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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Junior Member
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Question for everyone. My bed is 11 years old, and it is definatley time for a new one. With my boyfriends RSD, is there a type of bed that will make him more comfortable? Sleep number bed, pillow top, any certain kind that will allow him to sleep at least a little better?
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#2 | |||
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Magnate
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This question will interest me. I have been sleeping on my boys bed when they aren't here. I cannot get comfortable at all on mine. The kids bought me a very nice thick mattress pad for Christmas and it still didn't help. I am ready for a new mattress. Ada |
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#3 | |||
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I am also interested in the answer to this question. I barely get 3-4 hrs. sleep,and not always during the same time..so, I get up..never feeling rested. I hope someone has the answer
![]() GREAT QUESTION ![]() Dew
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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#4 | |||
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Member
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I hear a lot of talk about mattresses by Tempur.
I have been sleeping in a hospital bed for years (regular latex mattress). All other beds are far too low for me to get into or out of; this one can be set to a greater height. It's set at the height between a normal seat and a barstool. It's still difficult to get in and out of bed, but at least this bed helps a bit. I can automatically adjust the front and back of the bed (very nice when feet are swollen). I too barely sleep. I wake up every three hours or so if I sleep and I rarely feel rested. That's why I fall asleep throughout the morning (until noon and beyond) and even then I automatically nap (fall asleep) every few hours in the afternoon. It never stops. There are days where I go to bed between 6 and 8 PM, and I still manage to sleep until 2 the next day (with lots of awake time, intermissions). If I don't take my muscle relaxants before bed, I don't sleep at all, then I only manage to sleep about once every 2 days and my legs will be as stiff as hell! Last edited by CRPSbe; 04-04-2009 at 01:55 PM. |
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#5 | |||
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I have bought both a tempurpedic (foam) mattress and a sleep number bed. The foam mattress was ok..but we only kept it 2 years as it does tend after a while to not bounce back like it is suppose to
![]() ![]() ![]() Hugs Mary ![]()
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There is no future, there is no past, we must make each moment last |
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"Thanks for this!" says: | Grammadur (04-05-2009) |
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#6 | |||
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Junior Member
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Myself, I have had to move to the recliner. I do remember someone else talking about bed and they said the memory foam beds or even just a memory foam mattress will make all the difference in the world. I am very poor and cannot afford to make the change however as soon as I can save up
![]() ![]() ![]() ![]() Hope this helps tjbird |
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#7 | |||
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Junior Member
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After reading all the posts that you have gotten sleep and RSD are a major issue for us all. Everytime I go to have a procedure or test, I always ask them if they have a spare bed I could have
![]() ![]() ![]() tjbird |
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#8 | ||
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Quote:
We too tried the tempurpedic mattress, didnt work. Then we invested in the sleep number system. It is an investment, but one of the best we ever made. We have the king- since it has dual controls- I can have a very soft bed, as low as 15 if i am in a flare and my husband can keep his side firm. then this christmas my sisters gave us the dual control electric blanket. I have cold RSD- so know I can have my side on high, day or night and my husband can have his side off or on a more normal setting. Later we added the adjustable part of the bed. this is because I can not llift my own head. RSD in spine and my neck is very weak. so the abilitiy to raise the head of the bed has been a real benifit for me. In both getting in and out of bed and resting. Please remember to get a script for the bed from your Pain Management Doctor or Primary- some people will be able to have their insurance company pay.If not if you have the script, you are able to write all expenses for the bed off of your taxes. Also there is a medical discount from sleep number if you have a script- and you do not pay the tax which is significant- Ithink we got $500.00 off. Good luck to everyone- its a huge investment but so worth it. As Mary said, all of the products are excellent. Hope this helps you. CZ Last edited by CZZ74; 04-05-2009 at 05:52 AM. Reason: spelling |
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"Thanks for this!" says: | Grammadur (04-05-2009) |
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#9 | |||
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Junior Member
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Thank you. I will go on their website and order a free dvd for my boyfriend to watch.
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#10 | ||
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Magnate
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I have moved a lot and bought a few different beds and tried out many. To tell the difference I even tried ones that were way out of my price range just to see comfort wise. Really for me when I hurt a cloud would not feel comfortable but a few things I think you should think about. Also on a side not my friend who has similar condition has where she can sleep at one setting and her husband at another but I think it cost 10,000 but like the other poster said ask for an order.
Anyhow height of matress. Some were so insane high I had issues getting in and out. Also do you sleep on side,back,stomach. Matress toppers have helped me make a not so comfortable matress into a better and on some nights when I need something different to try to comfort me I add a comforter or my microfleece blanket on top of the sheets. It helps me. Good luck |
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