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Old 01-08-2011, 10:33 PM #1
Tracy9 Tracy9 is offline
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Join Date: Dec 2010
Posts: 166
10 yr Member
Tracy9 Tracy9 is offline
Member
 
Join Date: Dec 2010
Posts: 166
10 yr Member
Confused I'm just SO crashed....

I have been completely bedbound this week. I am generally bedridden, but my symptoms have been so much worse this week. I have Chronic Lyme Disease, and was just diagnosed with MG after telling my Lyme doc, who is a neuro, that I have been having choking problems. He ran the bloodwork for MG and I was positive. I would guess I've had it at least two years based on symptoms, but who knows. Could be between 2-3 years.

Anyway I had IVIG on Mon and Tues, which I get for small fiber neuropathy, another lovely disease I have. This was caused by Lyme disease and Bartonella, another tick borne disease. I believe the MG probably was too, as autoimmune diseases can be caused by long term bacterial infections.

Anyway, it's hard for me to know which symptoms are attributable to Lyme and which to MG, though some are very clear. Since I've had my IVIG this week, I cannot do anything. My hands don't work (except to type.) I can barely close them, they are too weak to hold anything, my whole body is extremely fatigued, I am too weak to be out of bed, I'm achey off and on, I sleep almost round the clock. If I get up I'm shaking I'm so weak.

Anyway I'm so used to attributing these kinds of symptoms to Lyme disease, I dont' know if they might be MG related. I have had periods like this regularly off and on over the years, sometimes lasting months. My Lyme doc took me off my antibiotics two months ago to see how I did and I am definitely worse without them. And it's not unusual at all for IVIG to kick my butt for the rest of the week. It doesn't always, but it can.

The thing is, after Day 2 of IVIG, I had a friend spending the night as she traveled home from a holiday trip. She kept me up until about 3 am talking and I was EXHAUSTED, not feeling well, but didn't want to say anything. I feel like that was part of what put me into this crash.

I guess what I'm wondering is if any of this is part of MG symptoms. I am so used to everything being "Lyme", that I am confused now as to what really isn't. I understand the choking, breathing problems, blurry vision, weak hands, weak arms and legs, talking issues are all MG. But the rest confuses me.

Oh and yesterday my vision reverted back to very blurry all day. I was so excited it had gotten better with the IVIG !!! Do these symptoms randomly come back to visit here and there when you aren't feeling welll? That scared me, is it here to stay? I was just getting used to the joy of sight again.

Thanks, I just have so many questions....hoping for some insight.
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