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Old 04-09-2016, 07:55 AM #251
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Hi guys...


Now I'm freaking out again. I feel like my life is collapsing again.



The blood and urine tests came back normal. I'm panicking as I'm typing this.


I just don't understand. My therapist ****ing says my symptoms are too strong to be physical, but all the blood tests come back normal. NOTHING shows.



Someone help. I still have this depersonalization feeling but NOTHING is showing I've had all sorts of tests done and now the copper shows normal... Am I going crazy? Is this god telling me my life is over?



I'm crying so hard and I just don't know what to do. Help.... please...
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Old 04-09-2016, 10:37 AM #252
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Originally Posted by SamG11 View Post
Hi guys...


Now I'm freaking out again. I feel like my life is collapsing again.



The blood and urine tests came back normal. I'm panicking as I'm typing this.


I just don't understand. My therapist ****ing says my symptoms are too strong to be physical, but all the blood tests come back normal. NOTHING shows.



Someone help. I still have this depersonalization feeling but NOTHING is showing I've had all sorts of tests done and now the copper shows normal... Am I going crazy? Is this god telling me my life is over?



I'm crying so hard and I just don't know what to do. Help.... please...
Sam try not to worry. Sometimes something can be slightly off (enough to try to drive you mad) but doesn't show up in testing. Don't lose faith in yourself. These sciences are not always exact.
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Old 04-10-2016, 12:56 PM #253
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Sam try not to worry. Sometimes something can be slightly off (enough to try to drive you mad) but doesn't show up in testing. Don't lose faith in yourself. These sciences are not always exact.

Thanks barbo for the reply,


I just don't know what to do anymore. I feel like I'm back at square one. My pediatrician is sending me to another neurologist for a second opinion. If he or she finds nothing then I guarantee my suicidal thoughts would be stronger again.



I feel like I should just be dead...
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Old 04-10-2016, 01:06 PM #254
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Hi Sam,

I know it is so frustrating when you want answers and none are forthcoming. That is sadly the case sometimes. If the new neurologist doesn't find anything please take it as a positive thing. I would not feel happy for you if they found something that couldn't be treated for example.

You haven't been on the lexapro very long. Positive changes in neurotransmitter levels take a number of weeks to occur. Ask your doctor how many weeks you need to take this med to see improvement. It could be 4-6 weeks is expected. After that if it isn't working you may need to increase the dose or try something else.

Hang in there Sam!
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Old 04-10-2016, 11:51 PM #255
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hi sam
I am sorry this is so hard for you right now. IT HAS TO BE FRUSTRATING when you are seeing so many doctors and still feel you don't know what is going on for sure.
yes you will have to give the antidepressants time to work.
Do you have anything for anxiety?
(((((HUGS)))))
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Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 04-11-2016, 07:04 AM #256
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Default Dear Sam

It doesn't matter how old or young we are
I understand what You are going through
WE always need somebody who is listening
And Sam
Look how many of Us are listening


I for one have gone through exactly what You are going through right now
Please do Not give up
Sam I am not one to say or write anything that hasn't happened to me
And let me tell you
It has been a Hell of a ride with doctors in my life

You are feeling what you are
I know
Because my doctors aren't listening to me

But like you
I did Not give up

Nobody was going to tell me what I was Feeling or not

No doctor was going to push another pill my way
Without doing intensive homework
I may be much older than you
I am fifty five
I remember things at the age of two
So I am told
Way to much to explain why I mention

I point I am trying to make
I knew at an early age what was the truth
And it hurt nobody believed me
Not even my own Mother

If I read correctly
Your hardcore support is your family
Am I right or wrong
This I ask you

Because if you do have somebody who is
LISTENING
And beleive in You
You have nothing to worry about

Yes someone has to get to the bottom of things

Look I just not to long ago being tested how my coagulation is doing
Because what going on with the veins in my hands and feet
None of my doctors heard of anything like my PICTURES HAVE TO SHOW AND THE WORD OF MY YOUNGEST who lives with me

and
Because of this extensive bloodwork
"I"
Not my doctors
And because I want to know what my tests revealed
"I" came across a mutation I have
I was born with it
It is called the "MTHFR DNA MUTATION
POSITIVE FOR ONE OF THE TWO (VARIENTS) TESTED
ALONG WITH A HIGH LEVEL HOMOGENOUS "

