Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 12-11-2007, 04:10 PM #101
mucker mucker is offline
Member
 
Join Date: Jun 2007
Posts: 140
15 yr Member
mucker mucker is offline
Member
 
Join Date: Jun 2007
Posts: 140
15 yr Member
Default

Hi will another day of pain is it ever going to end i ask my self this question every day you would think by now i would have answered my self. I am losing it once again it is amassing how much our brain can handle before we have break downs. It seems that at lest every six months i just can't deal with the pain or life in general i just wont to run and run and hope like hell that the pain can't catch up with me but i know i can't out run the dame demon that i have to live with. Some how i have to learn to embrace it and try and make friends so that i can move forward with life and get back to some type of normalcy but the next question i have to ask my self is this really possible or just a dream. I truly believe that every thing happens for a reason and i believe something good has to come from this i just haven't seen the big picture yet. Now that i know that my pain is coming from some were else other then just the TOS or Carpel tunnel there has to be some other treatment that can ease the pain or take it away so i can move forward with my life. But i guess that is the million dollar question once again what will they do when will they do it and is there any thing else wrong with my body. I can say now to my nieces and nephew to make sure what ever type of job they chose to do when they grow up make sure it wont hurt your body as you get older because you will pay a big part of your life for it. As i have for doing a job that i loved and made me happy to do. It was a very physical and hard job with many long hours but i have never enjoyed a job more then i did with this one now knowing what was going to happen to me i think i would have taken it a bit easier on my self. Perhaps i would have last a bit longer at my job instead of having to start over at my age now. Will i was just siting here thinking of this stuff so i thought what the hell i have no one else to say these things to so i thought i would share with anyone on here that might wont to read it. Must go now hands and arms are getting really sore so until next time take care and bye
mucker is offline   Reply With QuoteReply With Quote

advertisement
Old 12-12-2007, 05:14 PM #102
johannakat's Avatar
johannakat johannakat is offline
Member
 
Join Date: Oct 2006
Location: Los Angeles, CA
Posts: 894
15 yr Member
johannakat johannakat is offline
Member
johannakat's Avatar
 
Join Date: Oct 2006
Location: Los Angeles, CA
Posts: 894
15 yr Member
Default

Mucker- I know it is a big bummer to have a new problem...but the only way to get fixed it to locate the source and do what you can to address it. I truly hope that there is a way to address the narrowing. I don't have any dics problems (that Iknow of) so I don't know treatmnets for any of waht you have described.

I too am still in a lot of pain and at the point of deciding what to do next. I saw my surgeon for my three month follow up yesterday and I signed up for another round of scalene blocks to see if further surgery to remove the left over 4" of scalene muscle will help me or not. I do not relish the idea of more surgery, but i still believe it is significantly easier than living like this every day.

I think in today's world, everything we do is so specialized, that it is very difficult to pick a profession where you are not very hard on your body. any type of repetitive motion is difficult- and since we all work in our own little compartments, everything we do is repetitive.

I sincerely hopw you find some answers, adn with them a path to a solution. my best thoughts are with you.

johanna
__________________

.

johannakat is offline   Reply With QuoteReply With Quote
Old 12-13-2007, 12:27 AM #103
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,690
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,690
15 yr Member
Default

for mucker
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 12-27-2007, 03:03 PM #104
hairdresser hairdresser is offline
Member
 
Join Date: Sep 2006
Posts: 231
15 yr Member
hairdresser hairdresser is offline
Member
 
Join Date: Sep 2006
Posts: 231
15 yr Member
Default

Merry Christmas Mucker! How are you? Hopefully your feeling better. I hope Christmas brings you some much needed Peace and Healing.
hairdresser is offline   Reply With QuoteReply With Quote
Old 12-30-2007, 05:24 PM #105
mucker mucker is offline
Member
 
