[Marianolp]

I started with pain in my foot and his fingers 7 years ago. I described like sunburn pain at the moment and went to a Dermatologist for nothing. Later i went to a GP who give me blood test to do and EMG. All ok. the pain/sensibility dissapear on 2 months maybe , the following years i reasearched with new GP and neurologist for nothing, year after year the pain seems to be more spaciated (good news) but the last year in nov i started with a big pain even in new parts of the body and was very consistent since then . This sounds like neuropathy? neuropathy comes and goes and can be a fixed pain after years?- The only exam is positive is QST but i dont know if is confideable.

[Cliffman]

Originally Posted by Marianolp

I started with pain in my foot and his fingers 7 years ago. I described like sunburn pain at the moment and went to a Dermatologist for nothing. Later i went to a GP who give me blood test to do and EMG. All ok. the pain/sensibility dissapear on 2 months maybe , the following years i reasearched with new GP and neurologist for nothing, year after year the pain seems to be more spaciated (good news) but the last year in nov i started with a big pain even in new parts of the body and was very consistent since then . This sounds like neuropathy? neuropathy comes and goes and can be a fixed pain after years?- The only exam is positive is QST but i dont know if is confideable.

You could ask the neurologist to run a skin biopsy test...that would be more definitive (95% accurate) in determining if you have SFN or not.

Cliffman

[Marianolp]

Originally Posted by Cliffman

You could ask the neurologist to run a skin biopsy test...that would be more definitive (95% accurate) in determining if you have SFN or not.

Cliffman

Ok i didnt know it was that accurate but i dont know if is easy to do. I will see tho thanks man.
If this biopsy and other specific studies turn negative it means that is a mental problem like a psychiatristc told me?? I dont believe in that crap. I didnt feel as my worst metal year but my worst in term of that problem. I dont trust in psychiatrist. But my neurologist think on psychiatric before did the test and how it was positive he I discard the option

[madisongrrl]

I don't think the biopsy is 95% accurate if you take into account that the biopsy might not be taken from the site of the damage. I've seen lower accuracies quoted. You can have a patchy distribution of SFN and sometimes neurologist will take 1 or 2 biopsies from your leg or foot only.


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[madisongrrl]

Maybe a better way to think of it is the biopsy is highly accurate only if they get the precision correct.


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[glenntaj]

--madisongrrl has a point--and looking for posts under my name will bring up a lot of explanation as to how, given the protocol and standards, sometimes the interpretation of skin biopsy findings can lead to one being designated one is "normal" erroneously--but at least the skin biopsy is easy to do: a few shots of a local anesthetic, 3mm patches of skin removed, a few band-aids.

It's the processing and interpretation that is tricky--special stainings and electron microscopy is involved, and only a few centers have these AND people trained in what to look for.

[Marianolp]

Thanks guys, i have one last question.
in case of not having many medical tests that prove the disease, there are specifications to see if pain is neuropathy or something else?.

For example.

*The pain comes and goes by seasons,
*The pain improves with a good distraction
*The pain improves after a good sleeping
*The pain is the same after your training.

Those were just few examples. My question is if there are specifications medically recognized.
I already did a lot of MRI, EMG, one QST many blood test but of course i will continue with test the next years and i want to know if somebody have idea of what i asked. Thanks!

[Ragtop262]

Originally Posted by Marianolp

Thanks guys, i have one last question.
in case of not having many medical tests that prove the disease, there are specifications to see if pain is neuropathy or something else?.

For example.

*The pain comes and goes by seasons,
*The pain improves with a good distraction
*The pain improves after a good sleeping
*The pain is the same after your training.

Those were just few examples. My question is if there are specifications medically recognized.
I already did a lot of MRI, EMG, one QST many blood test but of course i will continue with test the next years and i want to know if somebody have idea of what i asked. Thanks!

There are a few things that are somewhat common with SFN pain - like the pain is typically is worst at night. But none of these "prove" SFN. As you read the boards here, you will find a huge variety of symptoms - literally everyone is different. As far as I know, the only thing that really "proves" SFN is a skin biopsy. (But even then - it has to be taken from the affected area, and prepared/evaluated properly in order to be accurate.)

[Marianolp]

Originally Posted by Ragtop262

There are a few things that are somewhat common with SFN pain - like the pain is typically is worst at night. But none of these "prove" SFN. As you read the boards here, you will find a huge variety of symptoms - literally everyone is different. As far as I know, the only thing that really "proves" SFN is a skin biopsy. (But even then - it has to be taken from the affected area, and prepared/evaluated properly in order to be accurate.)

Ok thank you man. I heard before "the night" thing but i dont know how it could change somewhat he