I just wrote a long *** PM reply & my pc (as I lay in bed) turned off, damns.

Anyways, to make it short so I continue to enjoy my hypnotherapy morphine...So, sorry I missed your call, what 3 weeks(?) ago? Has it been year(s) since we last spoke? The family was wedding venue shopping with Missy, her finance & MOH while i sat in the hotel sportsbar on ice. Sound familiar? I didnt save ur # on my phone & now I cannot find ur # anywhere.

I am so very happy you may have finally found someone to acknowledge your TOS pain and all other complications/conditions related to. Can't wait to hear more if this guy is good & what direction he goes with you. You/we all deserve relief even if its for an hour a day & we can smile for that hour. Yeah, whats a smile? How many muscles does it take to smile, i forgot.

So much has happened & happening the last year. This year/month is/has been devoted to:

1. Education & TOSsociety.org
2. Understanding Botulism Chemodenervation. What works, what doesn't, getting angry with the ins company not approving my wellness needs.
3. Missy's engaged with a wedding Sept 25th, 2010.
4. As you can see on our website NEUROTALK is our choice forums for not only the patient as well as the caregiver. I have been doing way too much getting this endavor together but with our BOARD OF DIRECTORS its coming to frution. So many exciting things happening. More later...
4. My SSDI hearing is scheduled for 11/10 dating back from 2002. So, any expert advice is welcome from all who have gone thru it. I signed a contract 3 years ago 15% to the att & now he send me a new contract saying the Social Security Admin approved attorneys can charge 25% to the patient. What the shitzkee?
5. I'm closing my retail doors with Cyns Beach House. Too painful to master it any more but will never give up creating new decor. Ebay, etsy & shows when I can has finally sunk in. WHEN I CAN is the key here. Not having too & paying the price & when Missy, Phil & Gramma can help set me up. No more pressure HAVING to keep up. 6. Master P & I are celebrating our 30th Anniversary Oct 27th

So, I think thats it for now...thats a lot for this month, hey?
And it wasnt short, either
Call me back so to catch up more personally
xxoo

Tam great news for you! I have moved and had to find a new dos which was very hard here in my area as it seems most docs and pain management centers where surprised of my meds and acted as though prescribing meds was wrong as they all believe in shots, I had one doc I saw through Ins. who yelled at me wondering why I was there! as he only gives shots. I found out through this new doc he could have given meds but why when he makes so much more giving shots and of course he has not have to works so hard.

New doc agreed to keep up my meds and to watch me and I am happy with him just seems that many pain docs are in it for the money and how many patients they can see in a day for shots, it could be a DEA thing also along with many who do not want the extra burden of Ins. so is it the Ins. companies who raise there prices on these docs.

I wonder if I am not getting enough meds to move more, I take enough to be able to move a little more yet the pain is still great I know I have a life time of this in my mind I just want to control my intake so I do not build up a tolerance so fast.

Tam I understand the forgetfulness I have my other half who is there for me to remember everything as I do not remember doing things like buying something online..the docs all talk to her as I try to listen but I tend to fade away, along with writing things on-line I wonder if I make any sense good thing for spell checker as I find myself not as smart as a fifth grader as of late. It is embarrassing I found myself growing up strong in numbers and history but find myself lost and in space.

I wish you well TAM! and thanks I would like the name of doc if you could pm me so I could have your doc talk to mine on some things, as he knows of RSD and TOS but I think it is scary for some docs to have a patient who has both.