Join Date: Jun 2007
Posts: 140
15 yr Member
mucker mucker is offline
Member
 
Join Date: Jun 2007
Posts: 140
15 yr Member
Default

Hi every one hope you all had a very merry Xmas i had my house full for two days and spent my time in the kitchen cooking for those two days. Every one was happy and full and i was very tiered and in a lot of pain but just to see every one having a good time and getting along was worth the pain thank god it only happens once a year i don't think i could handle throwing that kind of a spread more then that ha ha. Any ways comp hired a new company call Crawford to take care of my schooling and return to work. She came here the week before Xmas and stayed for an hour or so and talked got to know each other a bit. All went will she called me two days before Xmas to tell me that she was sending a report in to comp saying that i should not start school or anything else until i have had the other surgery or i am off my meds. That at this time it would just be unnecessary spending on there part. I really don't think that she will make a difference that comp has there minds made up they wont me off so they wont me to start right away. I guess i will see in the new year what will happen. I still am waiting to see the neurologist i haven't heard from them so i will call before the end of the week and see what the hold up is. I wont to find out what she has to say about my back and if she feels that it is work related so i will have another fight on my hands. will got to go hands are killing me the swelling wont go down any more doesn't seem to mater what i do so bye for now.
mucker is offline   Reply With QuoteReply With Quote
Old 12-30-2007, 07:43 PM #106
momzpeachy momzpeachy is offline
Member
 
Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
momzpeachy momzpeachy is offline
Member
 
Join Date: Feb 2007
Location: NE PA
Posts: 150
15 yr Member
Default nothing but PAIN

Hi Mucker...I so here ya! I feel for ya and I totally understand. I have been miserable through the Holiday's. I wasn't in the mood for them and I'm glad it's done and over. I feel so bad though. I hate feeling this way and nobody truly understands (other than other TOS'rs). My husband has been very supportive but I know this is hard on him. I'm just not myself. I can't be. I don't feel like doing anything! I can barely use my right arm at this point. I can't drive and I hate riding in the car unless it's for less than 15 minutes. The medication I'm on helps with the pain but I'm a zombie. I was put on cymbalta and Zanaflex. It really works but I take the Zanaflex 3x a day and all I do is sleep. I'm on a low dose but man! I feel so out of it. I decided to step back a little and take less today to see if I notice a difference. OMG! I can't function without it but I can't function with it!

I am so totally bummed at the moment. Hubby is working on the house...I'm bored out of my mind (still in pain) and the kids are all gone. My In Laws took the kids all the way til Tuesday! It was a last minute thing. They decided to give me a break before I go for surgery. Now we have no plans for New Year's Eve. Hubby wanted to go out last night for a drink but I was in so much pain I couldn't breathe and drinking with the meds is not gonna go over too well. I should get out and do something...anything but what can you do when you have severe chronic pain, can't sit, can't stand, can't use your arm, can't drink, etc, etc, etc.???

ANY SUGGESTIONS AS TO WHAT TO DO? TO GET ME OUT OF BOREDOM???

My surgery is set for Jan 14th. I'm ready!

Happy New Year to everyone!

momz
__________________
momz of NE PA:
Right side TOS (Scalenectomy 1-14-08). Spinal problems. Thoracic Spine hernaited discs pressing on spinal cord and small tumor - still being investigated. A very tired mom who feels like giving up!

Wishing I could think more positive and be well again!
momzpeachy is offline   Reply With QuoteReply With Quote
Old 12-31-2007, 10:10 PM #107
tshadow tshadow is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 1,002
15 yr Member
tshadow tshadow is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 1,002
15 yr Member
Default

I have been so sick, I have been a drop out for sure.

I woke up yesterday, no reason, with less pain. Feels almost like you would if a fever broke. Inexplicable.

But I feel the pain creeping slowly back in now. I sure enjoyed the one day, though...or I guess it was just really one night. But it felt great to feel almost normal!!!

God bless everyone here, keep an eye on us all, and, I do wish you and your family and all of your pets - thank God for our sweet pets - a Happy New Year.

Tam
tshadow is offline   Reply With QuoteReply With Quote
Old 12-31-2007, 10:20 PM #108
tshadow tshadow is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 1,002
15 yr Member
tshadow tshadow is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 1,002
15 yr Member
Default

Quote:
Originally Posted by johannakat View Post
Mucker- I think in today's world, everything we do is so specialized, that it is very difficult to pick a profession where you are not very hard on your body. any type of repetitive motion is difficult- and since we all work in our own little compartments, everything we do is repetitive.

johanna

Jo, in my surgery, a lot of scalenes were left due to the depth of the muscle. I wonder if it matters. You make me wonder.

