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Old 12-09-2013, 10:07 PM #21
Mariel Mariel is offline
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Mariel Mariel is offline
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I have read the letters on this thread, and I'm impressed with the wisdom here. It really does help to read here!
There are a number of serious issues here, but the one that leaps out at me, related to personal experience, is that the doctor was NOT wise in giving you drugs that conflicted.
She should have at the very least looked those up to see if they fought with one another, or she should have called the heart specialist. I'm told doctors are having to limit time they spend with patients (it is even recorded, the time spent with each one, by a click on your computer record, according to one medical person who confides in me). So this may be one reason she didn't do an adequate job of correlating your meds.

I have gone now for over 16 years without anti-depressants, because I have Porphyria, and sometimes I was in deep depression. But I am glad that I am not burdened with any of those drugs and their potential side effects and interactions. All anti-depressants made me worse off, usually with deeper depression and many other side effects, one of them sending me to the ER with tachycardia (Prozac). I was in the clinical trial for Xanax before I was dx'd with the disease (Porphyria) in which one cannot take anti-depressants.
Xanax was awful. It made me almost unable to walk, semi-paralyzed. I took it two days and gave up. That type of reaction probably wouldn't occur to many here on the MS forum, but it was a big reaction that I thought you might be interested in, since you take it some of the time. For you it may be better than nothing. For me--the WALL. Whatever that means--I guess the WALL means that one must stop an activity no matter what else occurs.
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Old 12-10-2013, 08:06 AM #22
ginnie ginnie is offline
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ginnie ginnie is offline
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Default Hi Mariel

There are indeed "walls" in life. Wish I could knock them down. Sometimes I sure wish things were as they were before. I hope today, we all rally around each other. xxxginnie
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Old 12-10-2013, 10:42 PM #23
jnewk jnewk is offline
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jnewk jnewk is offline
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Quote:
Originally Posted by Mariel View Post
I have read the letters on this thread, and I'm impressed with the wisdom here. It really does help to read here!
There are a number of serious issues here, but the one that leaps out at me, related to personal experience, is that the doctor was NOT wise in giving you drugs that conflicted.
She should have at the very least looked those up to see if they fought with one another, or she should have called the heart specialist. I'm told doctors are having to limit time they spend with patients (it is even recorded, the time spent with each one, by a click on your computer record, according to one medical person who confides in me). So this may be one reason she didn't do an adequate job of correlating your meds.

I have gone now for over 16 years without anti-depressants, because I have Porphyria, and sometimes I was in deep depression. But I am glad that I am not burdened with any of those drugs and their potential side effects and interactions. All anti-depressants made me worse off, usually with deeper depression and many other side effects, one of them sending me to the ER with tachycardia (Prozac). I was in the clinical trial for Xanax before I was dx'd with the disease (Porphyria) in which one cannot take anti-depressants.
Xanax was awful. It made me almost unable to walk, semi-paralyzed. I took it two days and gave up. That type of reaction probably wouldn't occur to many here on the MS forum, but it was a big reaction that I thought you might be interested in, since you take it some of the time. For you it may be better than nothing. For me--the WALL. Whatever that means--I guess the WALL means that one must stop an activity no matter what else occurs.
Hi Mariel...thank you for your response. I am unfamiliar with porphyria but I sure am familiar with drug contradictions. I'm sorry you have so many serious health issues as well. I guess that's why we are all here together. This is a great forum.....and the other specific "groups" or diseases, I guess, are excellent as well. Esp with MS .... so many of our symptoms overlap or are "complimented" by another disease. We've all met neurologists who were so detached. I think, and this dr I had that I refer to in this post, is a young brainiac....she is really a scientist, not a doctor. And she should go back to the lab or the library or somewhere else and not deal with patients. We are whole people, not just an mri or blood test. Anyway, I'm feeling a bit better. The AD's are working their way out of my system. And from now on, no more of those. Thanks for your post. I appreciate your input and concern.
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