They say in life you have to learn to pick your battles. Unfortunately it seems like WW III is going off in my body, and I don't even have the allied forces to back me up. And PT is beyond all hope right now, even the therapist couldn't figure out where to start so I'm out $500.00 to get no where but out of the house a few times.

Since the gallbladder surgery, my right shoulder is still giving me major issues, my left foot doesn't want to 'pick up', I can make it if I concentrate on it, but by the end of the day the left leg is just worn out. The muscles are fatigued and have that kind of, ran a mile flat out and now they don't wanna go, feeling. Not really pain, just jumpy shaky tired out muscles. And my right eye seems to have lost its peripheral vision, plus my eyes refuse to focus at any distance greater than my arms length.

In short, BLAh... Now the eyes, well, nothing I can do about that, it's happened before, it clears up when it wants to, just live with it till then. So I've already raised the white flag for that particular battle.

Now the issue is really, the rest of the body. Do I try and AFO for the foot drop and potentially make things worse in the long run with as equally a possibility they'll be better in the long run. Or simply raise the white flag of surrender on that as well? Do I cry to my primary physician, or my neuro?

Do I up the anty and shell out $1000.00+ for OT instead of PT? Or do I simply except defeat on all battle fronts and get used to warming my side of the bed?

Or, as will most likely be the outcome, do I fight the body tooth and nail, and simply refuse to let it tell me what my limits are until I end up broken on the floor someplace?

Hi Starznight,

Have you seen your Neurologist lately? Is it possible you are having an exacerbation?

Hang in there

Starz, I have the exact same issue with my left leg and foot.

Foot wants to drag along.....I can deal with it when I am at home and can just slide it along the wood floors but to put on shoes and try to be out and about in public is just SO exhausting.

It's so hard to explain to others why I can't lift my foot. I just can't!

Just want you to know you're not alone. And I'm in GA, too!!

hi starz,

sounds like it's time for a neuro appt. i hope he's a good doc and a good listener. if you don't have to pay seeing your pcp might also be a good first step. seems like you need to tell your primary just what you told us and have him help you to prioritize your problems, develop a care plan and something that's financially doable.

don't give up. keep advocating for yourself. is there someone you can take with you to help you advocate and get your points across?

my new PCP is actually really, really great, with some experience with MS as well, making her awesome! The biggest problem is all the issues that have come along while waiting for the diagnosis.

I have a broken back with a bulging herniated disk, a bulging disk in my neck, tendonosis of 6 tendons across 2 ankles, tears to both ACL and MCLs in both knees, a partially torn rotator cuff in the left shoulder, a torn teres major (which while part of the rotator cuff it's towards the middle of the back and is the large muscle in the shoulder) tendonosis in the left hand... And then whatever is going on with the right shoulder now.

And those are also just the known injuries, who knows what else might be wrong that just can't yell loud enough over everything else, since I've not yet demanded a full body MRI . So that's a big reason why the PT just kind of looked at me, shrugged and pretty much tried a little bit of everything just trying to seek out a starting point.

The pain mgmt and PCP are both in the same boat. And even the ortho is on the fence on whether I could expect any improvement to risk surgery on any of the injuries. Which the foot could be an exasperation of ms or it could be that one of the tendons finally snapped to the point of requiring surgery.

But I believe I will call the neuro on Monday, just to see if they'll see me before May, or rather if they think they can actually do something aside from lending 'emotional' support. My friends and family provide that for free, what I need is physical support... A working body , or at least enough plastic, titanium, and nylon to fake it.

OMG starz,

that all sounds awful. were you in a car accident?
i remember when i went to my ortho doc who was going to do my back surg.
he started me on PT and i wasn't tolerating it well. so, kind of got labelled that i wasn't trying hard enuf.

when i went to the neurosurgeon, he said he wouldn't have tried PT til AFTER the back surg. that's why i couldn't do it. and sure enuf. after the surg i rather breezed thru my PT. everyone was surprised, including my dr and PT's and friends. and, me.

you could make a bucket list and prioritize the "repairs". then just take one thing at a time. i hope your dr can help.

Didn't get a chance to call the neuro this week, raining and pouring in the figurative sense, all this week. For whatever reason everything just seems to have "blown up" between the hours of 8:00-5:00. Even tomorrow I'm stuck, hoping I can squeeze a phone call in.

Sheesh... I really...desperately...NEED a hug-me-jacket right about now. Especially with the body being so uncooperative. And my normally understanding family members all seem to have taken the same crazy pills this week, pills that make them look at me like I am Wonder Woman! Honestly fully healthy this week would have sent me to an early grave let alone the state I'm currently in.

Normally I wouldn't spoil them so much either, but I did end up putting down my parent's dog (well me and my mother did) so got guilted into spoiling my dad a bit (lots), and my mom as well (though just a bit) but still dealing with my DH and his 2 broken legs... (Looking for a gun...)

My leg is exhausted, heck I am exhausted, and tomorrow I'm going puppy 'shopping' aka pound diving with the folks to help pick out their new baby and please dear lord help me find a nice long living thing that will last until my father dies or has dementia bad enough that we can swap out the pups, which would be ever so much easier if my mom would go for a purebred, I mean good luck finding body doubling mutts.

I'm ready to pick a battle with a bullet train. But this week shall pass, next week CAN'T be any worse. Any maybe, just maybe the neuro will be nice and have me committed! I'm ready to take the happy pill and twiddle my knees and toes and I'll be so happy to see those nice young men in their bright white coats so come and take me away ha ha!

Sorry slight mental break but at least for this week, with all the craziness, my battle has currently been set to fight to the last dying breath. It's just catching up to me far quicker than even I could have imagined and I could very well be rattling even more malfunctions off to the neuro by Monday morning.