Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-30-2010, 10:45 AM #5
lorigood243 lorigood243 is offline
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Join Date: Jul 2010
Location: Northern Virginia
Posts: 224
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lorigood243 lorigood243 is offline
Member
 
Join Date: Jul 2010
Location: Northern Virginia
Posts: 224
10 yr Member
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i am sorry your daughter is in this club

i do have internal RSD and have Gasteoparesis . se weight. i dont lose weight, im heavy, wish i did lo my GI dr had me taking Protonix as well as reglan but i still have bad acid reflux. i take promethizine for nausea. i am careful not to eat past 6:30 at night and that helps so i dont get acid reflux while sleeping.
my RSD started from having gallbladder surgery 5 years ago and i just recently figured out what was wrong with me 2 months ago. i take Neurotin, fentanyl patch and a little methadone to manage the pain. i am having a flare up now and asked my dr if i could go up on the neurotin he said yes so im on 1200mgrs a day now.
i am working on getting to a pain specialist who knows how to treat RSD. i hope to see her in a few weeks.
blessings
Lori




Quote:
Originally Posted by LordWood View Post
I was wondering if any other RSD patients that have it internal have had there RSD cause Gastroparesis. I'm having a rough time dealing with this problem as I am forced to work with my PCP doctor and he's tried all he can to help and my current Gastro Doctor I have for my crohns is not really a person I can confide in to help me other then issues with my crohns as he does not believe RSD is real even though my PCP has spoken in person with him about it. My gastroparesis when first diagnosed with it back in 2007 was placed as mild and it wasn't to hard to deal with it was just the idea of learning to adjust. But now its come to the point it feels like a lining of thick cement is in my stomach all the time and my nausea has increased even more on top of it all ready being bad. I've been on almost all the nausea meds out there to which none helped and I've been on Reglan and Erythromycin as well which neither have worked for my gastroparesis. I just keep losing weight and the weight I do have is from the large amounts of liquid I drink each day. I have had the NG tube before and done feedings that way but the liquid just built up in my stomach and made me even worse and even started causing me to have acid reflux. I was on the NJ tube as well but even with that the feedings were not doing as well as they wanted and the tube was making me sick as well. An RSD specialist I saw at the time told me not to have the NJ tube as it would be worthless. Luckily things kinda settled if you would call it that and I was able to get away with just my liquid weight but then within the last few weeks I've been losing a lot more even with drinking and I can't stand this nausea and cement lining. Do any of you suffering from rsd also have gastroparesis?? If so what treatment are you on, I thank you for your time and responses in advance.
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