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Old 06-08-2010, 11:21 PM #1
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Default Fatigue?

I feel like I'm dying tonight.

I've been getting fatigue really bad since this current flare started. The fatigue feels like it's getting worse.

Is there anything that can treat the fatigue? How do they treat it? Do they just give you uppers or something?

The last time I felt this bad was when I was recovering from mononucleosis. Back then, I'd have to sleep 6 to 8hrs after just getting up to go to the bathroom. At least with this fatigue I can still get around and not have to sleep it off, but I feel like crap.

I mentioned the fatigue to my neuro when I saw him last friday, but he didnt offer anything. The fatigue had let up for about a week or so and hadnt hit me again til the next day after seeing the neuro.

I think it's related to the numbness that I've been having with this flare. The numbness had gone away for a few weeks after I had 3 days of IVSM last month, but now the numbness has returned and brought the fatigue monster with it. (I didnt have the fatigue until after I had the IVSM)

I feel achy like you would when you get the flu. (the real flu, not just a cold) I dont have symptoms of a cold or flu, but I feel like utter crap. My body is so tired.

Is there anything that I should ask my neuro for to deal with the fatigue???
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Old 06-09-2010, 12:29 AM #2
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I take Nuvigil to keep me going. The fatigue is bad but I deal with it. I don't get much done past my workday but I manage 40+ hours a week. If I didn't have to work I wouldn't take the Nuvigil but take naps instead during the day because it's expensive to take these meds.
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Old 06-09-2010, 12:56 AM #3
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I dont work. (not skilled, havent been able to find a job since 2002...which was before I got diagnosed with MS. I seem to get bad MS flares anytime I even think of going back to school)

I guess I could get away with napping, but if I slept as much as I want to sleep, I'd only wake up to go potty and eat. As appealing as that sounds, I dont want to spend my life sleeping.

I did just have about a 40 minute nap in my computer chair...which is not the most comfy place for a nap. My neck really hurts now. My left arm is more numb than it was when I fell asleep. (wonder if that's related to the neck pain)

I'm just not used to feeling this tired and wiped out. I'm starting to wonder if there's something else wrong with me that's causing the fatigue. Not sure what that could be. Tempted to go to my regular doctor and have him check me over for an infection or something. (or go to my dentist and see if she can find anything wrong in my mouth that could be causing a hidden infection)

I guess I should be happy that the fatigue actually lets me sleep sometimes. Since I've had problems with insomnia for a long time. It's weird to be insomniac for a few weeks, and then feel like someone is secretly slipping me a mickey in my bottled water for several weeks.
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Old 06-09-2010, 10:13 AM #4
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Maybe get checked out or just enjoy the ability to rest while you have it? When we take vacations I stop the Nuvigil and just lay around all week for the most part other than going to eat or maybe one workout a day.

One of the best things for insomnia seems to be exercise early in the day but avoid it near bedtime since that stimulates the mind.
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Old 06-09-2010, 11:07 AM #5
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Fatigue is one sx I have quite often. It can sneak up on me out of nowhere with no warning, too. I feel like I've just climbed a thousand stairs non-stop. My legs feel like they each weigh 100 pounds. I can't even raise my arms long enough to brush my hair. It's debilitating. When it hits I just give into it and rest. My body is telling me it's had enough.
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Old 06-09-2010, 01:05 PM #6
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The fatigue is letting me sleep, which helps my brain somewhat, but when I wake up after 10hrs of sleep and my body feels like I've been up all night, it's not all that helpful.

I just got up about an hour ago. My back feels really sore, I still feel all achy like I've got the flu or something, and my neck is killing me. I'm supposed to go to physical therapy this afternoon, but I'm considering cancelling that. I just dont think I have the energy to do it. I definately wont have the energy to drive myself home afterwards.

My right arm and hand are also becoming numb, something I just noticed. This is just getting worse and worse. This whole-body numbness is starting to scare me. Especially since I've had some mobility problems from my legs being numb at the start of this flare.

Just called my neuro...he's "out of the office" until June 21st. ARRGGHHH!!!
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Old 06-12-2010, 01:32 PM #7
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I tried the liquid B with B12 20,000% and feel more tired then if I took my tiny 500mcg B12 8,333%.
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Old 10-27-2010, 07:37 PM #8
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Default No diagnosis

Hi my name is Tamara. I became very sick last year following surgery and just couldn't get better. Severe fatigue, fever, memory/concentration problems, dizziness, etc. They finally tested me for mono and it was positive. I am 41 years old and have been an ICU nurse for 6 years. Anyway I have been sick now for over a year. Still have fever every day, severe fatigue. They checked my mono titers again and the long term levels IgGVCA and one other have quadrupled in the last year to >8 which is as high as they measure. My doctor says I don't have mono however and she is testing me for MS. I have my MRI Saturday. My vitamin D levels are also low at 17. That is the only thing abnormal on my lab work and they have tested me for everything! I feel that all my symptoms point to chronic mono but no one seems to recognize this as a possibility. I feel as if I am searching for an elusive ghost trying to figure out what is wrong with me. I would appreciate any help.
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Old 10-27-2010, 08:39 PM #9
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Welcome Tamara, good to have you with us.

This is an old thread you came in on, so I hope others see you.

MS sometimes can take time to DX. usually, still, by eliminating other diseases.

Just about evy1 with MS has had Mono or EB in their history. I did have Mono in my late teens. It seems that the same herpes virus that causes those diseases and others, may cause MS to raise it's ugly head.?

I hope you have a good rapport with your Doc. so he/she will keep checking and treat you for symptoms in the meantime.

Stay with us and let us know how the DX process goes and how you are feeling.
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Old 10-28-2010, 08:07 PM #10
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Default Swallowing problem

Thanks for the reply. Feeling pretty stressed right now. Ive been having a weird thing happen that I'm wondering if anyone else has dealt with. I will start to swallow and then everything just freezes and I can't finish the swallow. It's terrifying like my throat is closed up and I can't breath. I just breath through my nose and keep trying to finish the swallow. Usually happens with just a regular swallow that I'm not even thinking about, not while im eating. I dont know whats part of MS and what isnt so everything is suspicious. I get dizzy oftem but its mild, a general feeling of being off balance even though im walking fine. Does any of this sound like MS?


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Originally Posted by SallyC View Post
Welcome Tamara, good to have you with us.

This is an old thread you came in on, so I hope others see you.

MS sometimes can take time to DX. usually, still, by eliminating other diseases.

Just about evy1 with MS has had Mono or EB in their history. I did have Mono in my late teens. It seems that the same herpes virus that causes those diseases and others, may cause MS to raise it's ugly head.?

I hope you have a good rapport with your Doc. so he/she will keep checking and treat you for symptoms in the meantime.

Stay with us and let us know how the DX process goes and how you are feeling.
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