Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-03-2015, 09:22 AM #1
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Default recently diagnosed with bilateral nTOS please help

Hi guys,
I have been reading things from this forum and posting today about my symptoms.
I am software guy based out of India.symptoms started as elbows issues while working on computer. Numbness to little fingers in sleep.hand specialist says cubital tunnel syndrome.
Done many tests cervical MRI,elbows MRI,ultrasound of both elbows showing ulner nerve edema at both elbows. Doctors suggested ulnar nerve transposition survey.scheduled but I was not convinced since was having little neck pain before these symptoms started. Cervical MRI was clear .Started wrapping towels around both elbows during night ,felt better.since Jan 2015 started getting chest pain ,pain above color bone while using computers.done so many tests brachial plexus MRI but negative.Neck pain at c7-t1 increased recently with some painful movement in some positions. C7 transverse process are painful. Cervical MRI again shows nothing.
Can't do overhead activities and get parentheses on ulnar side bilaterally. Pain level is controllable at the moment with computer/driving restrictions. Before noiae had minor accident in bus.was trying to climb on upper birth,by lifting my body up with hands side.right hand slipped felt full pressure on spine near the point where our hand attached to spine.that night was painful while sleeping on side with some cracking noise and pain.it got cleared in 2 days.my question is could my tos symptoms be related to this accident which was before 3 yes or it is pure RSI.please note my symptoms of neck pain started with bumpy drive on bad road and next day my neck was stiff.nerve symptoms started exactly after 1 yr of neck symptoms. Chiro says I have sub luxation at c7 level and I literally feels something moves in some positions but MRI doesn't show anything.my trapezius are tight,tight scelenes .
Left software job this month and doing masters by thinking will switch to teaching side but now studying positive is giving me horrible time.is it possible for tos people to study and write exams?I also need to attend lectures which needs sitting in same position.
Please could anyone throw some light what could be the reason for my problems.
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Old 09-03-2015, 12:03 PM #2
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Quote:
Originally Posted by ramdas View Post
Hi guys,
I have been reading things from this forum and posting today about my symptoms.
I am software guy based out of India.symptoms started as elbows issues while working on computer. Numbness to little fingers in sleep.hand specialist says cubital tunnel syndrome.
Done many tests cervical MRI,elbows MRI,ultrasound of both elbows showing ulner nerve edema at both elbows. Doctors suggested ulnar nerve transposition survey.scheduled but I was not convinced since was having little neck pain before these symptoms started. Cervical MRI was clear .Started wrapping towels around both elbows during night ,felt better.since Jan 2015 started getting chest pain ,pain above color bone while using computers.done so many tests brachial plexus MRI but negative.Neck pain at c7-t1 increased recently with some painful movement in some positions. C7 transverse process are painful. Cervical MRI again shows nothing.
Can't do overhead activities and get parentheses on ulnar side bilaterally. Pain level is controllable at the moment with computer/driving restrictions. Before noiae had minor accident in bus.was trying to climb on upper birth,by lifting my body up with hands side.right hand slipped felt full pressure on spine near the point where our hand attached to spine.that night was painful while sleeping on side with some cracking noise and pain.it got cleared in 2 days.my question is could my tos symptoms be related to this accident which was before 3 yes or it is pure RSI.please note my symptoms of neck pain started with bumpy drive on bad road and next day my neck was stiff.nerve symptoms started exactly after 1 yr of neck symptoms. Chiro says I have sub luxation at c7 level and I literally feels something moves in some positions but MRI doesn't show anything.my trapezius are tight,tight scelenes .
Left software job this month and doing masters by thinking will switch to teaching side but now studying positive is giving me horrible time.is it possible for tos people to study and write exams?I also need to attend lectures which needs sitting in same position.
Please could anyone throw some light what could be the reason for my problems.
Please ignore typos and incorrect sentences since m doing it from my mobile with lot of pain typing
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Old 09-03-2015, 12:27 PM #3
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Quote:
Originally Posted by ramdas View Post
Hi guys,
I have been reading things from this forum and posting today about my symptoms.
I am software guy based out of India.symptoms started as elbows issues while working on computer. Numbness to little fingers in sleep.hand specialist says cubital tunnel syndrome.

Done many tests cervical MRI,elbows MRI,ultrasound of both elbows showing ulner nerve edema at both elbows. Doctors suggested ulnar nerve transposition survey.scheduled but I was not convinced since was having little neck pain before these symptoms started.
Cervical MRI was clear .Started wrapping towels around both elbows during night ,felt better.since Jan 2015 started getting chest pain ,pain above color bone while using computers.done so many tests brachial plexus MRI but negative.Neck pain at c7-t1 increased recently with some painful movement in some positions. C7 transverse process are painful. Cervical MRI again shows nothing.