As for repetitive jobs, a point people LOVE to make is that for a 100 years, most of our population has worked in repetitive jobs in factories, typists, air plane mechanics and general assembly. Why did we get sick? I think it is a combo of the work, with over work, with a damage to the body. I think of a small micro tear in the muscles or nerves, then we go back the next day, over work, etc. Our condition is rare, but it is not to be ignored, by the lessons that can be taught, to use voice software, change up the work day, and limit work hours. This is the political aspect of TOS and other RSIs that I ponder a lot...

Happy New Year Johanna, and I am sorry that you are not better along than this point, but I actually look forward to hearing you say more positive things in the future, as if anyone can beat this thing, I believe in you. You're one hell of a fighter! Yeah!
tshadow is offline   Reply With QuoteReply With Quote
Old 01-01-2008, 05:08 AM #109
mucker mucker is offline
Member
 
Join Date: Jun 2007
Posts: 140
15 yr Member
mucker mucker is offline
Member
 
Join Date: Jun 2007
Posts: 140
15 yr Member
Default

Happy 2008 everyone. Will momz that is a very good question what to do to stop the boredom i wish i new. I have been like this for three years will mostly this last year because i no longer can drive. I really wonted to get all dressed up and go out dancing last night i use to go almost every new years eve dressed to the nines. But that is in the past now we stayed in and ate lobster and scallops wrapped in bacon and shrimp that part was great then i decided to have a drink no go i have found this past year i just don't feel for it. To day we are supposed to go to the levey its a tradition here everyone goes to the legion its the one day of the year it is open to everyone. It starts around 1pm and finishes at 12am its a great time you get to see people that you really don't get to see during the year. They have music and food its a lot of fun but i don't think i am going to make it this year i haven't been to sleep yet and it is 5:30 am the other thing is i can't sit or stand for any length of time and having to pop pain meds really sucks. I would also think that hang around everyone drinking would get to me after awhile Will seeing that i can't sleep i started to think about new years resolutions and the more i thought about it i realised that i have never made one so this year i am going to make a few starting with changing my attitude i am going to try and start looking at the glass half full instead of half empty and i have to get my sense of hummer back and appreciate what i have and what i can do and not what i don't or can't. The biggest thing is i need to break out of the shell i have aloud myself to crawl into because of this pain. So i hope that by the end of 2008 i will have accomplished these things one way or the other this is the year i am going to try and either get back to my old self or try and be a new me. Will that's it for that and momz i wish you the best of luck for your surgery this month i hope all goes well and that you will have success with it. Did any one else make any new years resolutions if so i would like to read them if yous don't mind sharing will bye for now and i hope this will be a start to a good year for all.
mucker is offline   Reply With QuoteReply With Quote
Old 01-01-2008, 12:17 PM #110
sandy1955 sandy1955 is offline
Junior Member
 
Join Date: Sep 2006
Posts: 58
15 yr Member
sandy1955 sandy1955 is offline
Junior Member
 
Join Date: Sep 2006
Posts: 58
15 yr Member
Default Boredom

My one escape is music..I love it I've rediscovered Donny Osmond over on youtube-there's a stigma to that I know....and it relaxes me when nothing else will. a change from the old boob tube, where I've seen every Lifetime movie 3 times over. .At this point I think I could probably write one for them. Someone once told me I needed to write country songs-just using my own experiences....
sandy1955 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
My Story So Far ............. Bassetcase Trigeminal Neuralgia 7 09-03-2007 03:34 PM
tell my story jimbob New Member Introductions 3 06-03-2007 11:52 PM
Placebo Surgery / Sham Surgery Stitcher Parkinson's Disease 3 05-23-2007 08:38 AM
My story Curious Weight Loss & Healthy Living 14 01-18-2007 08:19 PM
Sad Story Ike3494 Pets & Wildlife 2 10-10-2006 09:08 PM


All times are GMT -5. The time now is 08:58 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.