Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-21-2008, 10:18 PM #26
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Join Date: Aug 2006
Location: N CA
Posts: 365
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Debby Debby is offline
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Join Date: Aug 2006
Location: N CA
Posts: 365
15 yr Member
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One of the doctors I was seeing 2 yrs ago when PA came out that she used Enbrel for RSD told me that her doctor retracted that statement & said she was using it for Arthritis only, was because at that time atleast, Enbrel was not used for off label purposes at all. There was talk of putting me on Enbrel except that I, personally, didn't have any of the specific Diagnosis' that Enbrel was being prescribed for. And if you didn't have one of the diagnosis' that it was legally prescribed for, you could not get & use the drug Enbrel.

This doctor I saw at that time had been involved with a major study of using Enbrel for RSD at the University of SF Hospital or whatever hospital it is in SF that she had been at. I can't remember as she is no longer in my doctors office & I did only see her twice. But anyway, if she doesn't want to be a spokes person then that is that.

I agree with GnP we need to quit beating a dead horse.

And I agree with herthat the upcoming events in LA are a very good thing. Please keep us up to date with it all ok? And I didn't know you knew all those different celebrities including PA.

DebbyV
ps I watched AI last week & I didn't see any enebriation in her at all.....
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