Can't do overhead activities and get parentheses on ulnar side bilaterally. Pain level is controllable at the moment with computer/driving restrictions.
Before noiae had minor accident in bus.was trying to climb on upper birth,by lifting my body up with hands side.right hand slipped felt full pressure on spine near the point where our hand attached to spine.that night was painful while sleeping on side with some cracking noise and pain.it got cleared in 2 days.

my question is could my tos symptoms be related to this accident which was before 3 yes or it is pure RSI.

please note my symptoms of neck pain started with bumpy drive on bad road and next day my neck was stiff.nerve symptoms started exactly after 1 yr of neck symptoms.

Chiro says I have sub luxation at c7 level and I literally feels something moves in some positions but MRI doesn't show anything.my trapezius are tight,tight scelenes .

Left software job this month and doing masters by thinking will switch to teaching side but now studying positive is giving me horrible time.is it possible for tos people to study and write exams?I also need to attend lectures which needs sitting in same position.
Please could anyone throw some light what could be the reason for my problems.
I added some spacing for easier reading..

Does chiro do any soft tissue work along with adjustments? any top rib mobilization?
ask about it. Or find adv PT that can do those.
Also IF stim & ultrasound can be very helpful if chiro or PT have those.

some passive posture work might be helpful-
some ideas here-
http://neurotalk.psychcentral.com/album.php?albumid=422

as far as studying, be as ergonomic as possible, take breaks , keep shoulders aligned and not hunched forward..
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Old 09-03-2015, 11:15 PM #4
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Quote:
Originally Posted by Jo*mar View Post
I added some spacing for easier reading..

Does chiro do any soft tissue work along with adjustments? any top rib mobilization?
ask about it. Or find adv PT that can do those.
Also IF stim & ultrasound can be very helpful if chiro or PT have those.

some passive posture work might be helpful-
some ideas here-


as far as studying, be as ergonomic as possible, take breaks , keep shoulders aligned and not hunched forward..
Thanks for the reply.
Chiro did some spinal manipulations but after this there was an increase in chest pressure.
My left side neck near c7 has some movement which literally pulls my left ear down with pressure.can it be scm muscle issue? Not sure why MRI don't show anything. I had 3 cervical mri's , none says anything.

I am afraid of progression of symptoms. My elbows have improved a lot by regular stretches, walking. In last December my ulnar nerve at both elbows were so tense that I wasn't able to brush my teeth.But now my elbows are 80 % fine.I wear elbow braces 24/7.

I left my IT job in afraid of progression.I am just 32 yrs old and have wife and daughter dependent on me.
One thing m sure is if somehow I am able to treat my neck issue the symptoms will lesson down but had been to many spine doctors , they are clueless since MRI is clear.
Anyone having any idea on ear pulling sensation ? I don't have any radiating pain
My shoulders are quite broad and strong.I was extremely fit otherwise but this neck and nerve issues are killing me.

I want to complete 2 yrs masters program so that I can try teaching. Sitting at computer is painful.

I am not sure if its RSI or TOS issue. Doctors in India doesn't understand Tos much.
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Old 09-04-2015, 10:01 AM #5
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Hi, Akash is also from India. He is looking at getting Botox of the scalenes, but can't find anyone that does it with an Ultrasound. I think he was finding people that would do the botox without the ultrasound though, which seems risky....I did have a doctor that put Lidocaine on one side of my anterior scalene without an ultrasound though....he was very experienced and I didn't even realize that it had risks to it until reading these forums months later. He was in his 80's (Dr. Sanders) and had studied TOS all his life, he probably could have done it in his sleep though, lol.

I had botox of the the anterior and middle scalene muscles before surgery, and it was AMAZING. My traps loosened up, my arms felt strong, I honestly can't say enough good things about the botox. I would have just kept having botox, but unfortunately, nobody near where i lived would do this procedure.

If you loosen the scalenes, the traps will loosen up in response. Here are some ideas to loosen the scalenes:

Get a 4" cervical collar and wear it at night. It will help stretch out the scalenes and give you more room in your toracic outlet.

Take some aspercream and rub it on the sides and front of your neck at night. Then place a heating pad for a while under the cervical collar to further stretch/relax the scalenes. Also, hot bath with clove essential oil (antiinflamitory) and epsom salt followed by massaging mustard oil into the neck to relax the scalenes. Stretch your neck several times a day all the way around in a circle.

Get massages - I think maybe these are cheaper in India than here in the U.S.


