Parkinson's Disease Tulip


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Old 06-27-2014, 02:49 PM #31
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Originally Posted by GerryW View Post
I get my products from CHK Nutrition. DBS Labs, who do the tests, will only allow CHK products since store bought products may vary from the labeled amounts and it needs to be consistent. I am a pharmacist so I buy at wholesale. Normally CHK deals only with practitioners who mark up the products before charging the patient. That said, I currently take 7 tsp (equivalent to roughly 50 capsules) of D5 Mucuna 40% powder daily. A 540 g jar (216 tsps) costs me $175. D5 (5-HTP) is $64 for 240 capsules. I take 2 capsules per day. TyrosineReplete is $26 for 180 capsules. I take 18 per day. It also comes in powder which is cheaper. CysReplete is $30 for 180 capsules. I take 6 per day. So a month's supply is roughly $296 at wholesale given my present dose. As I said, your practitioner may mark up the price, and pending the lab tests my dose may change. When you reach what they call phase 3 your dose is more or less fixed after that.

I was diagnosed with PD in June 2011. Since then I have explored about every healing modality out there but have eschewed prescription drugs. The neurologist, after the 10 minute diagnosis, prescribed ropinirole, the dopamine agonist. Being a 64 yo pharmacist, drugs scare me, so I never filled the Rx and I never went back. Unfortunately, nothing had helped the symptoms which got worse. When I say I feel almost normal now I mean I took my dog out for a mile walk for the first time in months. I used to dread just stumbling to the mailbox. Just getting out of a chair was a chore. My postural instability has corrected so I no longer experience retropulsion or have to hang on to things. I still have a slight left thumb tremor once in awhile but nothing bothersome and nothing like the shaking before. The method claims that once the proper balanced combination of aminos is found the results are rather sudden. That was true in my case. I went from fairly disabled to functional in a day!

I can't compare this to what I might have experienced with the ropinirole but at this time I have my life back. This method, however, claims to eliminate sife effects. So far so good. It also claims to stop or drastically slow down the progression. Time will tell.
I have Parkinson's and I'm starting the same protocol you're using. I was curious how you were taking the D5 Mucuna 40%. Specifically, do you take it on an empty stomach, avoid protein until it's absorbed, etc. Any tips you've learned along the way would be greatly appreciated since I'm just starting this process.
Thanks
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Old 06-27-2014, 08:03 PM #32
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I have Parkinson's and I'm starting the same protocol you're using. I was curious how you were taking the D5 Mucuna 40%. Specifically, do you take it on an empty stomach, avoid protein until it's absorbed, etc. Any tips you've learned along the way would be greatly appreciated since I'm just starting this process.
Thanks
I have found the D5 Mucuna dissolves well in water but I usually use almond milk. Eating is tricky as eating too much without enough liquid slows the onset probably by delaying stomach emptying. I am not sure if protein affects it. I find that if I take it about a half hour before I eat and I don't eat too much, it works fine. Tyrosine is quite a bit less soluble so I blend it with the mucuna in almond milk or sometimes orange juice. Best of luck with the program. It has worked well for me.
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
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Old 01-08-2015, 10:24 AM #33
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Default hLevodopa-related cysteinyl-glycine and cysteine reduction with and without catechol-

http://www.ncbi.nlm.nih.gov/pubmed/24390153

Levodopa-related cysteinyl-glycine and cysteine reduction with and without catechol-O-methyltransferase inhibition in Parkinson's disease patients.
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Old 01-15-2015, 05:14 PM #34
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Default A question on your protocol