YOU READ RIGHT

well the next thing you know
Not that this is what I suggest You do
But after being with my phycotheripist for seven plus years
to help me with my deepening depression
And putting me on this that and the other and the other and the other
for some odd reason my body REJECTES so many medicines
It took forever for my body to find the right pain pill
To JUST MASK MY PAIN
As nothing turned out as expected
I have no control over that
But to live with the doctors I put my life into THEIR HANDS
and to be failed over and over again
Was enough
I am not a stupid person
Enough was enough
I was even lied to by a few of my doctors
In the end I have come to learn so many negative things about him when I began to learn about my mutation to the extent I am still not done learning
It seems like in my case
The missing folate DID ADDRESS my DEPRESSION that became very serious
What made it worse for me was the drug you are on
I am by "no means" suggesting you not try the antidepressant

But look what happened to me

Because of my mutation
Any
I mean
Any antidepressants I was on
I was not getting any benefits form them
WHY
BECAUSE of this mutation

It has been suggested
Anybody who is on antidepressants
And have TRIED slew of them
In the time with him

Ironically I stopped all antidepressants
before finding out that this mutation hinders
the effectiveness to zero
And recommended to stay on the antidepressant
And to start taking the missing

FOLATE I WAS DEPLEATED OF
and know more than fifty
Hear that
More than FIFTY PERCENT OF THE POPULATION HAS IT
it could have saved me of many things that has gone array
with this body because of this
Missing link

Turns out only one of my four children has gotten tested
I am estranged from them
But did manage to get the information to them
And like I was saying one has tested positive already
She suffered many things that the missing folate will do
along with other nutrients
Another very important one B12 B2 B6 magnesium TMG
fish oil
I think you get the picture

So upon doind EXTENTIVE HOMEWORK
"I" decided to take charge
And begun the introduction of my missing LINK

and guess what
I began to feel better
I was afraid
Me
As some who have really gotten to know me
Was AFRAID to post that I began to FEEL BETTER IN JUST THREE DAYS
I WAS AFRAID I WOULD BE LOOKED UPON AS A NUT
A HYPOCHONDRIAC
IT BE PSYCHOSOMATIC
YOU UNDERSTAND
THIS MUCH I KNOW FOR SURE
In reguards to this horrible depression I was in for three years
I started with the Lexepro
And continued to get worse

And here while I lived in this deep dark abyss
I continued therapy with my shrink
I had much time vested in him
I did not want to start all over again
And said to myself
Once he goes that's it
I'm done with the umpteen shrinks I have seen throughout my lifetime
In the very end I fired him
He thought I did not know what I was talking about
He did not go to bat for me with the insurance company
Well it did not sit well with him
It was bothering him
He tried to call me twice
After getting home
On the third call I picked up
You know Sam
When You express EXACTLY what it is you are feeling
Or how it is Your brain is feeling and effecting other areas
in your life
JUST LIKE MINE

my point here
I HEAR YOU
I beleive in what you explain

It too was difficult for me to express to my shrink
It is so deep (talking about my depression) that It too
also manifested in a PHYSICAL WAY

I DO NOT HAVE THAT VISIT FROM DOOM FIRST THING I STIR
IN THE MORNING AND have been trying to fight it off with no luck
And then there was the root cause of
"IT"
I was in disbelief
But because I share my experience
strength of which You have a lot of
and Hope
Hope I may help someone else understand they are NOT ALONE

We are listening
This you must See

We care very much about You
and the years ahead of you

You cannot see it
But you are a strong
Brave person
Who deserves to have someone in his life who believes in what only you know you are going through
ONLY YOU KNOW WHAT HAS CHANGED AFTER THE FALL
remembering it emanated from then
Am I correct in that
There are so many of us who suffer in so many different ways

Turns out my eldest who has occipital lobe epilepsy
Cause idiopathic
I don't think so
So
I just by curiosity
And most importantly
BECAUSE AFTER HER PARTIAL REMOVAL OF HER OCCIPITAL LOBE
as this mutation causes "neural tube defects"
And I found a connection
Infact highly possible

You need you support group
May it be mom
But I urge you
Please do not give up
I hear you
I beleive you
I am so proud of you
You too matter
Love
Me

Sam just wanted to add
I cannot stop thinking how badly it feels as a young man
Who knows His body like no other
But Your creator
You remind me so much of me
And brought back some hard core memories
Please Sam
Please
Don't give up the
FIGHT
you ARE strong in Spirit
That counts for something
Make no mistake
We are all carried by our Creator
One time or another in our lifetime
With much care
Me
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eva

Last edited by eva5667faliure; 04-11-2016 at 10:47 AM.
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Old 04-12-2016, 10:29 AM #257
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When we're looking for answers, every negative test result can feel like a defeat. However in the case of Wilson's Disease, the negative result is a blessing. Despite treatment, it still has the potential to lead to liver failure and can have toxic effects on the central nervous system.