I don't know if this place is anywhere near where you live:
http://www.indiahospitaltour.com/vas...ent-india.html
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Old 09-04-2015, 11:33 AM #6
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My version of TOS was from chronic RSIs & shoulder/neck strains.
So they can be very related.
Often TOS or soft tissue injuries do not show on MRI..
MRI is mainly to check for & rule out other problems.. extra rib/large bones..

Be sure to fully explore our sticky threads.
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Old 09-04-2015, 11:37 AM #7
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[QUOTE=Eight;1168526]Hi, Akash is also from India. He is looking at getting Botox of the scalenes, but can't find anyone that does it with an Ultrasound. I think he was finding people that would do the botox without the ultrasound though, which seems risky....I did have a doctor that put Lidocaine on one side of my anterior scalene without an ultrasound though....he was very experienced and I didn't even realize that it had risks to it until reading these forums months later. He was in his 80's (Dr. Sanders) and had studied TOS all his life, he probably could have done it in his sleep though, lol.

I had botox of the the anterior and middle scalene muscles before surgery, and it was AMAZING. My traps loosened up, my arms felt strong, I honestly can't say enough good things about the botox. I would have just kept having botox, but unfortunately, nobody near where i lived would do this procedure.

If you loosen the scalenes, the traps will loosen up in response. Here are some ideas to loosen the scalenes:



Get a 4" cervical collar and wear it at night. It will help stretch out the scalenes and give you more room in your toracic outlet.

Take some aspercream and rub it on the sides and front of your neck at night. Then place a heating pad for a while under the cervical collar to further stretch/relax the scalenes. Also, hot bath with clove essential oil (antiinflamitory) and epsom salt followed by massaging mustard oil into the neck to relax the scalenes. Stretch your neck several times a day all the way around in a circle.

Get massages - I think maybe these are cheaper in India than here in the U.S.


I don't know if this place is anywhere near where you live


Thanks Eight.I have spoken to Akash over phone last month and we are in touch.
I tried cervical collor during night time but somehow it irritates my neck muscles.
Luckily since I left my job my symptoms are reduced and pain level is 1/2 out of 10 with all restrictions e.g driving, no repetitive movements.But there is a tightness feeling in my neck.
When I raise my both hands straight above my head I don't get any symptoms but when I raise hands in front of chest I get parenthesis in my palms not sure what's the differeence in these 2 positions.
I have tried massage, it helps temporary.
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Old 09-04-2015, 12:20 PM #8
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Quote:
Originally Posted by Jo*mar View Post
My version of TOS was from chronic RSIs & shoulder/neck strains.
So they can be very related.
Often TOS or soft tissue injuries do not show on MRI..
MRI is mainly to check for & rule out other problems.. extra rib/large bones..

Be sure to fully explore our sticky threads.
Thanks Jo*mar. I was doing so well in my career but these issues has ruined everything.
Computer job was increasing my symptoms. In last Dec I was only having elbows issues.no neck tightness or tos issues. These started in Feb.I am not sure if I took decision to quit job in hurry. But my symptoms are definitely less than before .No chest pain now a days like before, no pain in pinky fingure neither parentheses.
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Old 09-04-2015, 11:31 PM #9
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Ramadas, you said:
"When I raise my both hands straight above my head I don't get any symptoms but when I raise hands in front of chest I get parenthesis in my palms not sure what's the differeence in these 2 positions."

That is actually interesting. It sounds like you might have Pectoralis Minor Syndrome. It often goes hand in hand with TOS. I was diagnosed with this along with the TOS and a Pectoralis Minor Release aka Pectoralis Minor Tenotomy. Now my shoulders are about 4 inches back from where they once were.

Do your shoulders slouch forward??
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Old 09-05-2015, 09:50 AM #10
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Ramadas, you said:
"When I raise my both hands straight above my head I don't get any symptoms but when I raise hands in front of chest I get parenthesis in my palms not sure what's the differeence in these 2 positions."

That is actually interesting. It sounds like you might have Pectoralis Minor Syndrome. It often goes hand in hand with TOS. I was diagnosed with this along with the TOS and a Pectoralis Minor Release aka Pectoralis Minor Tenotomy. Now my shoulders are about 4 inches back from where they once were.

Do your shoulders slouch forward??
My shoulders are very broad and rounded by gym. Yes they were slouching forward since I left gym before 3 years.my friend use to say me why your shoulders are so forward.but now I have improved the posture a lot and always keeps my chest bit forward and shoulder slightly back.
One more thing when I face my palms down to ground and push my palms down I get pressure in all my fingures and its because of pressure on nerve.could it be because of scelene muscles or pect minor any idea ?
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