Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 09-03-2009, 09:18 PM #1
numb numb is offline
Member
 
Join Date: Nov 2007
Posts: 160
15 yr Member
numb numb is offline
Member
 
Join Date: Nov 2007
Posts: 160
15 yr Member
Default neck biopsy

Hi All,
In my previous post, i am concerned about having neck RSD resulted from an auto accident. My neck MRI revealed some cysts and nodules in my thyroid and my doctor suggested biopsy for two big nodules to rule out cancer. The biopsy involve 3 tiny needle sticks on each side of my neck. I am worried about this procedure that may caused additional flare or spread in my neck. Have someone done this procedure in the past? What was your experience and did it cause your RSD flare or spread? Is there any thing i can do or ask the doc to do to prevent the RSD flare or spread? I am so afraid to even consider this procedure as my RSD tend to spread easily. However, on the other hand, should i risk ignoring it and just have the cancer grow if it is cancer so that i can die and not having to deal with RSD anymore.
I would like to hear your thoughts on this and thanks for reading my post..
Numb
numb is offline   Reply With QuoteReply With Quote
Old 09-03-2009, 09:49 PM #2
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

First, off, Nice to meet cha!

Second,
I AM NOT A DOCTOR!
I think you need to consult with s/he, and find out what the odds are for what.

Now, my humble Opinion....
Yes, you may open the door for more RSD, but, if the anesthesiologist, is aware of RSD, S/He, can take some steps to avoid spread.

Do you have any history of Cancer?
I'd be Afraid of that!

RSD can change your comfort in life.
Cancer, can END your life!

Don't mess around.

Get done what needs to be done, and simply try to keep a strong upper lip, easier said that done, I know...

Talk to your doctors, ALL of them including who's treating your RSD, the Surgeon, and, the Anesthesiologist!

Get your self into a comfort zone.

I pray that all goes well for you, Numb.

Pete


asb
Pete
asb
AintSoBad is offline   Reply With QuoteReply With Quote
Old 09-03-2009, 10:08 PM #3
bobber bobber is offline
Member
 
Join Date: Jun 2009
Posts: 497
15 yr Member
bobber bobber is offline
Member
 
Join Date: Jun 2009
Posts: 497
15 yr Member
Default

Numb
I feel positive about your post,,,Itrust in God[our lord jesus]
My wife when she was 44 had some nodules found on her thyroid as well,,she freaked out and had the procedure,,she is fine and everything is benign,,,,Nodules on the thyroid is not an uncommon thing,exspecially if your a female,,,,,,and as for the procedure,,,i think you will be ok,and you can always request a continous block,,,,i sincerly hope for the best,,but ask your dr,,,nodules are very common on the thyroid,,,,,,my hope is your test will be just fine,,,,,,bobber
bobber is offline   Reply With QuoteReply With Quote
Old 09-04-2009, 01:12 PM #4
dshue dshue is offline
Junior Member
 
Join Date: May 2008
Location: Los Angeles
Posts: 97
15 yr Member
dshue dshue is offline
Junior Member
 
Join Date: May 2008
Location: Los Angeles
Posts: 97
15 yr Member
Default

First, I am sorry to hear of your additional health concerns. As if RSD isn't enough to deal with!

I can relate two experiences in regards to needles. Recently I had botox injections in my neck and my skull in an attempt to allievate pain in those areas. The botox didn't really do anything, and the procedure it self caused a flare.

More invasively, I had a diagnostic LP done a year ago, which caused a massive spread which is still with me.

That said, I would say it's a no brainer that when you are dealing with the potential of cancer, you simply must have these procedures done. There is a chance that nothing negative will result from the procedure, and a flare, while awful, is still just temporary. And a spread is, well, a spread, which would suck.

Make sure your doctors are using 27 gauge needles. The lower the number, the more likely of something negative being the result.

Good luck.

-- Dennis
dshue is offline   Reply With QuoteReply With Quote
Old 09-10-2009, 10:06 PM #5
numb numb is offline
Member
 
Join Date: Nov 2007
Posts: 160
15 yr Member
numb numb is offline
Member
 
Join Date: Nov 2007
Posts: 160
15 yr Member
Default

Hi All,
May i try to explain why i am so afraid of the needle and concern about the possible spread of RSD? I contracted RSD through an IV needle stick during one of my nerve blocks for my chronic pelvic pain (pudendal nerve entragement). A very painful condition makes me disabled and unable to sit at any length w/o pain. With that said, i am dealing with two incurable condition, that is the reason why i would rather die sometimes or find an excuse to die. However, God had been gracious so far helping me to go through each day. I am still working part time with these two horrific condition.
I will speak to my anestheologist regarding the prevention of the spread.
Thanks for the good advice,
Numb
numb is offline   Reply With QuoteReply With Quote
Old 09-11-2009, 11:47 PM #6
Dubious Dubious is offline
Member
 
Join Date: Jan 2009
Location: Paradise
Posts: 855
15 yr Member
Dubious Dubious is offline
Member
 
Join Date: Jan 2009
Location: Paradise
Posts: 855
15 yr Member
Default

I have a mirror image of your experience. Both internist recommended follow up ultrasound, neither recommended needle aspiration. Both said they are extremely common in my age group (53).

Your doc(s) are ulimately responsible and know your condition so follow their advise but I would at least see an endocrinologist for second opinion!
Dubious is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Hi guys my neck feels bit tingling and back of my neck feels and weak dannyjjang Thoracic Outlet Syndrome 9 05-04-2010 09:14 PM
skin biopsy and CMT amit Peripheral Neuropathy 1 03-26-2009 09:24 AM
Muscle Biopsy nemsmom Myasthenia Gravis 12 02-18-2009 12:34 AM
EMG and Skin Biopsy Leslie Peripheral Neuropathy 7 12-19-2008 01:07 PM
Biopsy results... Yorkiemom Peripheral Neuropathy 34 04-26-2007 09:53 PM


All times are GMT -5. The time now is 10:14 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.