[daniella]

This is not so much about physical but more the mental side of this condition. I know for many here you are married with kids but for me I am single and live alone. My mom is my biggest support and I love being around her and she lifts my spirits. I am 30 and have very few friends and the ones I do have moved or as many know are not so supportive. I am very limited in my ability though am able to do more and hope to volunteer oneday but it is hard to commit to a day now since my pain level can be so bad at times. I have goals oneday to join a group more and hopefully one day work. I wonder how others who either live alone or have limited people in there life feel less lonely. I try to keep myself as occupied as I can but still hard. I am weird though I don't want a roomate cause I need privacy when I feel so bad. I wish I could meet a guy but can't even imagine bringing someone into this or being able to be social. Even one good friend would be nice. So just wanted to see what others do and feel. I am often so mixed at times the pain makes me not care and then at better times I crave a sense of normal. I am thankful for all the firends here and phone friends as well but real time like even a coffee buddy would be nice.Well thanks.

[AintSoBad]

Daniella /
Gina,
How did I know that?

You seem to be a mirrror although younger image of myself.
I do have two children, who ignore me, to get on with their lives..
When I was "under control" I was their supreme teacher. Then a TBI struck.
They got to that "age" where they wanted their special "others"... boy and girl friends.

I could write a short story about that, but, leave it at, life goes on...

I'm now 53 (on Monday), and, don't expect to hear from anyone except my step mom, whom has the SAME BIRTHDAY AS ME! Ain't that cool!!???
I think so!
I love her, lots! I hope to have her for another year!

But,
Daniella, don't worry.
Someone, first a friend probably, will find you, and bring you "out of the oyster shell".....
Then,
you'll be introduced as a "pearl", that you are!
And, some idiots won't recognize that.
Let them fly away, like the "dust they are"!

Finally, and in God's good time,
without you looking, or searching,

someone will find you, and you will be "Perfect"!
As you are Perfect now!~

Yes, You are!

Don't ever doubt that!!
NEVER!

Someone, will come along, accepting of your ill's and you may need to accept theirs.
Isn't Give n' Take what Nature is about?


Daniella,
Trust me,
You have so much to offer, you are so kind,
and have such a big heart!

There are so many, who are looking for someone, just like you!
Just ready to scoop you up!

Remember, YOU are a Star!
WE All ARE, a bit depressed,
But,
We're
Depressed
STARS!!

Don't EVER

FORGET THAT!!!!!

My love is with you!
And, so too, is so many of us other's!!!!!

Up and Up you Go!!


Fly High Girl!





pete
Asb

[ali12]

I too can relate to what you are going through unfortunately, Daniella and i'm sure most other RSD'ers can also!

I have been pretty down lately. Not sure why but I have been in a pain flare so I think that is something to do with it. I haven't been out of the house for over than a week other than to go to a concert on Wednesday and even that took a lot out of me and i'm still feeling the effects from it now. It was fun though so it was kinda worth it!

It really frustrates me sometimes when I see some of the kids from my School doing something fun and I am just sat in the house due to pain. I guess I get a little jealous sometimes that I can't join in and that makes me feel really lonely. I have my mum thankfully and don't know what I would do without her but it isn't the same as having someone my own age to talk to, as i'm sure you know also.

I have a few good friends from the school centre that I go to and they are really caring. They are always getting in touch with me to see how I am doing but most of them live at least 5 miles away so it's hard to see them often other than at school. We do arrange to go out sometimes but it always depends on how I am feeling and i'm always having to miss things due to not feeling good.

Most of my other 'friends' left me when I got RSD and that was really frustrating. It was sort of like they couldn't cope with my illness therefore just left. They are always passing by our house but never think to call and see how I am doing but yet the teachers at school wanted me to try and get in touch with them and force a friendship despite telling them that they obviously weren't interested!!

I'm thankful for the friends I have on here. It's not the same as having someone in person to talk to but it makes a difference knowing I can come on here and someone will understand what I am dealing with.

I think the idea of volunteering sounds good for you to try and get out a little more but I understand what you mean about not knowing whether you would be able to cope with a set routine. I really wanted to get a Saturday job at the local animal centre near us but know a lot of the time I don't feel well so might not be able to go. If you feel that you would be able to cope with it though, I would definitialey give it a shot and see how it goes. Just do something light that you would be able to cope with and don't overdo it too much.

I really wish I had some answers to help you feel less lonely but it seems like i'm in the same situation as you unfortunately. I try and go out the best I can but sometimes, even just getting ready and showered is too much. I was going to go and visit my great grandma today but when I got out of the shower, I was in tons of pain and nearly fainted so had to go and sit down. I hate that RSD seems to want to dictate our lives for us!!!

I hope you find something to help you soon and I will keep you in my thoughts! If you ever need / want to talk to someone who understands, you know where I am!!

Take care,
Alison.

[SandyRI]

Daniella,

I wish you lived near me, I could SO use a coffee buddy just like you. My pain levels have increased quite a bit lately, RSD really sucks and I am as miserable as can be....I've finally decided to take a leave of absence from work because I just can't deal with it anymore. My head really hurts all the time.

I am so sorry about the lonely part. I think its very hard for most other people to understand what we are going through. One of my closest friends is a nurse practioner, who is an incredibly smart women and who is also very compassionate. We walk our dogs together every morning, and she will give me advice if she notices that I don't look well or if I ask her questions about meds or doctors or any of that stuff. There is a certain comfort level in our friendship because she understands what I am going through.

I have gone through bouts of profound loneliness at different times in my life. I moved a couple hundred miles away from family to get married after college. My husband and I have both always worked many hours at our jobs. Its really tough when you don't have many people nearby that you consider close friends. I'm pretty sure I understand where you are coming from, and I'm really sorry for what you are feeling.

You might consider getting a dog. It's really awesome therapy.

Let me know if you would like to call me. I'll figure a way to get you my number, and I'll make a myself some coffee, and we can chat....You have a friend in me, girl. And even if we can't meet in person, we can still talk.

XOXOX Sandy

[debbiehub]

You dont say where you live- there could be a support group in your area? Have you checked the RSDSA site-they list the support groups

I am lucky to have people who support me but I am still very lonely at times because they really don't understand the severity of this disease and I sometimes just need to talk to other RSDers who get it!

You can always come here to vent- we use to try a live chat but couldnt get it together...Maybe we could try again?

Debbie

[RSD64]

Daniella,
Even though I'm married with 5 kids, 2 dogs, a cat & friends a work, there's always that 'lonely' feeling thanks to the wonderful world of RSD...
Rich.

[daniella]

Hi all and thanks. I am going to try to push myself to sign up for something. I made a call to a volunteer thing that is for an hour and half 2 times a week so I am going to see if I can commit. If I can't at least I tried. I am able to do so much more but still to make a firm plan is hard. I know of a few rsd support groups and I may try one but really I want to try to involve myself in "normal" things if that makes sense. Having support and I would love support from people who understand is so amazing but at the same time I want a life outside of rsd. I think for many an animal is very nice but for me it is a no. I love other peoples animals but for myself it does not work aka why my dog lives with my mom. I tried that years ago.
On a side note I know even before my health problems there was a sense of lonely with in even around people. So I am trying to work on the reasons behind this and find a peace within. Sending many warm thoughts and thank you

[Dew58]

You are Loved...and UNDERSTOOD,completely

[daniella]

I just have to thank everyone here for their PM and thoughts always. You are such a wonderful group of people and I appreciate it so. I am here for anyone too. You can contact me anytime. Sending thoughts for a good start to the week for all. Thanks again!