I developed a clot in my right upper arm, completely out of the blue back in august. I was treated with coumadin but was just diagnosed with Venous TOS last week. I live in south florida but have been in contact with Dr Donahue in Boston. I have heard excellent things and I am awaiting his opinion. I am willing to travel there to have the surgery, I was wondering if anyone here has done the same? He told me I should be able to return to Florida within 5 days assuming no complications. Can someone also fill me in on the follow ups post op? He mentioned a venogram a few weeks later and possible angioplasty.
any advice would be much appreciated. very hard to find someone who has gone through this and I am happy I found this forum.