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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-26-2008, 06:11 PM | #1 | |||
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Magnate
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I have been thinking about this since all of this thing with Vicc.
Vicc has been with the group since we all came from BT over to NT. Very few of the oldies are left due to the things that seem to keep going on here. I see a constant of fighting and arguing here. My question is, do the meds give people a false sense of security to the point that they say what they want and feel like they can take on the world. Do they make a person feel like they don't care what they say? Do they make people speak their minds whether they are right or wrong? I am not much for meds and neither is my Dr. He works his *** off on keeping me walking and getting around without me carrying a list of meds a mile long for when I see the next Dr. or end up in the hospital for something. Again, I just felt like this was a question that people need to think about and I'd like peoples thoughts on it. This is not to start an argument, I am just wondering if this might be the case in most instances. I do know that when we take our meds we are in less pain so we think we can do things we couldn't do before such as run a marathon, walk a mile, climb a hundred stairs, then when they wear off we think why did we think we could do that. Again is this the case with talking too? Ada |
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02-26-2008, 06:32 PM | #2 | |||
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I am not sure that I am following what you are trying to ask. I know what you mean about the discussions turning into out & out arguements.
But who is it you are referring to as having this false sense of security? Vicc or others? As I see it happening....someone may ask a question. One (A) answers it as to how they see things, someone else (B) doesn't like the other ones (A) answer & starts throwing crap out there & WHAM BAM an all out FIGHT is on with written words. One (A) has their back up research & the other(B) has nothing, but inciting words & that is all it takes. So which one has the false sense of security & what exactly do you mean by that phrase? Did I make any sense?? DebbyV |
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02-26-2008, 06:41 PM | #3 | ||
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Yappiest Elder Member
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side effects of meds?
like the ones that were for parkinson's and now rsl? i'll check my spelling..but mirepex and requip. they have side effects that control impulses. like gambling and over spending. many of the pd members have posted about that. depends on the meds you are talking about ada. or the dosages. it is a good question. does taking high amounts of pain meds effect you emotionally? effect your actions? that would probably be best answered person. i don't take rx pain meds. (no insrance and i don't tolerate them well any way ) i'm not sure what all the side efects are. i'd have to look them up. i am a chronic pain sufferer. since the an accident at age 12. does pain effect my mood. darn tootin' it does. i can handle very high pain. but when it goes on and on for weeks or months with no break...yes..it effects me. i'm normally a very postitive upbeat person. at those times. no.
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02-26-2008, 07:03 PM | #4 | |||
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Magnate
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Sorry I didn't explain it better. No I didn't mean to lean this toward Vicc at all.
I know what he takes. He's not on that much in my book. I am thinking anyone. I know I was on one years ago that use to make me feel like I could take on anybody. I remember even taking it before I went to see my Dr. thinking it made me able to say what I thought better. It finally struck me that I didn't need it to talk to him the way I wanted to. He also taught me how to talk to other Drs. so that helped. I guess I mean in general. Sorry Debby if I said it wrong. Ada |
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02-26-2008, 07:10 PM | #5 | |||
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Magnate
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Thanks for the help on that.
You know, as I told Debby, I remember one that I took that made me feel like I could take on anyone. I can't remember it for the life of me which one. You said it better then me. This just really interested me though. I have thought about this for sometime. It could be that it's just the personality of a person but I was wondering if this was an added plus to some that aren't as strong about what they want to say or maybe it just adds on to the pot. Thanks again, Ada |
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02-26-2008, 07:38 PM | #6 | |||
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Community Support Team
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Hi Ada
I have just been through a truly horrible time where a med was making my husband psychotic. Within a day of that med being withdrawn the psychosis stopped, although he is still not fully back to himself.He is suffering intense pain from a serious spinal/hip injury and I know that also adds to this. He was imagining all kinds of things, was very angry and aggressively belligerent, reckless, intense moodswings, and a "persecution complex" etc etc and my hubby is actually a very gentle and rational person so yes, having recently experienced this personally in our family, I do feel some meds, as well as pain, can really negatively alter a person's psyche Cheri
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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02-26-2008, 07:36 PM | #7 | |||
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For me personally, when I feel better, regardless of whether it's from breakthrough pain meds, or my spinal cord stim hitting exactly the right spot, or a wonderful meditation session, I'm happier and when I am happier I am more confident. But I don't think that my meds have anything to do with that really. In fact, when I'm on more meds I feel less confident because I know that my brain's a little fuzzy.