Even though it's been a long time since your concussion, it is still conceivable that you have PCS and it's contributing to your symptoms. I'm glad that you are getting a second opinion from a neurologist.

I know that your therapist is convinced that your symptoms are so severe that there must be a medical cause contributing to them. It's possible that she's right and there's a missing piece that hasn't surfaced or been identified that's prevented your diagnosis up to this point, but it's also possible that she's wrong. She's a therapist, not a doctor, and she may be doing you a disservice by reinforcing this idea.
You did have milder anxiety and symptoms of depression prior to your concussion and mental health issues can get worse over time. In the past you made peace with the possibility that all your symptoms may be psychological and I know you are on board with treatment based on that idea.

I can understand your frustration. You're not seeing any results from therapy or the lexapro yet, and a medical diagnosis can sometimes mean a quick fix which is much more desirable than waiting for a response from therapy and the right dose of psych meds.
You haven't been on the lexapro for long, and you haven't mentioned an increase. It's good news that you've noticed a slight difference in your anxiety because it shows you are having some response to the med. The lexapro may just need more time and an increase(s) to cause a significant difference. Increases will be made slowly with safety in mind.

Your prescriber probably recommended you schedule your next appointment giving your current dose of lexapro a chance to work in mind, but you can always contact him earlier. If you don't already have an appointment scheduled, make one.

Things will get better with time, Sam. I know it must be hard waiting for answers and improvement. Please try to hang in there.

Kay
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Old 04-13-2016, 05:05 PM #258
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Red face

http://psychcentral.com/blog/archive...aa92b-30217765

depersonalization disorder
bizi
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 04-18-2016, 10:34 AM #259
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Default Back to a neurologist..

Hi guys..


Not feeling too well as I write this. For some reason my symptoms seem worse the past couple of days. Plus, I now have a mild headache for some reason.



Anyway, on Friday I will be heading to another neurologist. I talked to her on the phone and she said that my symptoms definitely sound like they could be physical and that I must get an EEG test. She doesn't get why NO other doctor has made me get it in the past. She said that a EEG test measures your brain waves and her past patients that had post concussion syndrome their brain waves appear to be abnormal.



So I'm pretty happy about this. If something shows on the EEG that proves I'm suffering then I would cry tears of joy. However, if she finds NOTHING at all then I'm doomed. No idea what I would do next.




If you guys have any idea on what I could be suffering with, please let me know. I am desperately looking for an answer and I NEED to feel better. I'm so sick of feeling this way and am loosing hope. The light at the end of the tunnel is closing and now I just think of life as pointless..
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Old 04-18-2016, 05:17 PM #260
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Quote:
Originally Posted by SamG11 View Post
Hi guys..


Not feeling too well as I write this. For some reason my symptoms seem worse the past couple of days. Plus, I now have a mild headache for some reason.



Anyway, on Friday I will be heading to another neurologist. I talked to her on the phone and she said that my symptoms definitely sound like they could be physical and that I must get an EEG test. She doesn't get why NO other doctor has made me get it in the past. She said that a EEG test measures your brain waves and her past patients that had post concussion syndrome their brain waves appear to be abnormal.



So I'm pretty happy about this. If something shows on the EEG that proves I'm suffering then I would cry tears of joy. However, if she finds NOTHING at all then I'm doomed. No idea what I would do next.




If you guys have any idea on what I could be suffering with, please let me know. I am desperately looking for an answer and I NEED to feel better. I'm so sick of feeling this way and am loosing hope. The light at the end of the tunnel is closing and now I just think of life as pointless..
This is awesome
Something as simple as that
Would defiantly show an abnormality
But you have to hang in
And not give up
You have an option
And you have what it takes
Not to give up
Love
Me
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