I feel bad for all you folks in rule areas that have RSD/CRPS. Most are stick with whatever PM Dr close by for treatment. Not all PM Drs. are bad in ways like hard of hearing, or short time spent we the patients

I live in a major metro area and find it very hard to fine a PM Dr. that will treat my pain. I have seen 5 PM Drs. 4 of the 5 said that I need a SCS before ever looking at me. To me it is like I am bring my new vehicle in for a oil change and before they open the hood they tell me that I need a total rebuild motor. I understand that a SCS may be something that I may or may not need but first I need to be treated for my pain through a process of elimination.

The pain meds I am taking are not working and have told my Dr. over and over only to be told lets leave everything alone for now and see how you feel 30 days from now. This has been going on for the past 4 months with no changes. The last time I meant with my Dr. he seam bent out of shape because I said I need something new for the pain and I took more than the 2 minutes or less he allows per patient.

Should I put my foot down with this Dr. or go looking for a new one. Most of these Drs. are for lack of better words the big dog and don't forget it. As they want you to know I the Dr. cannot do no wrong so what I tell you is all you need to know their is no risk when I do surgery's.

I went to a hand Dr. for 2 years before I allowed him to do joint replacement to the base of my right thumb. Well this Dr. severed the radial nerve in my wrist and told me for 18 months that the burning pain on the top of my hand as well as the same pain in the thumb and 3 fingers was normal. He was buying time to get pass the 2 year state limit. So now I question every Dr. that wants to treat me to make sure that everything is right.

There are a lot of good people on here with much more pain then I have but I now 4 years later have 8-10 pain in my entire right arm, hand, fingers, chest, upper back, and just found out through my PC Dr. after doing test that in is in both legs from hip down to the ankle. I ask this PM Dr. 2 months back if this had spread and he said no.

Sorry for my spelling and the way I frise things. My mine is still sharp but the hands cannot keep up and will not make sense of things.

Any feedback good or bad is welcome.

Please feel safe and welcome in this place, for it is a haven for the hurting who need to take their thoughts and try to locate adequate help. THAT is a foundational principle of NeuroTalk. To my knowledge there are no editors or critics on here who would even attempt to scorn a poster due to their command of either language or a computer keyboard. Frankly, for many of us it is the very notion of pain in the hands which may prevent or interfere with use of a keyboard. So take heart, be comfortable, and feel the embrace of people who care, for we who are here DO CARE!

A guiding principle by which I have sought and received care is the recommendations regarding and interviews with doctors who might be allowed to touch my body. Equally strong is the doctors adherence to a goal of First Do No Wrong. While this does not necessarily mean such a doctor is incapable of error or mistake, for they are simple humans just as we on NeuroTalk are simple humans, it speaks highly of a physician that their background and hands are known among the medical community, so I tend to ask a lot of questions.

Taking these thoughts and applying them against your facts, the question becomes have you found a doctor who fulfills your goal as one who is interested in your treatment and healing as opposed to a quick kick of the tires to determine that your transmission needs replacement? If you feel unsure, your own wisdom will guide you to search again.

I have an appointment with my physiatrist a week from tomorrow, 28 April. If you like, and will reveal your metro area to me either by PM or here on the thread, I will ask whether my own doc whom I have trusted appropriately with my life time and again whether he knows of trustworthy physiatrists in your area. There is my offer, the rest is up to you. I hope and pray that you find the best care for your needs.

Prayin,
Mark56z

It's great to hear from you! I completely understand this frustration.....
I notice that there are several folks on the RSD forum who only use the lower case keys because it is too difficult to type capital letters.

I get SOOOO very frustrated with some of these PM docs.
Like you said, they 'think' they are the overlords and by george don't EVER insinuate otherwise. Many of us have fallen victim to this and IMHO I think the SCS gets pushed on people too much!

You need proper pain care! PERIOD!
You wait and wait for your next '2 minute' visit sheesh.....and all they say is WAIT another 30 days......they just do that to buy more time.
How @#%^&* difficult is it to prescribe you something to get you some relief !
I see this happening WAY too much and I get so angry about this.
THEN, I can guarantee you, if you keep coming back.....sooner or later they are going to attempt to get you in to some sort of 'mental care'. This is their way of passing you off.
NO WONDER people get to feeling hopeless....and even begin suicidal ideation...because there seems no other way out.

I'm so sorry that you are going thru this. I really wish I could sound more encouraging.......but I've been pretty down and out about alot of these issues, plus I'm probably going to have to give up a job that I've loved for over 25 years and file for disability.

Hang in there and stick around ok
We're all here for each other.....and we care.

I do believe you will eventually find a doctor who will amaze you.
At least this is my prayer and hope for you.

Caring Always
Rae

RAE, RAE, RAE, RAE, RAE, RAE, RAE, RAE!

Imagine the thunder in a stadium as you come to the microphone and say it like it is...... you know, such as at the first ever SCS patient's convention held in some convenient venue. Could be nice. I'll attend.

Go get 'em, Mark56

[QUOTE=Rrae;764118]It's great to hear from you! I completely understand this frustration.....
I notice that there are several folks on the RSD forum who only use the lower case keys because it is too difficult to type capital letters.

I get SOOOO very frustrated with some of these PM docs.
Like you said, they 'think' they are the overlords and by george don't EVER insinuate otherwise. Many of us have fallen victim to this and IMHO I think the SCS gets pushed on people too much!

You need proper pain care! PERIOD!
You wait and wait for your next '2 minute' visit sheesh.....and all they say is WAIT another 30 days......they just do that to buy more time.
How @#%^&* difficult is it to prescribe you something to get you some relief !
I see this happening WAY too much and I get so angry about this.
THEN, I can guarantee you, if you keep coming back.....sooner or later they are going to attempt to get you in to some sort of 'mental care'. This is their way of passing you off.
NO WONDER people get to feeling hopeless....and even begin suicidal ideation...because there seems no other way out.

I'm so sorry that you are going thru this. I really wish I could sound more encouraging.......but I've been pretty down and out about alot of these issues, plus I'm probably going to have to give up a job that I've loved for over 25 years and file for disability.

Hang in there and stick around ok
We're all here for each other.....and we care.

I do believe you will eventually find a doctor who will amaze you.
At least this is my prayer and hope for you.

Dearest Rrae
zz