I think that these things are due to the relative anonymity that people have here. People say things that they wouldn't necessarily say to someone's face. Also with the Vicc thing, I would just like to say that regardless of how long someone has been here, they still need to be kind and respectful of everyone here- newbie or not. I have a degree in neuroscience, and I have tried to share research and theories with Vicc. At first he was interested in me because of my scientific field, but the minute that he decided that I differed in opinion from him, he became very rude and hostile to me.This may be blunt, but some of the things that he was promoting were wrong, according to the knowledge that I have gained over 4 years of intensive study. I don't think that it does anyone a favor to disemminate information that is outdated and potentially dangerous. Vicc kept advocating the topical use of DMSO- DMSO is a very dangerous and caustic chemical. It's a known mutagen- it causes mutations in DNA. It is an industrial solvent that is used to strip paint. By all means, if you think that anti-oxidants will help your pain, take anti oxidants! But to advocate potentially dangerous substances is not a good thing. To also shoot down dissenting opinions and imply that people's research is not valid because those researchers are "making things up" is not respectful at all. We're all in pain here, and we all have cranky days. But it was really off putting that Vicc seemed to think that he could say whatever he wanted to because HE wasn't feeling well and he was in pain. He said as much to me. We're all in pain, and if that were an excuse for lashing out this would be a really unpleasant place. I stopped commenting on anything because I was afraid of incurring the wrath of Vicc. No matter what I said, be it about the weather or how I was feeling, he had a way of belittling it because I don't think that his theories are correct. It made me sad, and I was turning to this forum for support, not to be attacked or called crazy. That's just what I was feeling about this. I want to be an equal here with everyone, and not attacked for being new and "not knowing things". I hope that people can turn to me and that I can share my knowledge with others. Knowledge from personal experience and from academic experience. I just wanted to get that out because I know that I wasn't the only one that was on the receiving end of this kind of treatment. Linnie Quote:
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"Thanks for this!" says: | Goodn'Plenty (02-27-2008), tayla4me (03-01-2008) |
03-01-2008, 02:20 PM | #8 | |||
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If I had meds (now) that worked maybe I could fall into that category. I think when people have meds that work (and when they're feeling good), they do feel a certain power and they feel in control of there life and pain. They might be a little cocky. This isn't in regards to anybody here since i've only been on here a couple times now. When the internet first started there were pain forums everywhere and when I would give a little advise they would get very upset and yell at me ... People just need to be sensitive to other people's issues. There is no reason to argue.
Heather Quote:
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03-04-2008, 01:19 AM | #9 | ||
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Junior Member
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Hi folks,
I would not question anything said before my post in this thread. I have had really Dr Jekyll & Mr Hyde reponses from Gabapentin & what I call son of Gabapentin - Lyrica. Fortunately my wife was quick to point this out to me & we discontinued immediately with a great deal of trepidation when heading to Lyrica - but that's just me. I kept this at home for my poor dear wife to bear but she supported in the right way & no-one else wore it. It was a very humbling experience. As each person reacts differently to each medication this is entirely unpredicable - sorry I state the obvious. Generally I don't react to meds.....it was quite shocking. So......to the point of my post......placebo effects can be an almighty confidence builder & even if the drug is working the nasty side can far outweigh the benefits. They should be continued only if they are positive changes. I agree that meds can be a life & tremendously persona changing event and the person can become so closed minded they become impossible to reason with. As has been said - we are all VERY SICK or supporting someone who is so & don't need to argue. I came here for what I initially thought was a clean and constructive environment. I needed that & despite the fantastic efforts of the moderators I have felt very reluctant to post. I, too, have been abused here & I am very aware of how technical I can be in some of my statements on this site given my science background. I am thus reluctant to post because I have been so attacked. I do hope you don't mind this - I think it follows the theme of the thread so you are all right with what you say here but I would question that time of membership counts for nothing if that member is abusive and incapable of accepting alternate discussions / ideas. I would most categorically state that should these changes become evident - dose will probably not matter - a different family of drug might be the best action - another time. As an additional thought, in some, pain can make people tentative & insecure & VERY susceptible to hostility. Cheers to All Auberon |
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03-04-2008, 09:50 AM | #10 | |||
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Magnate
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I am really sorry to hear what you have been through here and I do know you haven't been alone with those problems.
I am so glad that you saw what those meds did to you. As I had said before Bill was on Noravasc for high blood pressure and it really did a job on him. He just turned into Dr. Jekyll until I got him off of it. My family Dr. would get him off of that one and when he went back to the cardiologist they would put him right back on it. It never phased his blood pressure it stayed the same if not went up because of the hostility he had. I had never in my life seen him act like he did when he took that Norvasc. It took me quite awhile to figure it out but when I did, I'd get him to go to our Dr. and he'd switch and the Heart Drs. would put him right back on it. I honestly believe they were getting some big ***** kickback from that med. They knew what it did to him. They gave it to him a week before he died. He had a cebreal hemorage in the back of his head. They couldn't stop the bleeding due to the cumiden he was on. If he had not been on Cumiden they could have. His face would turn red, he would be so angry that he couldn't calm down after he took the Noravasc. When he went off of it, he was fine. I do think too that the med gives a person a sense of power and then when they have had an education in certain fields they come on here and tend to want to practice them here on the people here. That makes them feel even more powerful. I am not a college educated person. I do have common sense and at times I think it is more important then a college education due to the fact you can figure out what is right and wrong in the things you do and how you treat the world. I am glad you found the forum and hopefully you will start seeing better days here and in your health. Ada |
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"Thanks for this!" says: | gigglebabe (03-04-2008) |
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