Hey all! Ok, I think I got mom taken care of. The SS letter came and stated she was not approved for disability because she makes more off her husband. Done. It's been faxed to LTD. The lady in charge of mom's case is sending off her approval for LTD to her boss who then says yes or no. We should hear something soon. She did say she was bypassing the meeting with their doctors. I guess the last doctor report was obvious that she could not return to work.

Now, about Jim. The doctor never called back. So, the nurse suggested Jim to get a second opinion with another doc in the office. We are set up for 8/12 after he gets back from vacation. I was concerned about them being in the same office but she assured me that they are all separate and Jim would not be treated different. We'll see. In the mean time he has a bug that even the nurse has never heard of. I am curious what it is and will ask the nurse today. Jim talked to her and didn't get the name. So I will update later when they call.

Other than that I am clearing off the kitchen table of junk mail. That is a job let me tell you! lol

Hello everyone

Sandy I wish I had magical words for you, All I have is a :hug: an ear to listen to you and prayers and good wishes some of this starts to take care of itself, soon, questions get answers, illnesses get treated, and you keep from going loo loo:hug: you know what I mean more so than you are right now :rolleyes: hang in there:hug:

I had not read what you all may of posted this morning, been outside in this lovely weather, sighs, why cant it be like this all year, got the shed painted, fair size shed, got a quarter of a 2.5 car garage done, the church group called i left the young gent a message that i should be ok on painting, and that I would feel better if he had someone else he could help in more dire need than us, I thanked him again and again.

Was gonna PM you Kay but thought maybe this question, might help us all or others know the answer, when these hurricanes and tropical depression, hit you head on or even pass near by, because of the low barometer readings, does it effect your MS? is it harder to move about? my body is already effected by the barometer from my back injury a long time ago, lately when these bigger storms are going by us I have been hurting a lot more and in different areas, I ask and it may be me or a fluke, since this storm [passed the yucatan, I have had some nasty spasm, muscular pain, skin pain like my skin is stretched tight over my bones, that is the best way to explain that feeling. I just got done with a relapse, I am so hoping someone says yes these big storms do effect, cause i am not ready to slipped back into another, yes its only been two days so shall hold off take these lovely meds and hope, just not in the mood for a relapse

sorry to go on, its just this dang illness can be so frustrating at times

I hope and wish you all a peaceful day and hope the weather stays like this in illinois:Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli::Dancing-Chilli:

thanks everyone


peace

Yuck now Jim is spawning unheard of bugs, I agree go ahead and try the second opinion all though I know yall are getting tired of going from doc to doc...why can't anyone get a doc anymore that says you know what, we're gonna figure this out come hell or high water....that would take too much time and energy I guess after all they only make a mere 150 an hour! Glad your mom is getting stuff worked out though!

And speaking of mom's............:ranting: :Soapbox: :deadhorse:

GRRRR So irritated that A) I think she absolutely does not care that I have MS and need to rest at times and hurt almost all the time....and this woman is a nurse for Gods sake! B) She shows such obvious favoritism towards my son over my daughter and calls her ugly names....like you GD hateful, spoiled little SH** when my daughter has a tantrum.....ummmm shes 2! We got into it over that this morning. C) she has no concept of childproofing...she thinks well I am not doing anything different in MY house you just need to teach her to leave things alone.....My point being...she refuses to cook on the back burners of the stove...even though they are the same as the front burners...for the second time Olivia reached up and with both hands touched a hot pot, thankfully she yanked them off fast and only turned red with one small blister, but grrrr would it kill ya for God's sake to cook on the back? Apparently so.

Ok, I now return you to your regularly scheduled programming.....

And BTW I am moving out of my moms soon, and moving to SC.....more on that later!

Renee, living with the folks is never easy. Hope everything works out for the move here soon.

Frank, I hear ya about the weather. I'm hoping it stays like this tomorrow so I can attack some more of the bushes outside.

Sandy, Hope Jim gets some help for this strange bug he's got.