Hi Gerry,
I hope you are still doing great with the Mucuna-Tyrosene-D5-Cys protocole.
I was diagnosed in 2003, refused to undergo regular treatment and tried several alternative treatments, from acupuncture to stem cell treatment in Germany and finally mucuna and aminoacids.
A question for you: I have been in an almost similar protocol for over a year, with 1 additional teaspoon of Mucuna, 8 instead of your 7, D5 two daily capsules and Cys also six per day... but... I have not been doing great and I believe the problem is the Tyrosene, which I am actually in 6 Tablespoons daily. My doctor is away until the end of the month and I strongly believe that my intake of Tyrosene is way too high. Do you happen to know what an excess of Tyrosene can produce? I am not okay, on and off and not doing great, even though I went through a lot of laboratory tests, 6 of them, with no much improvement. I am still experimenting in the dosages with my doctor's approval.
What is your dosage nowadays? Any information will be greatly appreciated!.
Thank you!
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Old 01-15-2015, 06:24 PM #35
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Hi Gerry,
I hope you are still doing great with the Mucuna-Tyrosene-D5-Cys protocole.
I was diagnosed in 2003, refused to undergo regular treatment and tried several alternative treatments, from acupuncture to stem cell treatment in Germany and finally mucuna and aminoacids.
A question for you: I have been in an almost similar protocol for over a year, with 1 additional teaspoon of Mucuna, 8 instead of your 7, D5 two daily capsules and Cys also six per day... but... I have not been doing great and I believe the problem is the Tyrosene, which I am actually in 6 Tablespoons daily. My doctor is away until the end of the month and I strongly believe that my intake of Tyrosene is way too high. Do you happen to know what an excess of Tyrosene can produce? I am not okay, on and off and not doing great, even though I went through a lot of laboratory tests, 6 of them, with no much improvement. I am still experimenting in the dosages with my doctor's approval.
What is your dosage nowadays? Any information will be greatly appreciated!.
Thank you!
I continue to do well on it. My doses ended up at 9 tsp Mucuna, 5 tbl Tyrosine, 5-HTP 1 capsule, and 6 capsules l-cysteine per day. Small variations in dosage, even a few hundred mg plus or minus, can unbalance and negate the results. I tried another tbl of Tyrosine but could not tolerate it. I have tried to cut back but that didn't work, either. Be sure to allow 5 days to judge the effect of a dosage change and have your doctor consult with doctor Hinz. It can take some time to get the balance.

Tyrosine is meant to eliminate the on-off episodes but the dose needs to be calibrated. BTW, the doctor's website has changed a lot. See www.neurosciencemyths.com.
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
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Old 05-06-2015, 10:17 AM #36
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Default Works Great but expensive

Hey Gerry,

I am on the Hinz Protocol and doing very well. Started last summer 2014 and I'm still tweaking my dose a little. It took about 5 or 6 months to get me to what I describe as a night and day difference from where I started. My current dose is as follows: 37 grams of Mucuna (about 15 tsp) divided into 6 doses every 3 hrs. 32 grams of Tyrosine (4 tbl) mixed in with my mucuna, so it's divided into 6 doses as well. 3 capsules 5-HTP and 6 capsules L-Cysteine per day. Plus some B6 and Folic Acid. As you can see I'm on the higher side of the dosing averages. There in lies the problem. The Mucuna cost is killing me. I found a good quality tyrosine source that's much cheaper. I use about 4 tubs of Mucuna (270G) a month that cost me almost $200 a tub after you figure in shipping. That's about $800 a month just for Mucuna. I know you are a retired pharmacist and you've been able to purchase yours directly for a much better price. There was a recent price increase, I'm not sure if you experienced that. What are you paying for your Mucuna these days? Do you have any ideas at all on how I can cut my costs? I also don't feel really comfortable having only one source for Mucuna. What if they went out of business or something crazy. This works so well and I feel so much better I could never go back to the old meds. Any help would be greatly appreciated.

Thanks, Michael
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Old 05-06-2015, 11:19 AM #37
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Originally Posted by NoMedsNow View Post
Hey Gerry,

I am on the Hinz Protocol and doing very well. Started last summer 2014 and I'm still tweaking my dose a little. It took about 5 or 6 months to get me to what I describe as a night and day difference from where I started. My current dose is as follows: 37 grams of Mucuna (about 15 tsp) divided into 6 doses every 3 hrs. 32 grams of Tyrosine (4 tbl) mixed in with my mucuna, so it's divided into 6 doses as well. 3 capsules 5-HTP and 6 capsules L-Cysteine per day. Plus some B6 and Folic Acid. As you can see I'm on the higher side of the dosing averages. There in lies the problem. The Mucuna cost is killing me. I found a good quality tyrosine source that's much cheaper. I use about 4 tubs of Mucuna (270G) a month that cost me almost $200 a tub after you figure in shipping. That's about $800 a month just for Mucuna. I know you are a retired pharmacist and you've been able to purchase yours directly for a much better price. There was a recent price increase, I'm not sure if you experienced that. What are you paying for your Mucuna these days? Do you have any ideas at all on how I can cut my costs? I also don't feel really comfortable having only one source for Mucuna. What if they went out of business or something crazy. This works so well and I feel so much better I could never go back to the old meds. Any help would be greatly appreciated.

