Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 01-14-2013, 11:21 AM #11
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Space cadet,

I never found exercising to help the brain fog. Just makes me not depressed.
I would only do walking and stretching. Actually I did some leg lifts from tracy anderson. Basically you stand in one place holding a chair and I would close my eyes due to headache. Squats around the house too. Building up time walking seems the best idea. I know you live in the city though and can be hard.

Every once in a while I get frustrated and run as fast as I can. I always pay for it the rest of the day. I wouldn't recc it but I know sometimes it feels good.

Greenfrog, Do you have a pounding headache after a flight of stairs? Like a 10/10. Even with time and getting stronger this never abates.

Also other frustrating points. Headache could be partially caused by neck injury. It does get better but not much over time. I know my brain is getting better but have all symptoms when I exercise show up (brain ones).

What exactly is still damaged then? The headache from damage in brain/ shearing? or just neck. Say 10 years later I still have symptoms when exercising? Does it mean my neck never got better or my head? Any opinions?

Thank you!
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Old 01-14-2013, 12:29 PM #12
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Hi postconcussion,

My symptoms have mostly abated at rest. Both my cognitive and physical thresholds have increased a lot, and I feel I am on the path to recovery (it has been 20 months and counting). However, I have taken things really slow throughout my recovery -- limited travelling, almost no stairs, no heavy lifting, no elevated heart rates. I have opted for daily walks (very slow and short to start, now doing 2 x 35-40 mins of pretty much normal pace every day, and gradually going faster), household chores, minor local excursions in quiet suburban surroundings. I believe this "slow and steady" approach has helped with my recovery.
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Old 01-14-2013, 03:24 PM #13
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Walking is one of the aerobic exercises that is shown to reduce the harmful neurotransmitter in the brain. I think it is called Factor P?

So light walking (go as slowly as you need to) can actually be healing for the brain.

Again, don't push it. When I first started, I was going slower than the slowest old guy at the community center who had to hold onto the railing to walk. I still did it. I only could do 15 minutes at a time before I'd start to feel really wonky. I still did it.

Over time, my speed increased and so did the amount of time I could tolerate. And walking became one of the major things I did to pass time, to keep myself sane, and to help with recovery. It's really a win-win-win in that way!
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

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Old 01-14-2013, 03:26 PM #14
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Here is the article I read that talked about substance P. http://www.wellnessresources.com/hea...tes_take_note/

Walking actually increases BDNF in the brain, which helps fight substance P.

Substance P is BAD, BDNF is GOOD!!
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
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Old 01-14-2013, 11:08 PM #15
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Thanks everyone.

One of my original questions was "What if I always have symptoms?".

Even with lots and lots of rest, I'm stuck in a nasty fog that is impossible to think through. I'm lookin for a way to break through the fog cuz rest, no TV and vitamins aren't workin for me.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 01-14-2013, 11:28 PM #16
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I had symptoms when I started. I walked through headache and brain fog for probably six months. But I would stop when I started feeling REALLY wonky, or if the symptoms started getting WORSE. Don't know if that helps?
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
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Old 01-16-2013, 08:01 PM #17
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For me, a stationary bike was the answer. At first it was hard for me to go for regular walks. Just the jarring feeling of steps against the sidewalk and overload of sensations of being outside made me dizzy.

So I started with the stationary bike for 20 minutes. Didn't push it, and slowly built up to where I now do 45-60 minutes per day of hard cardio without any problems.

Give the bike a try, but try to have someone there to monitor you. It helped me when I was unsure if I would have problems.

As for supplements, you really need to find the right combo for your specific symptoms. I find fish/krill oil, turmeric, vit B, vit D all essentials. Then I alternate neuro supps of Aniracetam with a prescription of Provigil. Both help with the brain fog a lot.

Try to get as much vitamins from foods. I've mostly cut out beef and pork. I now eat fish, chicken, and lots of fruits and veggies. Concentrating on brain friendly ones like apples and blueberries. Like 2-3 apples per day with 1 pint of blueberries daily I find helps a lot.

No matter what your condition, starting with a base of healthy, fresh foods gives you a baseline to work from.

Feel free to PM me for specifics. I hope it helps.
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Old 01-17-2013, 08:49 PM #18
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Sandwalker,

Can you tell me a little more about "aniracetam"? Can I ask my doctor to prescribe it to me, or is this a drug that needs to be purchased online? How often does it need to be taken? How long before it kicks in?

Brain fog is my most debilitating symptom. I would love to get some relief from it.

Thanks,

Nick
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 01-17-2013, 09:15 PM #19
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Nick the effects of not exercising can be hard on the body. My initial early recovery I was chair bound most of the time, it was devastating to my body. It has taken two months of physical therapy to correct the effects of both my injury and the effects of all that sedate rest. IMO light and mild would be best if you are still struggling. I really feel for you as I have watched your many posts and struggles. On an upside your posts are more articulate and have excellent structure so your language skills are showing improvement.

Hope you feel better.
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Old 01-21-2013, 08:54 PM #20
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Quote:
Originally Posted by SpaceCadet View Post
Sandwalker,

Can you tell me a little more about "aniracetam"? Can I ask my doctor to prescribe it to me, or is this a drug that needs to be purchased online? How often does it need to be taken? How long before it kicks in?

Brain fog is my most debilitating symptom. I would love to get some relief from it.

Thanks,

Nick
Hi Nick,

My biggest problem, as it sounds like yours is, has been brain fog. This is what's helped me the most with that:

I take an Aniracetam dose of 750mg in combination with 250mg CDP Choline 1-3x per day, as needed. The affects last 2-4 hours per dose. It has worked great for me and I haven't had any side effects. Both Aniracetam and Choline are considered supplements, so you don't need a prescription for them. You can find them on Amazon.

More details: Aniracetam is a nootropic. Basically, Aniracetam stimulates the functions of certain neuronal receptors by means of glutamic acid. Choline is a nutrient you can find naturally in egg yolks and some other foods. Usually when you see a mention of Aniracetam, they suggest stacking CDP Choline for better affect.

Provigil on the other hand is a prescription drug that is very expensive. It was prescribed and highly recommended by my neurologist for brain fog. I use the generic version, Modafinil which you can find much cheaper online. Modafinil feels like a much stronger version of Aniracetam. I take 100mg which lasts about 10 hours.

To prevent my brain from building up a tolerance to either, I alternate several days between each of them. This has been the best solution for me by far for brain fog.

If you have any more questions about either, don't hesitate to ask me.

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