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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-19-2013, 10:11 PM
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In the morning when I wake up it seems like it takes my brain about a hour to two hours to wake up and get out the house.I am on a sleep schedule from 10pm to 8am but I still get very fatigue?Is it I am sleeping too much now?I am not working or going to school all I do is go to MDs appointments,errands,paperwork,phone calls and just try to keep busy but I get this fatigue and be ready to go to bed by 9 but keep myself up till 10. It is like I went from insomnia to all I want to do is sleep now?
Today was the first day I had fell out and took a nap in I don't know how long!Has anyone else had this experience?I wonder how long this will last? 
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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02-19-2013, 10:48 PM
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I sleep a lot too. My doctor said my brain is still needing it for healing time.
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02-19-2013, 11:08 PM
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most of the time my brain seems to function at <50% until around 2pm regardless of what time i wake up. I get overwhelmed and anxious and cant think straight (more than usual) for what seems like forever
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**KRISTARA** Let the sun shine and everything will be fine Severe TBI with 3 bleeds, broken neck (C-2), comatose for 3 days Glasgow score of 6 from a school bus t-boning my door at 60mph in December of 2004. Extraction time took over an hour, over a week just in ICU, original expectation was permanent vegetative state.
Numerous re-injuries including being rear-ended, flipping suv, and the latest in 2011 from being slammed head first on tile floor. Still having major issues with: anxiety, depression, memory short and long term, sleeping including insomnia and hypersomnia, severe headaches 10-15 days a month, severe neck tension and pain that can be easily agitated, comprehension, problems focusing, easily distracted, irritability, skewed judgement, constantly overwhelmed, mood swings, confusion, brain fog etc etc |
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02-20-2013, 12:32 AM
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You said "I am not working or going to school all I do is go to MDs appointments,errands,paperwork,phone calls and just try to keep busy but I get this fatigue and be ready to go to bed by 9 but keep myself up till 10."
What level of intensity is there to your paperwork and phone calls ? Why do you try to keep busy ? If you are ready to go to sleep at 9 pm, why are you waiting until 10 pm ? You might need to find less stressful activities to keep busy with. If the paperwork requires a lot of reading and comprehension, it can cause fatigue. My wife made me cancel the morning newspaper because reading it would exhaust me so I needed a 2 hour nap. You might try to limit any task to 15 minutes with a 10 minute break before starting another task. Early in my recovery, I had a number of tasks that I switched between during the day. It will help if you try to recognize signs of fatigue. For example, if you are reading, if you need to reread a line or sentence, you brain has likely hit a fatigue threshold. Any time you feel like you are getting the slightest bit glassy eyed, stop, take a break and move to something else. If you catch yourself staring at a page, the wall, or anything, it is another sign of fatigue. If you need to work to find your words, take a break. Pushing through these points is not productive for recovery. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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02-20-2013, 04:12 AM
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Routine: I personally found it very good to set a routine - especially to override the insomnia by going to bed and rising at set times. Hidden work: It was not until another poster (papershoes) pointed it out to me that I was doing a lot of "hidden" work. Responding to letters or chasing down medical appointments and solicitors is extremely taxing and burns up a lot of brain power. Tiredness: Even though I now get 8 hours or more sleep - it still takes me a while to get going in the morning. But I build this into my routine - get dressed, have breakfast, take medication and vitamins,some screen time. Then do some simple housework - dishes or put the vacuam on. I may have to rest afterwards but I can work with that as part of the routine. Mainly early evenings I have to "shut down" for 10 mins where I fall asleep. Getting better is a very long process it has taken me over a year to get comfortable with what I can and can't do - for the first six months, I was still trying to live my old hyperactive, multitasking lifestyle. I realise I am not that person now
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January 2012 tripped over a power cable and life has changed - memory, mood, balance and puzzled. Now how do I fix it ? |
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02-20-2013, 09:43 AM
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Thanks Mark,
I will keep myself up till 10 because if I go to sleep at 9pm I will wake up at 5am for some reason and then I am wore out by noon. The level of paperwork and calls is intense!I AM DOING ALL THE WORK TO GET TO CORRECT MDs. I am my caregiver I have know one else(my parents are taking care of my daughter),so with that being said I do everything for myself! When I say I try to keep busy I mean that I will do crafts,color,paint,read,clean,walk the dog etc to keep myself from getting total lackadaisical and to occupy my mind on positive things. I am a few months away from 2 years and since I got medication I have felt better then the last time I can remember. I have noticed a lot of cognitive changes for the better with the rest but I will wake up and am productively good for anywhere to 4-6hours with or without doing anything. I take my vitamins,eat good,walk,rest and feel pretty good except this fatigue....Any suggestions on a vitamin I might try taking more of to get energy? Quote:
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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02-20-2013, 03:08 PM
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I think after today I figured it out....I get physically fatigued these days from doing non physical activities then moves to mental fatigue because the physical....I hope this makes some sense to what I am trying to explain....lol
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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02-21-2013, 06:01 AM
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I had went physically hard for 3 days in a row and stayed on my sleep schedule but last night I could not stay up till 10pm and here I am 5am and up!My daughter is home with me till Mon and I told her I might have to sleep a lot today because I had a busy week.She looked @ me and said the weeks not over lol.
About the sleep schedule and brain waking up...This is why I need my parents to help me with her because in the mornings I can't just jump out of bed and do what normal people do chug a large coffee and go drive her to school.I did it all last year and I was a complete mess....I could not wake up or if I did I would have anxiety from the crazy traffic and that was the start of the day with headaches and muscle spasms!
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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