Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-25-2010, 05:14 PM #7
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Holly - my husband drives me to Boston because there is no one local that I can trust to treat my RSD. Does your insurance list have anyone certified that might be further away but is any good? You might have to do some research, and you might have to travel, in order to get the best care, unless you can get these guys to just give you what you want and manage on your own....don't let "insurance restrictions" get in the way of you getting better. Good luck. Sandy


Quote:
Originally Posted by hollyk24 View Post
The doc I am seeing is the only one that is certified in my area that accepts my insurance. Thing is, I don't get to see the actual doc, he only does procedures, I see his nurse practitioner, who does all my meds. The doc is an anethisiologist. I've tried to explain to the np, but he seems to be under the impression that whatever reduces pain is good, and that doing things that excaberate things and then medicating more to tolerate it is bad. I'm not particulary happy with this place anyways, because I've called before when the pain was bad and was told "that after surgery this can happen, and that I should take some tylenol, which will reduce the sewelling and then the pain" . . . . Sadly, I have had no surgery I also have noticed that the np doesn't even look at his notes from the last visits. In jan he stopped me on the morphine because I couldn't stand it, this last appointment I told him I was eating better, and he asked me why I thought that was . . . I told him because I wasn't taking the morphine, he's all "hmm, you think the morphine made you sick?" His office even gave me anti nausea meds for it! I also bring with me to every appt a "progress" sheet I found on an rsd website, have done this at every appt, the last appt I handed it to him and he asked what it was like he'd never seen one before . . . . Ughh . . . . . I hate insurance restrictions.
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