[bobber]

i done know how you all keep your demeanor...im spazzing out ,,im only 6months out but now its spreading,,,from the r-heel into both legs..im trusting in God but at the same time im being inpatient,,im trying now to focus on it but im still in bed from a thr 6/13,, so its makes it worse when your stuck in bed,,,im 48 male who was active working with my hands and playing ball,,,it greifs me to no end but i know you all have been thru this befoe me..i really see what kind of a man exspecialy a God fearing one,,when im being tested and refined in the Lords fire,,, I love him but im not showing him the faith he deserves now,,im weak scared and worried sick...its not like its a broken arm and you cast it and wait your 6weeks,,, sorry for the babbling,,you all dont need to to be reminded of the living hell that you have seemed to over came,,my best wishes to you and i sincerly appreciate your prayers and replys.. the dr put me on neurotin,,prednisone and wiil be swapping around cymbalta and zanaflex this week. i really thank you all .........bobber

[AintSoBad]

Hey Bobber,
You're gonna do just fine.
It IS a change of life.
I'm not going to bore with my story now,( I'll be 53 soon, and had this since 83) but, you will find some peace, and you'll have bad, and better days.
Your "scale" of good and bad may change.

But, if you have the faith you say you do, I think that is very important, you will become a "Savant".
Look towards your God.
He WILL guide you!

Anything I can do, PM me? Please!

Pete
Asb

[loretta]

Hi Bobber,
It's not surprising of your anxiety and being scared about your RSD. You have a lot of knowledge if it for being a 'newbie' And your spread has been so fast. I was 4 years before I was diagnosed and didn't know what was going on.
You really have a good chance of going into remission. Keep doing research, have you heard of HBOT Hyberic Oxygen Chamber. It gives you 100% oxygen and promote healing. I'm going to try it soon. Has your Dr. suggested any anti-anxiety meds? It's important to keep your nervous system as calm as possible. There are natural under the tongue B vitamins for this at health food store. Music, natural essential oils like lavender, candles, music of waterfalls, ocean waves. etc. I have a machine that has different settings. Something I did weekly for a couple years and still do is massage therapy. meditation, prayer of course. If you can't walk, would the Dr. let you do stretching?
I'm a spiritual person, but was helped a lot when my parents died by a professional counselor. And again, my neuro is a psychiatrist and helped a lot to adjust to this beast. I attended the annual meeting this year of RSDSA and 135 were present. I really feel my faith, self-care, diet, exercise, stretching, swimming & more have kept me mobile and doing as well as I am. Yes, I have bad days and flares, but I know a lot of the above things and things others have talked about on this forum, the proper meds and therapy have all played a part in doing as well as I am. I'm grateful for that, That's not the case of some at the seminar, and I don't know why, but our inner strength and belief system plays a part in our physical health and well being. Take care, loretta

[Sandel]

Originally Posted by bobber

i done know how you all keep your demeanor...im spazzing out ,,im only 6months out but now its spreading,,,from the r-heel into both legs..im trusting in God but at the same time im being inpatient,,im trying now to focus on it but im still in bed from a thr 6/13,, so its makes it worse when your stuck in bed,,,im 48 male who was active working with my hands and playing ball,,,it greifs me to no end but i know you all have been thru this befoe me..i really see what kind of a man exspecialy a God fearing one,,when im being tested and refined in the Lords fire,,, I love him but im not showing him the faith he deserves now,,im weak scared and worried sick...its not like its a broken arm and you cast it and wait your 6weeks,,, sorry for the babbling,,you all dont need to to be reminded of the living hell that you have seemed to over came,,my best wishes to you and i sincerly appreciate your prayers and replys.. the dr put me on neurotin,,prednisone and wiil be swapping around cymbalta and zanaflex this week. i really thank you all .........bobber

Hi Bobber,
I would go heavy on the antioxidents, vitimin C, grapeseed extract, pomegranate, acia tea, green tea, oranges, dark vegtables brighter the better, fruits, blueberries are excelent.

There have been clinical studies where they have taken large groups of patients with radial fractures (wrist), from 2 seperate hospitals and one hospital has given their group of patients vitimin C (antioxident) in one of three doses. The other hospital used normal routine and did not perscribe vitimin C.

The hospital that perscribed vitimin C had two thirds less RSD cases of RSD in their group of radial fracture patients.
I believe the dose of vitimin C that was decided to be nessary was 1000 to 1500mg.. the doses tested were 500, 1000, and 1500mg.

Now this is not to say it will positivly stop spread Bobber, but it has for some people and if it can stop RSD from happening in 2/3rds of the cases to begin with it IS worth trying seriously.

This is also why it is so important to get the word out there about RSD/CRPS.. how many broken bones turn into RSD needlesly.. if all hospitals changed their protocal and perscribed vitimin C there would be alot less of us.

Hugs bud nice to meet'cha,
Sandra

Ps the study's are posted on this forum somewhere.

At 6 months and spreading with this knowlege of these studys, I would live breathe and eat everything antioxident, go online do research you have nothing to loose and so much to gain.

[bobber]

Originally Posted by AintSoBad

Hey Bobber,
You're gonna do just fine.
It IS a change of life.
I'm not going to bore with my story now,( I'll be 53 soon, and had this since 83) but, you will find some peace, and you'll have bad, and better days.
Your "scale" of good and bad may change.

