Well the tens unit don't work at all for me... I tried I will try anything.... Anyone having trouble sleeping? I can't sleep because of the pain.... Driving me nut's!!!!!!!!!! Try to take hot bath to help and my med's but nothing can stop this darn pain........ Let me know what you do...... Thanks....

Hello Debra,
I've had RSD/TOS since 83. Rsd went full body about 8 years later, which, it took 7 years for a diagnoses!! Imagine that?
I was in a second accident, neither my fault. Now a TBI (Traumatic Brain Injury), four herniated discs.

I've had a TENS unit, and, I found it to work on 'moderate' pain.
It's really just a blocker, that is to 'fool' your system to feel the TENS, rather than pain.

I've been on methadone for 20 years, cymbalta, valium, zanaflex, Lidocaine patches, and imetrex for migraine. This is the way it usually goes. When we find a knowledgable doctor, we get put on a 'cocktail' specific to our own symptoms.
And, if you must teach your doctor, that's a problem on top.

How long have you had your Doctor?
Like him?
Is he knowledgable in RSD?

If not, speak up.
Go to
rsdsa.org
do a search for a doctor. by zip code.
Join there too.


I've lost, literally millions to this disease, and the brain injury, but the loss of family, and those things are priceless.
I know loss, but I also know faith!
Keep that!

We're all here to help you!
Don't be afraid to PM me...

Yer new friend,

Pete
asb

Does your dr know the meds aren't helping and lack of sleep is a big problem?

I think most with any kind of chronic pain end up with having a long acting or time release meds for base pain relief, then a quick acting med for flare ups, and usually an anti depressant {also works with pain meds for better results} and even a sleep help med.

Sleep is very important for the body!

If your dr doesn't seem to understand all this or be open to helping you , might be time to find a better one.

Hi Debra, I did use ambien cr for a while for sleep, but quit working. Would literally stay awake all night till about 6 am. Was terrible like you said. My Dr. was doing a 200 person trial study of seroquel xr for fibromyalgia. He added me to the study and immediately started sleeping 10 hours a night. I've been on it a year or so now and sleep so well. I did have him cut the amount in half. I take 150 mg now. and sleep well on that amount. Meds are different for everyone, works for some and not for others. But that is my experience. Hope this helps. One of your new friends, loretta

Check with your doctor first but i take Benedryl to go to sleep usually the dose is 2 and I will take 3 and sleep pretty well.
Ambien stopped working for me. I have oversactive bladder issues too so sometimes i am up because of that but the benedryl seems to help that too. On a different post someone said that beneryl helped their burning pain feeling...it hasnt helped me in that area that i have noticed.
Blessings
Lori

I used to have trouble sleeping. Ambien CR quite working and I would be awake all night till 6 am. My Dr. was doing a 200 person trial study on seroquel xr and added me to the study. I immediately started sleeping 10 hours a night and still do. It's been over a year. We cut the dosage in half to 150 mg. and I sleep just as well and 10 hours. So grateful. It doesn't work for everyone, but I'm grateful. I also take 120 mg of cymbalta at night. It is a anti-depressant, but also helps with sleep. I take 4 mg of lorazepam, which is anti-anxiety med and I believe it also relaxes me at night. Take Vicodin for pain 4 4/500 a day. I save one for at night. Hope this helps you. A warm bath with epson salts can help some people to relax in the evening and help with sleep.
Take care, one of your new friends, loretta