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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#26 | |||
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Managed to get to see neuro yesterday. Guess what I sensed the population of N Ireland has not allowed them to see any cases with my extreme conditions. However he was able to confirm pred has not kicked in and has approved a level I found worked at 120mg every 3 hours. No weakness anywhere but a little muscle flutter and eye flutter .Can put up with that for the moment. Might make an interesting poll how large a population does your neuro see to allow him to be an expert in your condition. Perhaps that is why in the Us there is such a wide variation in the time of diagnosis . |
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