I'm new here and looking for some advice.
I'm 42 and recently diagnosed w/severe motor/sensory nerve damage in feet and legs. I've seen two neuros and both have said my case is confusing. I'm looking for some advice as I have no real dx besides polyneuropathy and no plan except to up meds as needed.

Hx
About 12 years ago I had a sudden onset of leg and arm fatigue/weakness. They were looking at MS at the time and after a few years of testing and no answers, I stopped going. My legs have been weak since then but I was capable of working/hobbies/sports.
Two years ago sensory issues started with some burning of my feet - they became red and hot after by the end of the day. Left side has always been worse.
Around Easter of this year, I became a different person. A sudden attack of electric shocks, burning, pain. I didn't sleep for a month due to pain/cramps/twitching/shocks. At the same time I was diagnosed with Diabetes. All of my doctors have said the neuropathy is not caused by diabetes but probably aggravated by it. Since, I have started meds and sugars are controlled w/no relief of symptoms. I believe my sugars have been high for maybe a year max.

I can no longer work, wear shoes except flip flops, walk or stand for long. Taking a shower feels like an event now and at times cant stand the feel of water on my feet. The fatigue and weakness just gets worse - it now takes several days to recover from standing or walking too long - like going to the store AND cooking dinner. Cramps and visible twitching if I do too much. I had a calf cramp recently that lasted 5 days without relief.

I don't know all the details of my EMG but that my motor damage occurred first and is worse than sensory and both are severe. My brain MRI is unchanged from 10 years ago. Blood work fairly normal

My first neuro prescribed gabapentin and tiazidine. I guess they take the edge off at times but not sure they make a huge difference. I was referred to specialist who did 2nd EMG and confirmed my 'confusing' case. Told me to call if I get worse. Said it could be genetic but no further testing is needed. Said I could do spinal tap but would probably not show anything. I have not had lower back MRI done.

Any advice is greatly appreciated as I feel quite hopeless. I have no plan/prognosis/etc.

Thanks!
Carrie