Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-28-2009, 08:06 AM #1
momzpeachy momzpeachy is offline
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Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
momzpeachy momzpeachy is offline
Member
 
Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
Default How rapidly has your RSD progressed?

I am getting concerned..along with my Doctor's. They are seeing VERy rapid progression with me and it's getting kinda scary. THe Doctors believe I've had RSD for about 2 years now but things are changing for the worse now and very fast. The burning pain never stops and it has spread. I have full body RSD and I have trouble with internal organs now as well. They are really concerned and quite interested in me because everything has now been affected by this terrible disease. The burning pain is getting worse by the week and I have more trouble sleeping and eating which keeps getting worse. My memory and concentration is just awful and my vision keeps changing. My vision has changed now 4 times in less than a year! I am losing sight in my right eye and the eye lid is swollen and looks droopy. My vision is blurry most of the time and glasses are pretty much worthless. I see the same with or without them.

What's getting really scary now is that I'm losing function of my right hand. It's swollen most of the time and I can't even close my hand to make a fist. I can't pick up an empty soda can with it most of the time. I am now having trouble walking, especially when I'm in a huge flare. I have awful spasms, legs feel weak and my knees will just give out on me at times. I have a hard time getting up steps. I'm falling apart and I'm scared.

I'm just curious if any others progressed rapidly and were you able to slow it down? I tried a bath last night to help relax and then I didn't sleep all night. UGG!

Is there any relief?
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