Hey all! Hope everyone had a good Mothers Day! Kay I will view wok wok pics in a few! Thanks!

Spent all Day Sat with my hubby and kids and four neighbor kids at the zoo then took them all to chili's for dinner. Then went to Toys r Us and bought an above ground pool for the summer and some other crap the kids didn't need but wanted! LOL

Mother's day went out and hubby bought me an antique Chest of Drawers and an electric hand sander with 8 attachments and all of the stuff I needed to refinish the chest and we worked together on that in the garage until almost 7pm while all the kids played then went in to turn on the TV and find out we had tornados rolling this way again so the kids had their dinner padded up in the closet watching portable DVD's they loved it! Alll the big stuff missed us though thank goodness!

Welcome home Barb!

Healing vibes to Jim!

Good morning all Coffee in hand and trying to wake up.

LOL, I'm a little slow this morning. Been staring at the screen for a little while trying to think of what to say. Great indication of how this day might go.

Hope everyone has a great day today.

Think I'll hunt up some more coffee.

Good morning everyone!

Carolina - I agree with your little cheering smilies - Kay got a shower.

Kay - Glad you have running water now. Every time I see baby wipes I think of you.

Hi Barb - Welcome back. I hope that your vacation was nice and relaxing as well as helped your sinuses. Good luck at the neuros today.

Vonn - Hang in there. Something will work out for you.

Fin - I have mornings like that too. LOL.

Sandy - Sounds like you had the perfect Mother's Day - relaxing on the couch.

Renee - Sounds like you had a good Mother's Day too. Good luck with the chest of drawers. We want pictures when it is done.

Take care all of you in the "bad" weather zone. YIKES!

Hi everyone else.

Spent the weekend helping DBF and finishing up a painting I started a while ago. I have 1 more coat of finish to put on the painting. The dining room at DBF's rental, well . . . LOL. It's a work in progress. It's getting hot here and I certainly felt it this weekend. I hate the heat and what it does to me.

Hope everyone has a good day.

Hey all! Yesterday was nice, just chillin' on the couch with a roast in the oven. I got to talk with Renee and I think I was as excited for her and she was about her gift. lol

Today is "GET THAT DANG LAUNDRY DONE GIRL!" day. lol

Hope everyone is feeling better or getting meds they need to do so. Jim is going in tomorrow to drop off his specimen. Oh joy. His spasms are at their worse and his heel is hurting. We had to put the foot boot on last night so the heel wasn't touching the bed.

Got up this morning and went to local clinic for blood work. Then I drove an hour to Champaign/Urbana Il for neuro appointment. He spent half of the appointment looking up articles on the internet so he could read me stats on med's. GRRRRRR! He knew that I was already familar with the literature. He would ask me, "What do you know about this drug? ... Yes, that is correct. I felt like a med student." I told him I was not willing to try rituxan. He gave me a sad face. So what if there have been 26 PML deaths from it?

Then he said he wanted me to get a MRI. It has been a little over a year since the last one. I think he could have told me that on the phone. Then he said if I do not show any new inflamation/active lesions I can get a MRI done every 6 months and stay off of any new treatment for now. Although he made it clear he is not happy with that decision. This is what they recommended as one option at the MS clinic I went to. If I do show new activity he wants me to try Imuran. They also suggested this. I said I would consider it.

I asked him about meds for fatigue, but he stated he does not prescribe stimulants. (I am not on an anti depressant, but he does not prescribe them either.) He also is not happy that my pcp has given me a script for a very low dose of clonazepam. I rarely take it, but I like to have it just in case my muscle spasms get too bad or I am really stressed out. He did agree that I could try taking baclofen every day and try increasing the dose to 2 times per day. I have only been taking 10mg on an occasional basis. I think I need a new neuro. When I switch my insurance in July from a HMO to an open access plan I think I am going switch my neuros to the ms center in St. Louis.

Treated myself to lunch at a Japanese restaurant after my appt and bought several books at Borders. Now I am exhausted.

Sorry to talk so much about myself. Hope you are all doing ok!!!

Any news about Frank?

Update: We all have colds Olivia has had one for the past two days now hubby and I both do and Dayton says his throat is starting to hurt...its not strep..hubby went to doc today. I think its this crazy weather here 80 for a week then 60 and raining. I am having the clonic spasms and nerve pain from my neck down to my butt,I had an appointment with Dayton at the endocrinologist because his doctor was concerned about his size (doc said he was fine!) But I cannot turn my head! So my neighbor Tim who is a house husband drove us and we had fun we have alot in common so we always have fun chatting! Came home to hubby curled up on the couch trying to die....sheesh men are such babies!

Sandy hope everything goes well with Jim I hate that he is in such pain I agree with what you said on the phone something has got to be done!

Barb- nothing liek a trip to the bookstore...I love it..my fav thing to do!

Jenn-two more days and counting!

Sandy, sorry to hear about Jim and the spasms. Hope he feels better soon.

Barb, At least the clinic and your doc are on similar pages as to the next step. Though I think it's weird he won't help with fatigue and such, at least he is trying by researching stuff.

Japanese food sounds great! Hope you had a nice lunch.

Renee, UGH! sorry to hear the cold virus has hit your house. Temps dropped here and both of us are snifiling.

TK, sorry to hear the heat's getting to ya. I'd send you some of my cold temps if I could.

~~~~~~~~~~~~

yep. 2 days and counting. So many ideas and plans going through my head, I'm not quite sure what I'll do first - LOL

My hubby has a conference coming up next month. Thought I was going to be lonely that week until my dad called up and said they'd be traveling through here and was wondering if they could stop by. Hubby doesn't mind missing the in-laws, lol.

Need to figure out dinner here soon. OH, that's another thing I'm excited about. I'll have the energy to plan dinners again! I love cooking. Hubby is a good cook, but he doesn't like to do it as much as I do.

Alright rambled enough, lol

And I forgot to mention that like an idiot I agreed to dog sit for Tim starting Thursday for a big goofy untrained puppy that weighs 30 plus pounds! Now I will have 3 crazy dogs in the house!

Vonn,
LDN is Low Dose Naltrexone, and it is compounded by a compounding pharmacist for off label use to tx MS. No FDA approval or trails, but tons of annectdotal evidence that is has about the same efficacy and outcomes at slowing down the Monster as Copaxone...and it's taken by mouth, so no shots, few side effects and tons of symptom relief for most of us taking it. I swear by it and my doctors are starting to think the LDN crowd may just be onto something after all, LOL!!

Hope your job venture works out for you. I can't remember if your on disability, but if you think you can work full time, you go girl!! I am disabled, but the studio is sucking up more of my time than I can handle and I am tired. I am learning first hand just why I can't hold down a real job these days! I sure hope your up to it! Just don't wear yourself out, OK!!!

Carolyn

Lordy, I am TOOOOOOOO busy. I need a vacation for sure! My sister is flying me to FL to escourt my 12 year old nephew ( her grandson) down so he can spend his summer with "grammy". I'll be spending a week with her and it should be fun as long as there are no hurricanes on the horizon.

I worry about the storms down there. They got slammed with three big ones a few years ago and it was awful trying to outrun the storms. She lives on an island and they pull the drawbridge up so everyone has to evacuate when the storms hit. Otherwise it's pretty idyllic there on the ocean!

Carolyn