RSD and Menstral Cycle

gigglebabe · 02-28-2008, 12:42 PM

Hey Kate,

It's great to see you. Having it go that many days certainly is a pain. We sure don't need anything else to keep things flared up. That's for sure. How's Hannah doing? It's hard to believe she is almost 2 yrs old! Wow, seems like she was just born yesterday!

Hugs
Debbie

Quote:

Originally Posted by Cake

Hi Gigglebabe

I've always had a problem with this too, so much so that I was totally out of action for that week, so I started taking the pill without taking the sugar tablets- just skipping them so I didn't get a period. Perfect!

But now after having Hannah almost two years ago (who can believe she's almost two!?

) I've been having 14-27 day periods, with only a few days break before they start again. It's been driving me nuts! I tried going back on the pill but now it doesn't make any difference.

I've also had the hysteroscopy, d&c and biopsy with no great findings. If my rsd didn't get worse when I'm like this I could probably put up with it more, but I just can't keep going like this all the time, its exhausting and so disabling.

Anyway, I hope they can find some way to help you. We don't need more flareup triggers, hey?!

x Kate

gigglebabe · 02-28-2008, 12:44 PM

Hi Karen

Thanks for writing. I'm glad your hubby was paying close attention. I've had heavy periods for a few yrs now, but nothing like it has been in the past 6 mons or so. It's just unreal. And seems to really cause a lot more pain when it's going on. I hate it. Hopefully my ins. will make up their mind soon, in my favor.

Hugs to you

Debbie

Quote:

Originally Posted by GalenaFaolan

I too have increased pain at that time of the month. It really sucks! I didn't notice it much in that first year, mostly because I had no pain relief so an "increase" in pain because of my period didn't register. I began seeing my pain doc in dec 05 and getting pain relief. It took awhile for anything to register with regard to my period and increased pain. The funny part being I wasn't even the one who made the connection! It was my hubby who began noticing the pattern and so one month asked me, when's your period due? I told him and then when it was over and the pain went down he mentioned it to me again. Every month after for about 3 months or so he kept an eye on when I was due and sure enough, there's that increase in pain! Glad hubby pays attention to things. LOL

Hugs,

Karen

gigglebabe · 02-28-2008, 12:49 PM

I wish I could agree with you. But no, he plainly stated to me, that once they burnt the uterus, it would be basically burnt together, more or less melting it inside, and they would not be able to see inside again. And that I am not for. Not with having history of cancer there in my family. I would much rather do the freezing. Basically because of the family history. I went into great detail with him about what would happen, would he be able to go back into the uterus after this burning, and he made sure I knew he wouldn't be able to. That was why I chose to write the ins. company to see if they would change their minds. I'm hoping they will.

Thanks
Debbie

Quote:

Originally Posted by tayla4me

Hi Debbie,

I am a bit confused about what you said. Uterine Ablation should not prevent further follow up investigation of your uterus. Only if you have a full hysterectomy with removal of your cervix will there be a hinderance to vaginal hysteroscope.
They should still also be able to laparoscope you abdominally.
It is important for you as you said, because your history demands you have regular investigations.
Perhaps your doctor has not explained himself very well to you

Wishing you well and an answer to this problem.
Cheers Tayla

GalenaFaolan · 02-28-2008, 03:41 PM

Debbie, I hope they make up their minds soon too! I wish you much luck that it'll go your way.

My periods were always on time and heavy the first couple of days. I started perimenopause at 31 and ever since, it's not heavy the first day and it's done in 3,4 days max. I feel for anyone who has to deal with a lot of pain with their period. I can't imagine. I just want to get to menopause already and be done with the whole thing! LOL

Hugs,

Karen

gigglebabe · 02-28-2008, 05:23 PM

Quote:

Originally Posted by GalenaFaolan

Debbie, I hope they make up their minds soon too! I wish you much luck that it'll go your way.

My periods were always on time and heavy the first couple of days. I started perimenopause at 31 and ever since, it's not heavy the first day and it's done in 3,4 days max. I feel for anyone who has to deal with a lot of pain with their period. I can't imagine. I just want to get to menopause already and be done with the whole thing! LOL

Hugs,

Karen

Laffs Karen,

I agree with you. I just want it all over to. In fact I asked him, why can't you just take it all out now! And be done with it....he said the ins. would not allow him to any longer. That I must do all these other procedures first, then if those don't work, He can remove the uterus...I'd much rather just take it all out now and be done with it. Heavy bleeding for this many days is just no fun at all. It's just unreal. you'd think they would let him just take it out and be done with it, since I'd rather do that. Would save them money in the long run, cause then if there were other problems, they'd just have to pay out again anyway...stupid ins. companies...

Hugs
Debbie

GalenaFaolan · 02-29-2008, 11:00 PM

Unreal....it would save money to just take it all now instead of later for sure!! Sheesh! No one ever said they were smart! LOL None of the other procedures are cheap either. Sending good energy your way.

Hugs,

Karen

gigglebabe · 03-01-2008, 12:33 AM

Thank you Karen. You'd think they would just save the money n take it out, since that's what I'd rather they do....but they insist on doing things their way. Ins. companies / doctors ...are way to controlling. They think they know best.

The freezing is around 5k and is done in the office, and I'm sure the burning ranks right up there, considering that one, you have to be in the hospital to have done, which means, paying the doc, paying the hospital, payin the man who puts ya under, the drugs...the room....

Makes no sense why they won't give you the choice when the price is basically the same.

Thanks Karen

Hugs
Debbie

Quote:

Originally Posted by GalenaFaolan

Unreal....it would save money to just take it all now instead of later for sure!! Sheesh! No one ever said they were smart! LOL None of the other procedures are cheap either. Sending good energy your way.

Hugs,

Karen

GalenaFaolan · 03-01-2008, 10:34 PM

*Hugs* I agree about the controlling part! Good grief too many of those docs out there think they know everything there is to know. Doesn't matter what you deal with either, RSD, gyno, even a regular doc. I like hearing about the ones who at least listen and are willing to learn.

Insurance companies though frustrate a lot of docs as well because, like in your case, they either won't approve something or spend a load of wasted money on everything in the world but the one thing you really need to have done.

I fear that one day I might need treatment for a female problem. I don't have any insurance and it gives me the willies how I'd pay to have anything done.

Hugs,

Karen

tayla4me · 03-01-2008, 11:38 PM

Hi, I hope you don't mind me using your thread to ask a question

Can you only have surgery there if you have Private Insurance or you pay for it yourself

This sounds like a really crummy thing to have to endure problems like this because of finances.

We have a medicare here that is compulsory, it is paid in our taxes according to income which covers all surgery. You don't have that??
Thanks
Tayla

Abbie · 03-01-2008, 11:51 PM

Tayla.

We have a Medicare system... but.... it is only for those who are retired 65 and over (I believe that's still the age... it changes from time to time)

OR

those who have an "acceptable" disability. (which is hard to get---many people wait YEARS to get approved for Social Security Disablilty and Medicare)

We also have State programs...Medicaid, MediCal--California....not sure what all states call their programs but it can be as hard to get as Medicare.

Other than that it's either private insurance or cash out of pocket.

Yes, the HEALTHCARE system in the U.S. just plain SUCKS!!!

Abbie

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