Thanks, Michael
Michael, you can get many suppliers @ alibaba.com of 40% Mucuna. There is a 25kg minimum which is dirt cheap compared to your current usage. 30USD$ per Kilogram x 25kg + F.O.B. About what your paying for a months supply.
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Old 05-06-2015, 02:58 PM #38
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Originally Posted by NoMedsNow View Post
Hey Gerry,

I am on the Hinz Protocol and doing very well. Started last summer 2014 and I'm still tweaking my dose a little. It took about 5 or 6 months to get me to what I describe as a night and day difference from where I started. My current dose is as follows: 37 grams of Mucuna (about 15 tsp) divided into 6 doses every 3 hrs. 32 grams of Tyrosine (4 tbl) mixed in with my mucuna, so it's divided into 6 doses as well. 3 capsules 5-HTP and 6 capsules L-Cysteine per day. Plus some B6 and Folic Acid. As you can see I'm on the higher side of the dosing averages. There in lies the problem. The Mucuna cost is killing me. I found a good quality tyrosine source that's much cheaper. I use about 4 tubs of Mucuna (270G) a month that cost me almost $200 a tub after you figure in shipping. That's about $800 a month just for Mucuna. I know you are a retired pharmacist and you've been able to purchase yours directly for a much better price. There was a recent price increase, I'm not sure if you experienced that. What are you paying for your Mucuna these days? Do you have any ideas at all on how I can cut my costs? I also don't feel really comfortable having only one source for Mucuna. What if they went out of business or something crazy. This works so well and I feel so much better I could never go back to the old meds. Any help would be greatly appreciated.

Thanks, Michael
Hi Michael

They raised my Mucuna from $95 a tub to $218 and that is supposed to be wholesale! They said they were losing money at the old price. It looks like they are charging you less than me. I have the same concerns as you. I am afraid that the new prices will cause people to abandon what is a good program and drive them out of business. I am interested in cheaper sources, too.

Gerry
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Palmitoylethanolamide (PEA) Updated 9/21/17.
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Old 05-06-2015, 03:17 PM #39
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Michael, you can get many suppliers @ alibaba.com of 40% Mucuna. There is a 25kg minimum which is dirt cheap compared to your current usage. 30USD$ per Kilogram x 25kg + F.O.B. About what your paying for a months supply.
Hi Badboy

I wonder about the quality of the product. The one I use is white and tasteless but the one in the photo, assuming that's what it is a picture of, is dark colored.

I love the Chinese. My late wife was from China and I am still close to her family. So it is not prejudice for me to say that I wouldn't trust their herbs which the FDA says are contaminated with heavy metals, etc. from a very polluted nation. If I buy from them, and the price is tempting, I will need some independent certificate of analysis. BTW, my wife would have agreed.
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
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Old 05-06-2015, 03:55 PM #40
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Originally Posted by NoMedsNow View Post
Hey Gerry,

I am on the Hinz Protocol and doing very well. Started last summer 2014 and I'm still tweaking my dose a little. It took about 5 or 6 months to get me to what I describe as a night and day difference from where I started. My current dose is as follows: 37 grams of Mucuna (about 15 tsp) divided into 6 doses every 3 hrs. 32 grams of Tyrosine (4 tbl) mixed in with my mucuna, so it's divided into 6 doses as well. 3 capsules 5-HTP and 6 capsules L-Cysteine per day. Plus some B6 and Folic Acid. As you can see I'm on the higher side of the dosing averages. There in lies the problem. The Mucuna cost is killing me. I found a good quality tyrosine source that's much cheaper. I use about 4 tubs of Mucuna (270G) a month that cost me almost $200 a tub after you figure in shipping. That's about $800 a month just for Mucuna. I know you are a retired pharmacist and you've been able to purchase yours directly for a much better price. There was a recent price increase, I'm not sure if you experienced that. What are you paying for your Mucuna these days? Do you have any ideas at all on how I can cut my costs? I also don't feel really comfortable having only one source for Mucuna. What if they went out of business or something crazy. This works so well and I feel so much better I could never go back to the old meds. Any help would be greatly appreciated.

Thanks, Michael

IS 37 GRAMS OF 40% MUCANA 14.8 GRAMS OF L-DOPA?
how in the world can anyone take 14.8 grams of l-dopa in one day? it has to be less than 40%. maybe i'm missing the boat.

heck, for $800 a month you could buy a green house and grow your own or pay a chemist to take bulk mucana and concentrate it or do it yourself.
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