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Old 01-29-2013, 01:30 AM #14
AnnieB3 AnnieB3 is offline
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Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Seishin, Yeah, maybe bring some pliers next time to dislodge the arrogance that's stuck in their whatever. You can't tell by looking if someone with MG is okay. What a moron. Sorry, guys, but sometimes doctors deserve that. I guess "all his years" in medicine didn't really help him help you. Sounds like an insecure doctor more concerned with his ego than your health care.

I added something to my other post about this. You could've asked him if he can tell by looking if a cancer patient is worse or if a kidney transplant patient's kidney isn't working or if a patient no longer has pneumonia. Objective tests are the ONLY way - plus a good clinical exam - to tell if an MG patient is okay.

And it sounds like it was more of a battle than a patient-doctor team, calmly trying to figure out what is best for you. Once you go down that road of arguing with a doctor, it hardly ever ends well, unfortunately. On the other hand, they should have listened to your concerns because that is your right as a patient too. Oy.

Can you do a new post, when you feel better? I don't want your concerns getting lost in someone else's post. Your treatment was ridiculous. No, the MIP and MEP are NOT increasingly lower in normal people. When my MG is okay, my readings are the same exact readings over and over again. Good grief.

Talk to your primary doctor about the GFR. 57 is getting low and you might need a referral to a nephrologist to make sure all is well with your kidneys.

There are a lot of causes of a higher than normal hemoglobin. Again, see your primary doctor so they can help you figure all of this out.

http://www.mayoclinic.com/health/hig...SECTION=causes

Don't talk too much right now because that makes breathing worse.

Last edited by AnnieB3; 01-29-2013 at 01:52 AM.
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