I was in your boat as well.

I had a flare back from Oct - Dec 2014.

Just the other day I started back again but so far it's been mild.

Every flare has seem to lessen in length and intensity so that's good news.

Hope you get a bit better soon, or dr might find out what's wrong first. I don't have much hope with the drs though, they think I'm crazy for blaming the vaccine. But I was fine before this..

Do you find your symtoms qorse at night or during the day ? I find when I relax so whenever I get a chance to or at bed time. It's
Worse for me.

It really depends. But I would say it stays the same during the day. Just this nagging feeling.. And tonight I woke up again with tingling in my hand. At first I thout I just laid too long on it but when I shook it, my other hand and my leg started tingling too.. My body is doing what it wants it seems...

I had some crazy stuff happen in the first few months.

There was a few weeks where I was wearing wrist supports 24/7 as well as soft elbow supports to bed to lessen my hands falling asleep. I really looked like a freak.

It was like another day another symptom...i felt like my body was shutting down.

As long as your syptoms are moving around your body and there is no weakness don't worry.

Also not perceived weakness... actual weakness like stumbling or can't hold your keys.

After having an EMG and my neuro stating in her notes that it was due to anxiety I quit going to the doctor.

Like I said you won't heal overnight.... It will take sometime.

I am much better than I was about 2 years ago... Plus the flares of symptoms have come less pronounced.

I am almost 100% physically back to normal though... Playing basketball, walking and lighting weights with no pain or issues.

Also the deep depression I was in for 4-6 months when this all happened in 2013 has lifted and I am back to my old self.

You will heal... Again it won't be overnight.

Would you say you are getting better overall?

I wouldn't retest for MS unless your Dr thinks it is necessary because of the contrast/heavy metal.

From what I have read it's doubtful you have MS because it doesn't seem to follow what you are describing.

Unless your symptoms stay in one area or you are having visual or balance issues I would not worry about MS.

There are over 15 million Americans with some form of peripheral neuropathy... I am guessing that number is low because most folks just live with it.

The dr wanted to retest for ms again, but I think she is waiting for the lady that did the emg to send the letter to her . She didn't find any neuropathy when doing the emg. But i no that small fiber neuropathy doesn't usally show on an emg and somtimes it takes 3
Years or more to figure it all out from what I read about other people expeirance. The emg lady wants to do an mri on my neck but that only does the top half of the body. Not sure why not the rest of the back. My timgling is everywhere and that comes and goes at times

I find myself getting better somedayz but then other days. I'm back to square
One. The twitxhing and jerking is still around. Somdays I don't have many symtoms and feel good.

Do you notice your symtoms are the same or do you get new ones,? And do you still have the twitxhing and jerking?!

For me it travels all around. Any limb at any time. Right now my abs are twitching and there is slight weakness in my right tigh. But my weakness is just perceived. No keys dropping or trouble standing up or anything like that.
What I have noticed with my hands is that the big nerve (ulnar?) under the biceps hurts when I extend/strain the hand and put palm perpendicular to the arm (like Neo stopping the bullets if you know what I mean ). Also I had a few hour long pain inside my elbow. I think it must be connected to the nerve system but the EMG was perfectly fine according to the doctor.
Worst is that nobody takes me seriously any more. My GF says not to think about it, that I am hypochondriac, but it is kind of hard. But you know how it is....

Yep same here.

Moves around and EMG was fine.

My wife was supportive but through that and the depression I know she got tired of hearing about it.

I ended up starting a body journal about what I did and ate, exercised plus documented any issues throughout the day.

It was somewhat therapeutic documenting what was going on, for finding patterns and helped with Dr Office visits.

Outside of my wife people knew I was unwell because I lost weight (depression) and withdrew from social interactions but I didn't share it with any friends and family.

I did see a counselor which helped talk through some of it.

Anyway you sound like you went through the same thing I did.

Keep your chin up, I am convinced you will get better.

No I got new ones in the first 4-6 months.

Literally was wondering what else was going to happen on a daily basis.

I again would recommend staying away from an MRI with contrast.

Wgphat I have learned through this is to stay away from pills, vaccines and Drs unless necessary.

From what you are saying you don't sound like MS at all.

I was worried about MS at the beginning too but my Neuro told me I don't have it when she did an EMG and physical exam. She said an MRI would be a waste at that point.

Even though she thought I was a hypochondriac which helped me dismiss what she was saying I am convinced she nailed that on the head.

My fear of MS has faded to almost nill the more I read about symptoms and how it presents itself.

Unilaterally, one area and normally with balance and/or vision issues on the first flare.

Hang in there! Remember what I said before... Measure your progress in years and months and not days.

No contrast in mri: just a regular mri . Lol .I'm less stressed about this, then when it first happened . I still do everything I have did before . I had my emg and the lady looked at me like I was crazy, when I said i down hill ski and she was like this? And I said yes. Lol I said I don't have weakness , but everything else. Do you guys feel like ur wearing somthing on ur shins and lower arms as
Well?

Is that the nerve near the funny bone? When I had the nerve conduction test 2 months ago , I had a pinched nerve with a nerve by the funny bone. And then carpel tunnel on the right hand. Funny thing is. I wonder if this is all connected to these problems? Some of my fingers were sore when pilling back. And same with my left leg, for a long time. My toe and couple other toes, something hurt when stretched?

Just curious, did you guys have a nerve conduction test or the emg where they stick the needle in ur muscle?