Thank you, Annie. I appreciate it. I haven't driven now in about 2 years except in emergencies. I think the thing is, I've been this way for a while. It's not new. I can look back and tell you last year, I raced to the ER once unable to breathe. I was diagnosed with bronchitis, even though the breathing treatments only seemed to make me worse. The inhalers they prescribed only made me worse. When they finally prescribed Prednisone I could breathe again. But I was sent home and just lived with it until they prescribed the Prednisone. I'm wondering if I knew I had MG, if they would have treated that differently. I've never felt closer in my life to not being able to breathe at all except for a couple weeks ago when I passed out at the lab. Again, this was days before my diagnosis and I just could not breathe.

So it's that my neuro called with the dx, asked me to get a swallow study which I've now done, and that was it. I need to make an appt to go see him. I've been living at this degree of debilitation for a really long time. But it has been getting progressively worse the last two years, and is at it's worst now.

Everything I know I've learned on the internet. All he gave me was the name of the disease. I'll get in to see him next week for sure. I wish this complete exhaustion would lift. I can barely hold my arm up or even type. Thankfully my breathing has been okay, because I haven't been talking. Talking seems to be directly related to my breathing going south. Well, it's been okay for the most part because I've been quiet, but if I start talking it starts to go downhill.