Weave, glad your hubby's car is back up and running

Vonn, sorry to hear all the insurance stuff going on. They are crazy people sometimes. Hope all works out for ya though.

~~~~

My vision did change a little, but my eyes are physically fine. So is the optic nerve. :) Doc's not sure what to make of my problems with light and dark adjustments, but he did give me some advice to help with some problems I've had. Tried one solution already, and what do you know? - it worked. :)

Hope everyone has a great evening!

Renee, you are so getting a call after I type this! lol

I just called the urologist and asked the secretary to put a birdie in their ears so not to forget us again. I also told the secretary that we are seeing Dr Smith on the 12th and she went on as if that was normal. lol Then she did something that I haven't heard of in years. She asked me how Jim was feeling? A secretary? For real? I mean we don't know these people well enough yet, yet she asked me. Is this bug so bad that they all know it? Those of you in the medical field know everyone knows if they work in the same office. Or...is she so concerned because Jim is getting terrible treatment? Do they all talk about how Dr Sobel isn't doing his job and Jim is suffering because of it? Whatever the reason, it was refreshing to feel like someone has compassion.

Now, on to mom. She may be evicted. Yep, you heard that right. You all know she is in income assisted apartments. Well, apparently they didn't submit her papers until July1st when rent is due. That's fine right? Nope. The SS letter is dated June 30th which now looks like she was getting SS and STD which is over the income limit they require to love there. ONE DAMN DAY, can you believe that? The manager said she is 90% sure mom wont be evicted and will just pay higher rent since she didn't know about it. But then there is that 10% that she will. UGH Damn red tape.

Ok, now Frank. :Hum::Poke::Bang-Head::deadhorsebeat:

Have you lost it completely? The church called to help you and you didn't take it? Just because you feel good doesn't mean you have to turn down help. My goodness man, what are we going to do with you? I get you wanting them to help someone else but the whole point of them helping is so you stay healthier. :rolleyes: I bet Deb is shaking her head at you right?

Ok, off that soap box. Don't hate me Frank. It's the caregiver in me.

I understand:hit-safe: lol um well her heads shakes a lot as it is, for what we have left, it will not take long, for me and chris is helping, what if there an elderly couple they can help who are not doing well, they have a list of names and numbers of locals who are down on their luck and or situations like mine, they helped me out a lot yesterday


renee my 2 cents worth, i think I would tell or ask mom if she is upset at you or begrudging you about something, then take it out on you and not olivia:hug: hang in there renee

Ok, Frank, I understand. But you just came out of a flare and probably shouldn't be pushing yourself. Small steps as they say. I'll shut up now. lol

hmmmmmmmm... me being from Cali and all, and having *zilch* familiarity with tropical storms heretofore... this is something I really notice.

the first time one was a-coming in (back in 2005), I actually thought I was having a hot flash. (lol)

yes, I definitely feel *something* but not sure I can quantify it beyond that.

yes, it gets harder to move around, I feel sluggish and heavy, and achy,and cranky and HOT.

I like your description of tight-stretched skin, it's sort of akin to that, except I suddenly feel restless, like something is PRESSING in (or down) on me.

naturally, my mind being curious, and noting that EVERY time I have had that feeling, soon afterwards, a storm soon breaks over us, I have mentally ascribed it to possibly a low pressure area being forced down and east...

I actually feel much RELIEF when the pouring rain starts, and have been known to dash outside, and stand there in the drenchpour, glorying in the release of pressure, the coolness, and (maybe?) the extra ozone in the air...

so, whenever I start getting that feeling, I mention it to hubby, and he goes and closes the truck windows, and picks up any tools left lying out.

I haven't been wrong yet, lol!

:hug:

um, just because she's a nurse doesn't necessarily mean she has empathy, or understanding, or maturity...

I'm sure she does care, but she just doesn't comprehend the disease, I think.

that's completely inappropriate behaviour on your mother's part, NaeNae.

I had a similar problem with my dad and my middle son... PawPaw got along fine with my other two (who are more easy-going types), but with Matt, it was a major clashing of the wills.

shrotly after my ON partial blindness set it, he visited, and took the kids for a bit, so I could rest... an hour later, they returned, and Matt was crying... his bike had popped a tire, and Matt complained about it, and my dad SLAPPED him across the face...

now I don't hold with verbal or physical punishment of small children (Matt was 6) ESPECIALLY when done in anger, so, I asked my dad to leave, and we never communicated much again... because he's basically a miserable barstool, and I choose not to have people like that near me (or my children)

that's impossible, really, at age two... unless one puts a leash on the little ones, and even then, they can STILL find mischief, it seems.

especially with MS, it's hard to be vigilant 24/7, and your mom really should be a bit more cognizant of your condition, your exhaustion, and your limitations.

it sounds to ME (opinion time, tune out if you want, lol, little sister!) as if your mom is resentful of you being there, and is unable to communicate that to you in a calm adult mature fashion, so, she's being irritable and taking it out on you and Olivia, which is completely unfair, and inappropriate at this time, considering all the stress you are under, with the moving, divorce, and illness.

best thing I've heard all day, honey-angel-baby-girl !!

you need to be CENTERED and calm right now, and your mom's not helping.

I think I understand why your mom's acting the way she is, but it's best to not be in such close quarters with her right now.

:grouphug::hug::grouphug:

love ya, babysis... hang in there.