Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-28-2010, 05:56 AM #3
keep smilin keep smilin is offline
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Join Date: Aug 2009
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15 yr Member
keep smilin keep smilin is offline
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Join Date: Aug 2009
Posts: 851
15 yr Member
Heart Oh boy Finz... literally!!

Quote:
Originally Posted by finz View Post
I should preface this by saying that I do know I have a lot to be grateful for. While my pain control isn't where I'd like it to be, it's soooooo much better than it was a few years ago. And I have a big vacation coming up ! I leave for a week in Key West for a parrothead convention on Monday.....Woo Hoo !

My vacation plans are part of the problem. I'm trying to get the house a little picked up so my 'babysitters' for my 14 and 16 yo old boys won't be totally disgusted. While my house is not quite bad enough for an episode of 'Hoarders' we could definitely star in an episode of 'Clean House' Trying to engage my kids to help is like pulling teeth. I ask them to take some of their stuff to their room and they pick it up only to dump it the next room over......out of my sight temporarily. If I could easily move around from room to room to follow them, I could have done the job myself !

Now some of the mess is mine.....and I have been trying hard to work on that, but my efforts have been hampered. My husband already left for the trip. He went a week early to go fishing. Not that he would do any of the cleaning, but normally he would be the one going to the grocery store, cooking dinner, and driving the kids to all of their activities. Monday I spent the whole day driving around. My 14 yo's friend's father passed away, so I got him dismissed from school, took him to the funeral mass, then the burial, then the 'post party' I had an hour to collapse at home then off to bring the 16yo to guitar lessons......all the while not able to take pain meds because I was driving, causing a massive flare. Tuesday night spent an hour waiting for the 14 yo after football practice, only to eventually find out he got a ride home from someone else. Tonight it was trying to get the 16yo to unpack the dishwasher, so it could be loaded again to clear some room so I could make dinner when I got home from the football pickup, only to have it still not done when I got home.......and both of the bitching because dinner was so late.

After dinner, when I asked for some help picking up, my 16yo INFORMED me that "this you being sick thing is really getting old. It was okay in the beginning, but we are sick of doing crap for you that mother's are supposed to be able to do......we are not your servants."
Hello Finz...

Iam sorry for your fustrations..They are so real..Our kids, mine ... girl-16 and boy-14.. Well, say no more..The best descriptive word is self centerness.... not that one day they won't turn their actions and feelings around ... but right now it is all about them..Do you find they go hot and cold in the receptiveness of your illness..Ours do..some times I could squeeze the dikkens out of them and others..depending on their mood..they are not so squeezeable..thats when I lose it and insist on their help. Nobody..I repeat nobody ... knows what pain and discomfort we deal with daily... every minute of the day...everyday! And I wouldn't want them to... But just toss us a bone and fake it..right?? Mostly, I want to say is I understand your situation..wishing I could do what I was able to before RSD..don't beat yourself up over this..as it will cause you more pain and exaustion before leaving for your well deserved trip..One day our kids will get it..even spouses.. please, don't take what they said to heart..let it roll right off because tomorrow they could have tears for you, chalk it up to only words....let the appearence of your house go..only doing what you can with little help from others..in the mean time, your sitter knows you are not feeling so well and I am sure she'll 'overlook' it..Just have a wonderful time..and take each day as it comes..

Much love, Kathy
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