But, if you have the faith you say you do, I think that is very important, you will become a "Savant".
Look towards your God.
He WILL guide you!

Anything I can do, PM me? Please!

Pete
Asb

Hey Pete..
Thank you for the reply and concerns,, i guess you can realate, at the beginning when you get get hit with it,,my dr,s are giving me different meds,,cymbaltra prednisone ,,and zenaflex. Ive had 2 blocks in the last 2wks, they did nothing,,my r-leg looks bad,,red ,thin skined diseased looking ,and really bad circulation when standing,,,i had a thr on 4/13 and im still on the walker,,dont know if its a cup problem or the disease.. im due for a revision of the cup in 6wks,,i just pray that i can walk by then .. only God can clean this mess up, my hope is in him, although i still struggle everyday not to have a bad attitude,,,thats not my stle,, but this disease and the meds[cortisteriod] make you nuts,,exspecially on the loading stage. what are your meds,,what works foor you,,hints,,i know everyone different, and you dont have a crystal ball, but after 25 years,,you got to have a plan,,,when your up to giving your story,and how bad it is and meds,whatnots,,,,,feel free to type away,,im all ears,,,you asked me and im accepting. are you mobile,, how much of your body is affected.. any remissions in those years,,,,,,,,,thanks pete,,,,,,,,,,,bobber

[bobber]

Originally Posted by Sandel

Hi Bobber,
I would go heavy on the antioxidents, vitimin C, grapeseed extract, pomegranate, acia tea, green tea, oranges, dark vegtables brighter the better, fruits, blueberries are excelent.

There have been clinical studies where they have taken large groups of patients with radial fractures (wrist), from 2 seperate hospitals and one hospital has given their group of patients vitimin C (antioxident) in one of three doses. The other hospital used normal routine and did not perscribe vitimin C.

The hospital that perscribed vitimin C had two thirds less RSD cases of RSD in their group of radial fracture patients.
I believe the dose of vitimin C that was decided to be nessary was 1000 to 1500mg.. the doses tested were 500, 1000, and 1500mg.

Now this is not to say it will positivly stop spread Bobber, but it has for some people and if it can stop RSD from happening in 2/3rds of the cases to begin with it IS worth trying seriously.

This is also why it is so important to get the word out there about RSD/CRPS.. how many broken bones turn into RSD needlesly.. if all hospitals changed their protocal and perscribed vitimin C there would be alot less of us.

Hugs bud nice to meet'cha,
Sandra

Ps the study's are posted on this forum somewhere.

At 6 months and spreading with this knowlege of these studys, I would live breathe and eat everything antioxident, go online do research you have nothing to loose and so much to gain.

Sandra
Thank you for the info, im on the vitamin c ,,im going to take 2000mg per day,,, how long have you been like this and whats are your conditions,,write me when you feel like typing...picking other peoples brains can pay off with one scrap of information,,, May God bless you always,,,I will lift you up in prayer,,,,,,how long have you had this and any remissions??....thank you for your kindness.....bobber

[bobber]

Originally Posted by loretta

Hi Bobber,
It's not surprising of your anxiety and being scared about your RSD. You have a lot of knowledge if it for being a 'newbie' And your spread has been so fast. I was 4 years before I was diagnosed and didn't know what was going on.
You really have a good chance of going into remission. Keep doing research, have you heard of HBOT Hyberic Oxygen Chamber. It gives you 100% oxygen and promote healing. I'm going to try it soon. Has your Dr. suggested any anti-anxiety meds? It's important to keep your nervous system as calm as possible. There are natural under the tongue B vitamins for this at health food store. Music, natural essential oils like lavender, candles, music of waterfalls, ocean waves. etc. I have a machine that has different settings. Something I did weekly for a couple years and still do is massage therapy. meditation, prayer of course. If you can't walk, would the Dr. let you do stretching?
I'm a spiritual person, but was helped a lot when my parents died by a professional counselor. And again, my neuro is a psychiatrist and helped a lot to adjust to this beast. I attended the annual meeting this year of RSDSA and 135 were present. I really feel my faith, self-care, diet, exercise, stretching, swimming & more have kept me mobile and doing as well as I am. Yes, I have bad days and flares, but I know a lot of the above things and things others have talked about on this forum, the proper meds and therapy have all played a part in doing as well as I am. I'm grateful for that, That's not the case of some at the seminar, and I don't know why, but our inner strength and belief system plays a part in our physical health and well being. Take care, loretta

Loretta
Thank you for the reply,,,im trying to calm downn,,i have cymbaltra ,which is supposed to be for the nerves,,but im also on zenaflex ans the dr, said not to take both,,,the zanaflex is a muscle relaxant. ive been using xanax at night,,my hip dr gave me that,,,i dont want to get addicted to it,,,ive been there ,,addiction is a disease too. i take 1 a nite,,the prescription is 3 x day... they do the job at nite.... im trying not to get upset,,and changing my diet is killing me...i was active and playing sports,,,when im active ive got a garbage can for a stomach,,,you can eat anything,,but i know that if i dont change my diet ,its going to inflame my condition,,please continue to write,,,anything will help,,,,,,,may God give you a remission,,,,,i have you all in prayer.........bobber