Your pain journey nears its end and soon!
Matk56

This is very exciting to hear! I think it's really cool that your psyche is working with you to get this moving right along. Too bad you have to wait till next month for that appointment tho.
BUT the time will pass and we are all here for you to help bide the time during this interim. Hopefully you have plenty of meds on hand to counter the intensified pain you are experiencing.

Rae

Wow ... It's amazing to think it can work THAT good ... Roll on till you get your permanent

I was totally amazed that it worked so well. While undeniably a bit anxious, I had a good attitude relative to the possibilities and was quite hopeful. I never expected total elimination of the nerve pain. Now that the trial is out nd the pain is back with a vengance, I am in a major Fibro flare also. That could go on for weeks. I have made it this far so I just need to keep my mind and spirit in a quiet yet distracted place.

I honestly don't know which is worse right now, the neuropathy or the Fibro flare. It's a full body flare and the meds aren't touching it. There's no point in calling Pain Man as we agree that I should not be on a higher level of opiates given the fact that I live alone and the kids are hours away. My aid should be here soon and I can get into the tub for a long hot soak. That should pull things down a bit for a few hours. I wish I could soak more than three times a week but dare not complain. KY Medicaid has all but eliminated the homebound waiver program and cut servcies drasticly. They are keeping me out of a nursing home. It will be such a blessing when the permanent implant goes in but there are other issues that are out of control and aggravate eachother. Need your prayers. Thanks.

Hey Spine,
So sorry that your having such a major pain flare after that tiny window during which you were able to experience some relief! It's great that you have the health aide, though, so at least you can get some temporary relief from the hot bath. Hope it works, and I'll for sure be keeping you in my prayers.

Gentle hugs,
Jan

Hearing your pain, Spine.....
Praying that you have whatever means possible to ease the pain while you get thru this hardest part of the wait. Hopefully you have something to help you sleep as a means of escape also.
Please Lord let the appointment date get here soon!

Caring,
Rae

If possible; might be good if the meds are increased during this period as well as a sleep aid. You need some relief. I don't know what I would do without the knowlege that with my sleep aid, my pain is gone for at least 6 hrs. or so.

Praying for you,

Gerry)

I'm on a boatload of meds now. When the nerve/Fibro circle of pain gets going, meds mean nothing. I call my PM meds my bedtime snack. They knock most folks into the next world. The only way to bring it down in a predictable period of time is to hospitalize me. KY Medicaid is my primary ins. and they won't cover pain, mobility or quality of life issues. Eight years ago, I would be in the rehab hospital getting six hours of boot camp therapy...to include two hours of pool therapy a day. After ten days, I would leave a new woman.

It doesn't take a whole lot to cause a major full body flare anymore. I have been dealing with this since 1976 and it has gotten progressively worse. If the body perceives that it has been violated, all heck breaks loose. A big concern that I have but haven't discussed is the possibility that my body will not accept the scs implant once it is in. I have several friends who have it as bad as I do in conjunction with other spinal issues. They had very successful trials but when the device was implanted, the body went wild and had to come out after a reasonable period of time for the body to adjust. This is something I'd appreciate you praying about. Care/Caid know nothing about this possibility or I would not have been approved.