Do this 2-3 times a day - when your nerves are flaring. After you've listened to negative comments and hurtful things do this to calm your body and clear your mind.

Please know that the pain isn't in your head. There isn't anything wrong with how your feeling. It's just that many can't understand how much it hurts unless they also have RSD.

Take deep breaths...

Most of the antidepressents cause problems for men sexually. Talk to the doc about getting on one that isn't a seritonin reuptake inhibitor.

It's a good idea to keep a drug log because most people wind up on a lot of drugs with this condition. It's important to remember which you've tried and to be able to identify the side effects. If a drug isn't helping talk to the doc about getting off of it right away.

Most long term sufferers have to find a combination of drugs that works for them. After nine years, I'm still not quite there yet. The condition has gotten steadily worse I think but my ability to deal with it and to find the right drugs has improved.