SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

 
 
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Old 04-11-2013, 10:05 AM #15
fionab fionab is offline
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Join Date: Feb 2010
Posts: 487
15 yr Member
fionab fionab is offline
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Join Date: Feb 2010
Posts: 487
15 yr Member
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I'm so sorry to hear you're going through all this. Even with having two SCS's, I still have to go in for a double cervical fusion so can understand your frustration at things continuing to go on and on. We hope that we will finally come to the end of the road with our pain/suffering and when it doesn't happen it can be hard to deal with. And when your dr. says there's nothing more that can be done...well, I can only imagine the hopelessness you may be feeling. Please know that we are all praying for you!

I'd like to pass on a suggestion, if I may, in case you have to forego any more surgical intervention and simply rely on pain medication for pain management. Several years ago my PCP told me she could no longer be my dr. because I was too complicated of a patient for her (I have other medical issues other than spine problems). I searched and searched for a dr. who would accept me as a new patient to no avail. Too complicated, they all said. I finally came across a dr. (I know it was the Lord's intervention) who is actually a hospice dr. He is now my PCP. Although he works with hospice, he is great for me because he is compassionate (would have to be to work in hospice), but is also very educated on helping patients deal with pain issues and does not downplay one's pain but tries to find adequate pain relief. In fact, he'll be overseeing my pain mgmt. needs after this upcoming cervical fusion.

All that to say this, you may find help with pain mgmt. if you can link up with a hospice dr. that would be willing to work with you. My hospice dr. also sees non-hospice patients so maybe you could find a hospice dr. that also sees non-hospice patients. Would be worth looking into and if found, could offer much needed help for good pain mgmt.

God bless you and keep you

Last edited by fionab; 04-11-2013 at 10:10 AM. Reason: typo
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