Slept in ! I could not sllep last night and got up with hubby at 3am...he was off on business...then I couldn't sleep again so I tooted around NT in the night and went to bed about 5:30am! I have just been up for a bit...it is after 2:00 pm....Now I need to make myself tired so that I can sleep tonight. Big problem with sleepng like that....I did not take my pills untill now. My sugar is up and that is likely why I slept so long. My mom has called...I will have to call her back in a bit before she sends out the cavalry!! All in al I am OK. Well rested for sure!!!

has anybody heard from mark? i tried to call him yesterday, just to give him a heads up that the 1,000th post was rapidly approaching on this thread...

since he started "Today I..." (as i think it was linda who pointed out earlier), that post should have rightfully been his!!!! (it's OK, jo - you had no way of knowing with everything you've been going through [and by the way, so good to see you back - you have been sorely missed!])

anyway i am sending out a search party by way of this post. the last i remember, our dear mark was in immediate recovery from surgery to have the pain pump implanted and the pain meds themselves were not even on board yet.

my understanding is that he was having to step down from the oral meds as a part of that process. speaking from personal experience (linda can probably second this) - so NOT a fun thing to do. it can be a painful transition. a very worthwhile one, but not without its own set of problems...

on top of the sx we already have on the natch, well ... you guys get the picture, i'm sure.

mark, we are thinkin' about you buddy. hang in there and here's to the next 1,000 posts on this most excellent of threads that you started shortly after your arrival here, as i recall.

yes, i finally broke down and started posting on it. happy?

alison
"Be Brave"

MarkHope you are doing ok, and as noted, it really sucked being taken off of meds. They had me on so many different drugs I don't even remember. I had to have a daily/ hourly/ pill organizer to make sure I did not take too many or, forget to take something. I was in NY for two weeks. They slowly took everything away and were giving me methadone. It was a very lonely time. People were nice but being away from family for so long killed me. Especially because it was during 9/11. Hard to watch the planes hit while they take you off meds! What I really wanted was a drink!

Hope you are hanging in there. Luckily mines was only like a detox. I didn't need a rehab as it was more of a physical dependancy and not a craving type of additiction. Still not easy either way. Your body has to realize that you don't need the meds. Your brain continues to tell you you need them even when you don't. At least that is the way it was explained to me. I DO NOT have medical knowledge. Only my experience.

Well, now that I've made one dress for my daughter I think I will try another! Nothing crazy now! I still needed help from daughter #1! We'll see if I catch on.


Linda

Saturday was a day from hell....it was a day I spent in bed crying most of the day until 6pm....crazy??????????????? or about to crack!!!!

I am anxious about workers comp as they have found me a job within totally lame restrictions despite my doc saying I can't work....ok get it already....I am being forced back to a full time nursing job. I can't work for pete's sake I can't even cook a meal without wanting to lie down for a while. I can't always wash or clean in the same day I mean myself....lol......

I am tired of having to jump through hoops no pun intended to get comp to know I am DISABLED from work. How many notes from my doc does it take and how many tears from me!!!!

ok no more pitty party...my man got me out of bed not telling you how and we ended up going to see harry potter in IMAX was amazing but now cant wait for the next one.

next day feel a bit better but not me....when will I come back....I think I have been lost and now gone for good...the old me the new..not so improved me is in grief of job loss and the one they offered is the one I was going to university for my dream job!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!!!
idiots....

I have to rewrite my life and myself....I guess Fida kahlo (artist) could do it with her pain! She was a mexican artist with chronic back and leg pain who did really neat surreal paintings of herself in pain
http://the-athenaeum.org/art/detail.php?ID=23082
VERY GRAPHIC BE CAREFUL GUYS!!!! NO KIDS


http://www.mystudios.com/women/klmno/kahlo_self.html

http://www.mystudios.com/women/klmno...e-of-hope.html

http://abcgallery.com/K/kahlo/kahlo57.html
http://abcgallery.com/K/kahlo/kahlo61.html
http://www.oceansbridge.com/oil-pain...58802&xSec=616 (GRAPHIC CONTENT)

found this too...not frida

http://www.painexhibit.com/Themes/bu...ksonormal.html
http://news.bbc.co.uk/2/hi/health/2268417.stm
http://www.pain-topics.org/gallery.php

ok I may have to try this art thing AGIAN i suck but hey it is all in the eye of the beholder and I darn well behold

love and blessing to ya'll
hugs,
Victoira

Lin Jane... poster #1 or porater #2 it does not matter what is important is we each other to fac the ups and down with and looking down at #1000.... I feel Jo's post was truly something far more touching and shows just how little time we have on our side!

