Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-17-2009, 12:57 PM #1
taresaj taresaj is offline
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Unhappy 9th stellate ganglion nerve block

O.k I just found this site and I was wondering if anyone has had the same thing happen to them
I have crps in my right hand and have had it for about 2yrs
I have had 9 nerve blocks in two months(one every tuesday)
I had the first few in my C-7 than 2 more in my C-6 and the last three in my my C-5
now here is were my problem is once they move to my to my C-5 I have been having problem the first one my back hurt the next day for around 3 days the second my back/shoulder hurt again but the last one my shoulder and left arm have not stop hurting so I talked to my physio about it and she said the pain was coming from my neck so she did accupunter well that was it I have never been pain free since so I went to my doctors and they did a ct scan and now they are saying I have a herniated disc in my C-5 and C-6 (WHAT HOW DID THAT HAPPEN)
does anyone know if it is possible that the never blocks caused this or is it possible my crps is moving
the only thing they are doing for me is they upped my Gabbapentian and put my on morphine
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Old 06-17-2009, 02:10 PM #2
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Taresaj,
Blocks can only do so much, and it seems that you've run that course.
You probably need to be sent to a good Pain Management Psychiatrist, and/ or someone who specializes in RSD. Along with some specialized PTherapy.

You will get more comments and support, as you came to a very good place.
While I"m sorry you needed to come here, I welcome you!

Pete
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Old 06-17-2009, 02:28 PM #3
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I know for myself I have had other pain areas like my back which was super painful at one time where from that I had a hard time walking and my pelvic both that lasted a long time but turned out not to be rsd. Now I have had spread to my other leg and eyes but what I am saying is that one never knows so I encourage you to follow up and ask your doctor who did the blocks. I also know for myself I compensate for my legs aka how the back happened. What doc did the ct scan? Have you had an mri? I would and if you have not been to a neuro. I hope you feel better
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Old 06-17-2009, 08:07 PM #4
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Im sorry to hear about your pain, from my own personnal experience. the disc were probually already bulged,,,the injections might have just flared them up,, when the dr did mine ,,he shoots to the right of the spine... im msore for a few days too. ive had 2 blocks in the last 3 weeks,,they didnt help me,,or maybe they will in time,,good luck too you,
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Old 06-18-2009, 09:59 AM #5
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Quote:
Originally Posted by bobber View Post
Im sorry to hear about your pain, from my own personnal experience. the disc were probually already bulged,,,the injections might have just flared them up,, when the dr did mine ,,he shoots to the right of the spine... im msore for a few days too. ive had 2 blocks in the last 3 weeks,,they didnt help me,,or maybe they will in time,,good luck too you,
bobber
Something isn't quite right. Stellate blocks are done always at the same level, anteriorly at about the C7 level on the symptomatic side. If they are moving around to different neurological levels, that sounds more like a selective nerve root block. Postitioning on the table for all while under anesthesia, could aggravate a pre-existing previously asymptomatic disc hernia. Very doubtfull that a block would cause it though.

Unfortunately, your body is allowed to have as many (different) problems as it wants!
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Old 06-18-2009, 10:11 AM #6
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Default Hi Taresaj

Welcome to the forum.

This goes back to where I always say, don't chalk everything up to RSD. The blocks wouldn't cause a problem like that, you most likely have an injury.

As you get the RSD calmed down, lots of times people have other medical issues going on. It seems like we can't just have one thing called RSD. Other things come with it.

Hope the blocks start helping.

Ada
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Old 06-18-2009, 11:33 AM #7
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I use to get blocks one every week for about 6 weeks I have RSD in both arms. I now get the blocks every day for 6 days and then move right - left - right and this has work the best for me I have been getting blocks since 1984 and some years 2 rounds a year. Just make sure you have a Doctor who cares and is will to work with you and also get a second opinion, I had TOS surgery and I did not need it and I'm having problems because of that surgery. I read here all the there are great people here I'm glad i found the site there are two things to remember if doing surgery get a second opinion and find a good Doctor it took me 15 years to find one but you can live with it I'm going on 31 years keep the hope up
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Old 06-18-2009, 12:07 PM #8
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Hello and Welcome to NeuroTalk, Taresaj! You will meet many great people here who i'm sure will try and help you if they can !!

I'm sorry to hear about everything that you are dealing with right now ! I really hope you are able to find something to help you soon and get some answers for what is causing your pain!

I'm not sure if the blocks could cause a hernitated disc however I can tell you what happened in my case with blocks. I have had 3 blocks, 2 injected directly into my RSD limb and the other in my spine.

I was 12 years old when I developed RSD in my left leg after an ankle sprain. When my doctor diagnosed me with RSD, he injected directly into my RSD foot near the ankle bone with a drug called Guanethidine.

As soon as I woke from the block, I found that I couldn't walk at all. Everytime I tried to walk, my leg would shoot out in front of me and I fell to the ground. It got so bad that I had to use a wheelchair everywhere I went and rely on my mum to do everything for me.

My Doctor had never seen a reaction like that before and it was only after I had the block that my mum found an article on the internet stating never to inject into an RSD limb and by that time, it was too late, the complications had already arose.

A few months later, I developed an ingrown toenail on my RSD leg. We tried to ignore it but eventually, it had to be removed as it became really infected. Because my foot is so sensitive, my dr put me to sleep for the procedure and did a ring block into my toe to supposidely try and dull the pain.

From that supposidley 'minor' procedure, I developed severe myoclonic spasms in my leg. My leg jerks around in the air on it's own uncontrolabley. I had the toenail removed last year and still have the spasms. My dr says that I have the most 'wound up' nerves he has ever seen and I have been told that I MUST stay away from all surgery unless it is absolutely nescasary.

At the end of last year, my Physios decided that they wanted to try and use a splint for me in Physio as I have pretty bad Dystonia (a movemenet disorder) in my RSD leg. I had to be put to sleep under general anaesthetic whilst they moulded a cast to the shape of my leg and my dr decided to do an epidural on me as he knew it would make the pain worse with them messing with my leg.

He injected into my spinal cord and thankfully, that procedure went OK and I didn't have any complications and the effects of the drug (Ketamine) lasted about 6 hours. I can still feel pain in my spinal cord at the bottom of my back though if anyone presses on too hard or I bend over too much and it is really painful at times. My Physio's told me that it was called 'remembered pain' and that it is pretty common with epidurals.

I have heard of people having spreads from blocks. Theres quite a few people on here who have had bad reactions from blocks. I guess everyone is difficult, what works for one person, isn't going to work for another unfortunately and everyone reacts differently.

I hope you can find out what is causing your additional pain and problems real soon. Try and move as much as possible - even though it is really painful - as that is probably the one thing that will help you in the long run. If your doctor has told you not to overdo it or move too much though, follow his/her advice.

Do you have an appt to see your doctor anytime soon to get a scan/xray to show if there is an herniated disc? I'd call if not and see if they have any advice and explain that you are concerned and in lots of pain.

I wish you the best of luck and hope you get some answers soon! You will be in my thoughts and please keep us posted when you can!!

Alison.
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Old 06-23-2009, 05:45 AM #9
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Just wanted to say welcome to the forum!
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 06-23-2009, 08:45 AM #10
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Welcome to the forum. You will find positive support and acceptance here.
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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