Dorrie... I have a question for you... sleep, what is that??? Ahhh I remember now it is those moments we get between doctors, lawyers, flares man I almost gogot about those pesky littlle insurance adjunctuators whose goal it is to help you in processing the claim you inquired upon some months ago... I have to say congatulations on actually gaining something that probably makes so many here envious time and again!

Horizontal One... keeping up, is just plain insanity though I do think I pharsed it to Victoria*Gibbirn** That the only way to sanity is through sanity so where does the line start or even better yet end.. I love to be able to spend the time just reading over what I have missed!

Barbara.... maybe I have a slight new definiton to TOS fo the and hope the translation comes though as I hope and not to let anybodt out, but I am Telling Babara to add some anatomy to the situation as to Calling it Thoracic reactally attached overall or in Deutsch Brustschmerzausdehnen ins rektale Gebiet, damit zu machen ein erzählt, dass sie das versuchen Barb plaese let me know how my translation has come about

Dabbo...the only part of the book that I found of use was the breathing excercise, however now I think it may be a good time to go through and explore for something I minght have missed!

Alison... I was expecting to be able to get right up an mve right into it Well I pais for it ans ended up with continual spinal headaches... when they say you have to lie flat**LIEFLAT** Thank God these are a thing are passed ! My pump has been truned up twice! I have surely over done it and I know I will be huting GOD bLESS

MarkGlad t o hear from you. I agree witht he lie flat order. I had a mylogram in 1999. They left a hole in my spinal column. I know what those headaches are like. Not fun at all. They had to do two emergency blood patches to close the hole. Continue to get better. Linda

Hell Linda, these headaches have nothing on TOS ... to further this one a bit more I think the Nurses, doctors and support staff were more than slightly convinced that I was one peg short in filling my lite-brite when I reported the pain that I had was not that of the surgery, but the TOS and RSD ... I think this just may have confused them on just how to treat the actual pain!?! so I think we need to come up with a word that represents TOS and RSD without taking away from our persoanl plight and should not be limited to just a signle individuals problems but us as a whole!

And one moral for the day , if you are on an automated rose service make sure it is the party with whom you expect the arragangement to be to be received by as well as correct billing address .... maybe also some confidentiality may just be considered !!! Now you know the sad fact is...that we all have battles , each one here are trying to get SSD, Medical assitsance, dealing with workmans comp or some trying to settle a suit with some idiotic doctor who bothched your procedure, his brother is the head of the hospitals board and their law firm scares the OJ dream team so you just lie there and suffer as they decide just who to blame it on which will most likely end up being the scrub nurse for choosing the wrong sized glove .. now watch these jokers with the florist suit win $500,000 than another $3.5 for film rights and lets think ahead of who is going to be Grand Marshall of the Rose Bowl Parade!!! I am sorry, I have been having a real hard time with **GOOBERS** attitude

If you read post 1007, pleas re-read it as there was a chnag or 10 added

Hi Mark,
ok confused thought you had goober under lock and key with your pump....I have been away for a bit...what's up my friend???? Is he rearing his ugly head agian?????
I hope not...my prayers r with you

love and hugs,
Victoria

...am on the count down. In less than 14 hours I will be at the hospital preparing for surgery. I am still at work today with no lunch break, trying to tie up loose ends...so afraid i'll forget to do something...but don't really care either!

I'm so excited!! This has been a long time coming. Please pray for me and my surgeon...

My husband is not very computer literate, but I will try to get him to post later this week. I should be home from the hospital by Friday.

Thanks again to everyone for support and advice. You all have truly been a blessing these last couple of weeks.

Lots of love and hugs,